Posts Tagged ‘autistic adult’
Adult Men in the Women’s Bathroom
There is a meme going around Facebook land right now. It’s not new. It’s not widely shared either. And the comments are always colorful. In fact, I think it might make people uncomfortable. But nevertheless, I see it every few months or so. It reads: ACCEPTANCE IN RESTROOMS Older children and adults on the spectrum may not be able to go to the restroom alone. If you see someone of the opposite gender with an accompanying adult, assume there is a good reason and don’t judge or comment. If you…
Read MoreMother Posts Sign on House to Protect Autistic Son from Police
This story is almost three years old. I just learned of it today. I saw the photo above on Facebook. And I instantly felt ill. Sick to my stomach. Because I knew. This is the reality for so many parents in my world. This is my greatest fear. And I know say that a lot. I worry about who will care for Cooper after I am gone. Who will keep him safe. But in the now, in the day-to-day, I worry about protecting him from the world. He is nonverbal.…
Read MoreNo One Tells You
Your first child turning 18 is an exciting time in a person’s life, right? A time when the child you grew within you reached the age of legal adulthood. It seems like those 18 years went by in a blink of an eye. A child you raised, guided, and encouraged throughout their childhood actually turned out pretty darn awesome. Your role in their life is different now. The little birdie is getting ready to leave the nest. They are preparing to go out on their own and conquer the world.…
Read MoreMy Hidden Grief
So, yesterday was a low point in the life of a mom. For those of you with typical kids, take pause, and stop for a minute to read this. I promise you, by the end of this, you will be more thankful for having healthy children. Let me first preface this by saying, I don’t journal. I don’t have a diary, and I don’t write about my journey everyday. I don’t blog, though, I have thought about it. This is my only outlet to let go and process when my…
Read MoreWhat’s it like to be Nonverbal…
I am so excited and honored to introduce you to Peri of Not Raingirl. I have been following Peri for quite some time and trying to learn everything I can from her. Not only is she amazing herself, I know that she can help me be a better mom to Cooper. Take a read as she describes what it feels like to be nonverbal. Peri’s Story I was not fully verbal until I was 10 years old. I said my first word at 6 years old, but stopped saying much…
Read MoreWill the Grieving Ever End?
Dear God, it’s me again. I’m tired today. I can hardly take a breath. I’m so tired of fighting for every single thing my son needs. My head is spinning and I still have so much to do. I’ve been fighting back tears lately and tonight Cody took me by the hand and led me to his room. He took his yearbook down from a shelf and motioned me to sit down with him. As I sat with him on the edge of his bed I waited as he opened…
Read MoreSkeletons in my Closet
I am so much older and so much wiser these days. And yes, so much more thin and worn out than when our eighteen year old daughter Jazz was given that autism diagnosis at age three. In those early days, I swallowed every book, watched every documentary, attended every autism-related conference in order to get a handle on this thing life had thrown my way. I was puzzled by the old moms I encountered and their silence. As a newbie to autism, I was naïve perhaps as to what changes…
Read MoreThe Rubbish Door
As I was driving somewhere the other day with my kids, I saw a fully intact door sticking out of a dumpster. The dumpster was full of rubbish, and sticking out of the top like some kind of afterthought was this door with hinges and doorknob still attached. Something about the picture this made had me slowing down as we passed. I thought about The Lion, The Witch, and The Wardrobe and Monsters Inc. and wondered about doorways to other universes. I wondered about doors that allow you to time…
Read MoreParenting a Child with Nonverbal Autism
You will forever have hope that the next year will be when they begin to talk, then you realize it been almost 18 years since the diagnosis. Many years ago, right after Jake was diagnosed, my heart hurt, and I was seeking how to express who my sweet boy was. So I wrote this poem. Looking back on my writing, I truly had no idea the journey ahead of us, but it’s played out just like I wrote, so many years ago. A poem for my son. My boy, Jake…
Read MoreFinding Alone Time, Tis’ So Sweet
I find so much joy to be able to be my sons caregiver. Somedays it can be emotionally, physically and mentally draining, especially if I am not intentional about assuring that my needs are met. And one need that I am intensely aware of is the need to be alone sometimes. Let’s be real for a few minutes, as Jake’s mom, I am eternally exhausted. I’m not gonna lie. I pour my everything into his well being, day in and day out. It is the most rewarding and demanding “job”,…
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