Posts Tagged ‘Special Needs Parenting’
What Happens When We Are Gone?
The company where I work does a job for a regular customer a couple times a year. She has a child who’s somewhere on the autism spectrum. From the few times that I have actually seen her, she seems to be fairly verbal, and smart. But, she has also been in the same school as Amelia for most of her life. Although, I think, its been off and on for the last few years. The mother is an older lady. In her eighties, I believe. The daughter is somewhere in…
Read MoreAt Least She’s Healthy
When your son was diagnosed with cancer my daughter had long been diagnosed with autism. They were in the two’s together and every day my little girl showed up with a Birth to Three therapist. I’m sure you saw us. She was the only one who needed a therapist to get through the day. To put a cup to her lips and push her chin up. The girl who had meltdowns and ran down the hall spinning, tumbling laughing maniacally. I remember when I heard about your son. I went…
Read More10 Things Special Ed Teachers and Staff want Parents to Know
As so many of us parents prepare to send our kids back to school, or even to school for the first time, I know emotions are running high. Especially if you have a child with additional needs. The fear is real. I asked the teachers, aides, and paras in my audience to tell me what they wanted parents to know. Here are ten of my favorites. Click HERE to read the rest. As a special education teacher, I say to my students and parents that I love them like my…
Read MoreI Don’t Know How You Do It
I don’t know how you do it. Those seven words grate on my very last nerve. What do you mean how do I do it? Isn’t that what a parent is supposed to do? Isn’t that our #1 job? When I entered this parental world, I never imagined it would be like this. I never knew such a deep love and sadness all wrapped in to one. I never knew Autism. Autism knows no bounds. It ravishes your life piece by piece. Autism takes away so much. It takes away…
Read MoreWhy Parents of Kids with Special Needs Stay Silent
As parents of kids with special needs we know our lives are different than most. Our highs are higher and our challenges are more significant. While our peers are registering kids for sports we are arguing with the insurance company about the cost of a stroller. Or trying to figure out a new behavior. We are getting babysitters for teenage kids and researching a new medication. We are putting up door alarms and trying to balance the world of special needs with the typical world. And we are celebrating our…
Read MoreSomeday you will Leave Sweet Boy
On particularly emotional parenting days I’ll watch them sleep. Sharing a bed. Neither one acknowledging the other one until bedtime. 8:30 will roll around. Sawyer will still be in the backyard hitting baseballs or riding his bike over a jump with his friends. Like clockwork, Cooper will look around, grab his blanket with one hand, put his other hand on his check to mimic sleeping and say, ‘SSSS-AH-ER.’ ‘You want Sawyer buddy?’ He’ll say yes and point upstairs. I typically take him up and get him ready for bed while…
Read MorePrecious as a Prayer
I sit and watch you after you have fallen asleep. I am in awe of how much you’ve grown. I sometimes mistaken you for your big sisters (now you weigh the same), and I pull back with fear. You see, sweet child, I have come to terms you will always be my baby. I will always protect you and sing you your favorite lullaby in loop mode. I will always be there to help you eat your breakfast and remind you the food is hot, and to use your fork, not…
Read MoreFamily asked to Leave Restaurant due to Son’s ‘Noises’
A family says they are left heartbroken and saddened after they were asked to leave an Outback Steakhouse restaurant in Glen Burnie, Maryland on Saturday night because of their son who has Childhood Apraxia of Speech, a neurological disorder. Amanda Braun’s son, Killian, was born with Childhood Apraxia of Speech. The disorder affects Killian in many ways especially communication and behavior. Sometimes when he speaks, his words are unclear. My son Cooper also has apraxia along with autism. To us this means he wants to communicate, he knows what he…
Read MoreI have the Challenging Kid
I have the challenging kid. The one who doesn’t want to cooperate or participate with anything, unless there is something in it for him. Even then it’s hit or miss. And teaching him new things feels impossible, you’re always met with so much resistance. He’s loud and screams—a lot, because he has such big emotions and no way of expressing them. I have the kid who has sensory needs. He spins and goes upside down and refuses textures and adventures. He stims by squealing and dancing and tapping on his…
Read MoreWhen Forever Hits You…
I just went for a run. My first run in years. It was terrible. 85 degrees out. Sunny. No breeze. I ran for 30 minutes. I didn’t stop. I cursed myself a few times. I’m 36. And I let myself get this out of shape. I used to run. I used to exercise. But then life got too hard. Too busy. My legs felt like concrete. I was going so slow at times I waited for people to pass me. But I did it. I didn’t make any excuses. Like…
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