Guest Post
December Writing Challenge: Our Best or Hardest Autism Moment
A huge thank you to everyone that submitted a thank you in November. Please know that if you sent me one I will publish it. I have twenty or so to go! Each one is so beautiful. I hope the people you honored feel the love! December’s Topic This December I’d like you to write about your best or hardest autism moment. What was the moment that you remember above all the rest. The one that changed everything. For me it was when I realized how funny Cooper is and…
Read MoreThe Parts of Autism Only We See
I’m writing this at 10 minutes to midnight. I’m lying in my bed with one arm trapped under my 16 kg, 3 year old son, his eyes have finally closed again but his breathing is still jumpy and uneven after his wake up. It is a regular occurrence for my son to wake up screaming and inconsolable. He wakes up so heartbreakingly confused and will often repeat the same phases which make no sense to me but it’s something that must be going over and over in his mind as…
Read MoreThere is No Easy Autism
When my daughter was first diagnosed on the autism spectrum last year, I clung to the concept that it was no big deal—that it was “mild,” and she was “high functioning.” She was going to be fine and this was not going to interrupt our lives because she was so smart and how could that happen? But looking back, I now wonder—what does that mean? What is “high functioning autism (HFA)?” Well, it’s not a medical term or recognized diagnosis from the DSM-5 manual, it’s just how some parents prefer…
Read MoreLife Changes
Have you ever had that feeling, like your world just stopped turning? Like you are standing still, but everyone around you is moving forward? So dramatic, I know, but this isn’t like in the movies when your whole life “flashes before your eyes” or when scenes from your past/present go racing by on a fast train or something. When my son was almost two years old, the long road to his autism diagnosis began. This was also the point where my world quickly shifted to revolving solely around autism, and…
Read MoreA Mom’s Letter to Autism
DEAR AUTISM, I have had this letter in my heart addressed to you for some time now. I’m ready to tell you how I really feel. Almost three years ago to the day, you hit this family like a run-away train veering off track. We were simply trying to understand how to be parents, trying to figure out how to balance life, money, work and a relationship as husband/wife. We were slowly getting the hang of what being a family was all about. Then you came knocking at OUR door….…
Read MoreTo the Person Who Judged Me
To the person who judged me, How could you say it’s my fault my child has Autism? How could you go so low. When I am already at my lowest. You have no idea the struggles we have went through. You have no idea all the hurdles we’ve had to jump. All the sleepless nights. All the meltdowns. All the frustration. Being so emotional because your child doesn’t speak, and you have no idea what is wrong. All the doctors and therapy appointments. Feeling so isolated. Wanting to cry 24/7.…
Read MoreEverything I Learned in Life I Learned in Kindergarten
This past week my son Brayden was child of the week. I had an opportunity to go into his classroom and talk with the class about Autism. We talked about Brayden and how he loves to swim, jump on trampolines, play in the sand, and swing just like they do. We talked about ways that we all cope if we are frightened, scared, or sad, and what that may look like for Brayden. The kids had an opportunity to try on his ear phones, weighted vest, blanket, and body sock.…
Read MoreWhat Being Your Mama is Like
You know the thrill of going down a roller coaster? You’re incredibly terrified, gripping the sides, white knuckles and all. You can’t even seem to breathe. You’re dizzy, and everything is a blur. It’s so loud you can’t hear a thing. You just know you’re about to be sick. Your hair is in your face and your stomach is in your throat. “What am I going to do?” you ask. You feel completely out of control, like wherever this things takes me, that’s where I’m going. You just have to believe…
Read MoreA Mile, A Marathon and A Tour Guide
Every once in a while, somewhere out in public, Noah will scream or screech with delight in a place he loves. He can’t help it! He has autism and he’s non verbal. It’s how he tells me he’s happy. However, sometimes it’s at a place like the grocery store or Lowe’s where it echoes across the whole store. That’s when I get a few different kinds of looks. Sometimes I get the look of pity which is unnecessary but at least has good intentions or I’ll get the ‘I get…
Read MoreA Day in the Life of Brayden
As the days tick down and school is about to begin I can feel the anxiety starting to climb at our house. When I was growing up I remember back to school as a glorious time. I remember going on a shopping trip to Mall of America or the local mall. We would spend the day laughing, wandering, and occasionally picking up a new pair of jeans or a needed pair of tennis shoes. It was never about the stuff. It was about spending quality time with your mom. Now…
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