Posts Tagged ‘Special Needs Parenting’
Be With the One Who Gets It
Be with the man who holds a leg in the delivery room. Who helps hold your boob when you are sobbing over trying to get a newborn to latch at 3 AM on day two. Who thinks you are beautiful despite the baby weight. Be with the person who changes diapers. And I don’t mean just baby diapers. The one who will change them long after age 2 and 3. And coaches t-ball and goes to every hockey game and Miracle League Baseball Game. The one who gives your babies…
Read MoreHello 3 AM, We Meet Again
Hello 3 am. We meet again. I can’t remember the last time I slept fully and peacefully without seeing you and getting stuck here in these lonely early hours, while the rest of the world sleeps. I’m not sure what wakes me, maybe it’s a dream. Or maybe my brain is just more active at this time of the morning, when everyone else is still sleeping and the quiet space gives me time for the anxieties and worries to creep in. I am blessed with a good sleeper. My almost…
Read MoreTake the Picture
To the mama whose baby isn’t starting school today. To the parent who is wondering if they should take the picture. And wondering if they should celebrate just another day. To the dad whose sending some kids back to school but not the others. To the parent feeling a twinge of sadness today. Or a lot. I understand Your child doesn’t go to a typical school. They go to therapy. There are no grade levels. Just continuous time. Or maybe they do but they aren’t really in a grade. On…
Read MoreA Coward’s Message Goes Viral
Valerie Jerram, a Newark mom, posted a letter to Facebook on Saturday about an anonymous letter she received asking her to keep Mickey, her special needs daughter, away from a little league ballpark. The letter was left taped to her mailbox by a nameless local resident, presumably also a parent of a child in the Midway Little League where Jerram’s son has played for nine years. In fact, the family consider the Midway ballpark a second home – confirmed by the hand-painted wooden sign adorned with a pretty ribbon on the front…
Read MoreLetting Go of the Shame of Autism
I remember it like it was yesterday. It will be 30 years this month that I experienced rejection for the very first time in my life. I was beginning my grade 9 school year. After a summer being away from home, I was nervous to come back to school for some reason. I tried to comfort myself by saying, ‘Wendy, don’t be silly, you have been best friends with these girls for 4 years, everything is going to be fine. You are in the popular group. Everything will be great.’…
Read MoreTo my Fellow Target Shopper
“You are a little too big to be sitting in there don’t you think?” So said the elderly woman at Target, with a chuckle and a wink, to my Isla as she sat with her knees grazing her chest in the shopping cart. I was tired. My body, my spirit, tired. The summer has been so long. I had zero make-up on but I had brushed my teeth, put a cap on to hide my unkept hair and managed sufficient deodorant swipes so I was totally winning the day in…
Read MoreYou are Enough Moms and Dads
As a mom to a little boy with severe, nonverbal autism, I spend more time than I would like to admit wondering if this is all going to be okay. Will my son be okay and safe and thrive in a world that isn’t designed for him? I wonder if I am doing enough for him? Heck, I wonder if I am enough for him? And I’ve learned one thing. At our darkest, lowest points in life, something beautiful will happen. Something unbelievable. Something that will rejuvenate you. Give you…
Read MoreSorry for the Delay, I’ve been Sad
I looked down at my cell phone this morning. 37 unread text messages. 37. Dear God. Thousands of unread emails and Facebook messages. Have I been on vacation? No. Taking a social media/world time out? I wish. Nope. It’s been a long couple of weeks. My baby isn’t sleeping. And by isn’t sleeping I don’t mean waking up once a night. I mean waking up 3-5 times a night. And then I got hit with a cold. That happens when I get over tired. My body literally shuts down. It’s…
Read MoreThe First Person Who Said It
As goes the public domain of the internet, all bloggers get trolls on their pages. I handle them by deleting their posts and shutting them down. I deleted four comments this week because I’m too busy to engage with people who can’t be reached. I want to be here for all of the moms who have emailed me and reached out to tell me how my story has helped them. This leads me to why I share our story. Why do I expose myself to the crazies of the internet? …
Read MoreTo the Mom who is Trying to Figure out who She is After Special Needs:
I thought I would be a boy mom. A baseball mom. A hockey mom. A social mom. A mom with a lot of friends. A cool mom. A successful mom. Autism challenged every one of those titles for me. I am brave enough to say that. The role of special needs mom overpowered it all. It turned my whole world completely upside down. And inside out. And backwards. It demanded I slow down. And move faster at the same time. It demanded I speak out and yet learn to hold…
Read More