Conversations in Silence: Understanding My Nonspeaking Son

When my son was 7 and 8 and the reality of nonspeaking forever was sinking in, I used to spend a lot of time thinking about his future. What would it be like? A teenager and then a man who couldn’t speak. Would I ever know his favorite color? Or why he loved trains so much? Would I ever hear I Love You? Would people be kind to him? Would they be patient with him and treat him with the respect that he deserved? Would they know how cool he…

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Bend, Don’t Break: A Mother’s Journey

I come across pictures all the time. Old ones. Taken back before life got really interesting with four kids. I usually find them all crumpled up under a couch or stashed in between the pages of an old book. Sometimes a corner is ripped off. A sign that my oldest, who is autistic and adores photos of his family, has treasured it and hidden it away for another day. When I found this one I stopped picking up legos and beyblades and internally cursing my kids for being so dang…

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From Swings to Mountains: Siblings and Autism

Siblings don’t always get on. They argue, they fight, and sometimes end up in a bust-up on the floor. But normally, each gives their own, taking a swipe and returning a kick. “It builds character,” some might say. But not always. In our house, two of my children have always been separated. Play has always been supervised. They are never left in the same room together. One of them could get seriously hurt, and it would not be the other one’s fault. My son Rhys is nine. He is autistic.…

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Bookends of My Heart: Autism, Joy, and Heartache

It’s been a long day. A tiresome one. But a good one. I found myself with a rare moment of quiet, two of my children at the counter, the other two playing outside. My oldest and my youngest. Cooper and Wynnie. My bookends. I found myself staring at them for a second, wondering what the future holds. The wildcard being autism. Always, autism. When Wynnie was seven days old, Cooper held her for the first time, reassuring me that this would all be okay. As he cradled her, he counted…

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I Was a Less Than Great Mom Last Night

I had all four kids alone, from toddler to tween to an emotional 13 year with autism and it was a lot to handle. There was a lot of screaming. There was water play when there wasn’t supposed to be water play. And then wet clothes on the floor. And sand. I yelled. I don’t usually yell. But I did. There was talking back. And throwing. So much throwing. There was ‘mommy will you play with me.’ And a lot of screen time. At one point I looked around at…

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Reactions to Autism: Would You Be So Understanding?

I found myself out today in the community with my two of my four children. We were in a group of people. We were quietly sitting. And by quietly, I mean my 5-year-old son was bouncing off the walls and my toddler was chatting up a storm. Just as kids should be. Busy and happy. It was lovely. The three of us out together. I’m stretched a little thin these days so it’s nice to get time with my kids. I found myself looking around. I found myself missing my…

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Autism: From ‘Never’ to ‘Possible’

When my son was diagnosed with autism nine years ago, I began to think in nevers. Not right away. But more over time. Now as a typically very positive person, it felt strange. It felt unlike me. But, that’s how the people around us spoke about autism. Your son will never talk. He will never ride a bike. He will never make a friend. I could go on an on. He will never have a normal life. He will never live independently. Never, never, never. With each evaluation for services,…

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The Beautiful Chaos of Raising Four Children

There are a lot of things that change when you have four child. Many that didn’t surprise me. Your house suddenly feels a lot smaller for one and it’s nearly impossible to find a quiet space. Your favorite car or truck that you have loved no longer fits two car seats and 4 other people and you ultimately have to decide if you are minivan person or not. I am not. I am fighting it. You can no longer fit at the kitchen island for meals. Someone or two or…

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To the Mom Who Just Heard ‘Autism’: You Are Not Alone

My message to the mama who just heard autism for the first time…. Your child has just been diagnosed with autism. Maybe it came as a shock. Maybe not. Maybe like me you already had an idea that something was going on. But you still felt the sting when the words were said out loud. There are so many things I want to tell you. So many important things that I feel you should know. But right now, if you were anything like I was 9 years ago, your head…

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We Felt Weightless

Yesterday, our family went tubing. I watched my three year old daughter bravely climb in. Then my five year son and 11 year old son. They squealed with joy and high fived and yelled for dad to go faster. I couldn’t believe it. I commented how fearless kids can be. As we circled the boat, my 13 year old son sat next to me. He watched with bright and curious eyes. He isn’t one to join in. Or always willingly try. I looked from him to his siblings. And then…

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