Posts Tagged ‘Nonverbal’
Assistive Technology for Kids With Autism
A Speech Device scared me. I thought it would limit what little verbal communication my son had. I was scared that he would go silent. I was scared he’d get teased. And honestly, I was worried to try something new and fail. If you have a kiddo who is nonverbal or has limited communication I am sure you have heard about Talking Devices, Speech Devices, or Assistive Technology. And if you are new to the world of Autism it can all seem a little bit scary and overwhelming. When Cooper was 3 we had…
Read MoreHow to Grandparent a Special Needs Child
I called you today, Mom and Dad. You knew today was the day. The day of the appointment. The appointment that would either relieve all our fears or change the future. You knew the doctors and teachers were throwing around words like “autistic” and “developmentally delayed.” You knew I refused to believe it. You refused, too (and I appreciate that more than you will ever know). Our Family Was Changed Forever We told each other for a long time that he was fine. We reassured each other daily. He was…
Read More8 Ways to Prepare Now for Your Autistic Child’s Future
A few months ago my autistic, but otherwise extremely healthy child was denied life insurance. I was shocked and confused. When Cooper was born, in preparation for college, Jamie and I started a savings plan for the him that could be converted into dollars for college tuition. Smart right?! Recently, I received a letter in the mail that notified us that Cooper was denied coverage. I was irate. Autism is not a death sentence. My son is healthy. He has no medical conditions. An At-Risk Life After following up I…
Read MoreDear Mom, I Read Your Letter Today
A few days ago I shared a letter I wrote for my son Sawyer. You can read it HERE. It was a toughie to share. It was brutally honest. It was real. And I really put myself out there. I purged every ounce of worry and self-doubt that I have about raising an autistic child alongside a typical child. Let’s get something straight. Cooper is an amazing little boy. He is funny and sweet and brings more joy than I can put into words. But…it’s different for me. I am…
Read MoreA Letter To My Other Son…The Sibling To A Special Needs Child
My little peanut, Today is your fourth birthday bud. How can that be? I look at you running and jumping with your friends and it’s hard for me not to cry. You are amazing. I am so proud to be your mom. I need you to know that. I want to tell you a few things. I know you won’t understand them now. And that’s OK. But someday, when mom is old and grey, I want you to read this letter. I want you to know I am sorry. And…
Read MoreAutistic Kids Grow Up To Be Autistic Adults. And It Can Be Wonderful.
Before my son was diagnosed with ASD I would frantically search out stories, blogs and articles of hope. Stories where it turned out NOT to be autism. Stories where instead of autism the child was actually deaf. Or allergic to gluten. Or whatever. These stories had happy outcomes. I did this because the stories of autism-to-life scared me to no end. I wasn’t ready yet. Then he was diagnosed and even more ferociously I searched for stories were the child was cured. The child had autism and the parents started…
Read MoreI Can’t Fix My Son
I shared a video last night on Facebook and I can’t believe the overwhelming support I’ve received.Thank you to every single person that messaged me or left me a comment. Just reading the words, ‘I understand,’ is more therapy than I can describe. Knowing that people out there understand is amazing. It makes me feel less alone. So, what was the event that caused my crash? Well, we had an evaluation for Cooper yesterday at an autism center. I am looking for options that will replace public education. I am…
Read MoreAn Open Letter to the Friend I Pushed Away
I am sitting here thinking about our relationship and about how much I love you. And how I rarely see you. We joke that it’s because life is so busy. We are in our thirties and have jobs and babies. We are in that stage of life I guess. We are always saying that this is the month that we will finally find the time to get together. And when this month passes we will laugh via text and joke about how someday soon we will have more time. One…
Read MoreWhy I Gave Up Hope
I just changed my six year old’s diaper. It was messy. There was poop dripping down his leg. It was on his jeans. His socks. The poop got on my hand, couch and carpet. As I was changing him he gave me a swift kick to the groin that took my breath away. This is the side of autism that no one talks about. I almost started to cry. I’ve been awake since 3:30 am. I haven’t slept through the night in months. I’m exhausted. And I let myself think,…
Read MoreA Day In Cooper’s Life: Autism in Pictures
I am very vocal about the stress that goes hand and hand with being an autism parent. It’s a topic that isn’t always talked about. I want to change that. Autism is hard. Unbelievably hard. I have post-traumatic stress from it. For one it’s often extremely loud. For me it’s Cooper’s screeches mixed in with the constant sounds coming from his devices. And my little guy loves it LOUD. Really LOUD. I’ve tried covering the speakers with tape. He rips it off. I’ve tried headphones. He refuses to wear them.…
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