Posts Tagged ‘mother’
My Most Precious Moment
It’s been 525,600 minutes since we last celebrated Mother’s Day. Has your child progressed as far as you hoped he would? Has he reached the goals you set for him? For those who have…congratulations! For those who haven’t, know that you are not alone. I remember a year when my daughter, Lizzie, came nowhere near reaching the goals I had set for her. Lizzie was diagnosed with autism days after her second birthday. She had every red flag…no functional language, no joint attention, no ability to communicate, and no awareness…
Read MoreA Letter to My Boy on His Birthday
Dear son, On the eve of your 4th Birthday, I want you to know that you are loved beyond measure plus infinity forever. Autism has nothing to do with the fact that I am blessed to be your Mama. The love and joy that you have brought to my life is beyond anything I could ever have imagined. You make me smile EVERY single day. When I saw you for the first time, I couldn’t believe how beautiful and perfect you were, and I feel the same way today. You…
Read MoreI am her Person
I still remember the day we found out we were having a girl. To say I was excited is a complete understatement. I literally burst into tears. I have always dreamed of having a little girl. It wasn’t just about the bows and the tutu it was about the mother daughter relationship. My mom is my best friend and that is what I wanted with my daughter. Sadie was born on October 9, 2014. Life was great. Well it wasn’t perfect but I had 2 amazing children and a loving…
Read MoreYou Boys have made my Heart Whole
Caleb and Ben, my sweet little boys, you both mean the world to me. You’ll never even know. You wake up each day with big smiley grins. Those smiles melt my heart, and I live for them. You both have fragile x syndrome; there’s no denying it runs our household. And although it’s been quite far our biggest challenge, it’s shown me the most amazing abilities you both hold within. When some say they’ve worked hard for everything in their life, they have no idea. You two have and will…
Read MoreI’ll Never Give Up On Him
I remember attending a speech therapy play session at the start of our autism journey. My son Freddie was 3 years old. He’d officially been diagnosed just over 6 months previous to this. I was excited and nervous. The autism world was all still fairly new. I didn’t really understand what or how severe autism was going to affect Freddie. I’d never heard of low functioning autism, and googling severe autism left me feeling hopeless. I reminded myself that Freddie was still so young. I was in denial. I thought…
Read MoreHow do you Feel about your Son’s Autism Diagnosis?
Our son was diagnosed with autism in October 2018. It’s taken me some time to feel comfortable talking about his diagnosis. I just wasn’t ready to talk about how I was feeling. But now I think I am finally ready to answer the inevitable question that follows my disclosure: So, how do you feel about your son’s autism diagnosis? It’s not a short answer because I have lots of different feelings about the diagnosis… Relief My initial emotion when I got the diagnosis was relief. Relief that the past two…
Read MoreI’m Letting the Guilt Hold me Back
The days are long but full of so much joy. We spend every waking moment devoted to our kids and a lot of sleepless night when our brains won’t let us sleep. We IEP, we advocate and we constantly search for services. We clean up the same hoard piles 19 times a day, we do therapy and we handle meltdowns like a champ. We get so busy just living with Autism that we forget to live. We forget to take care of ourselves. The guilt that comes with taking time…
Read MoreThank you Mom for Everything
I am the blessed mommy of twelve year old twin boys. Noah has severe, non-verbal autism and epilepsy. Owen is absolutely typical. When you have a child with autism, life is anything but ordinary. Today I’d like to take a moment to honor and THANK one of Noah’s champions and favorite people in the entire universe, his Grandma (my mom) Cindy. Cindy has been an integral part of Noah’s life since day one. She gladly accepted the role of caring for our boys when I returned to work after six…
Read MoreYou Were Always Special
“Hi Mrs. France, we wanted to call and let you know that everything was fine with Jack’s X-rays. There are absolutely no abnormalities.” As your mother, you would think this would have been a phone call that I was elated to receive. Instead, I hung up in tears. It’s not that I want anything to be wrong with you, my sweet boy. I was just hoping that what was going on was something that could be “easily fixed.” I thought that maybe you just couldn’t hear the world around you…
Read MoreThe Little Boy that I Get to Know
I love you my son and I’m so, so, so, very proud of all the progress you’ve made in the last couple of years. You’re now at the age where we can really see your autism. You’re at the age where people know when we go out that you’re ‘different.’ Hopefully all of us Mama’s and Dada’s have raised enough awareness that they know you have autism when they stare at you. It’s ok. I see you looking at them. You know they’re staring you don’t care and guess what…I…
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