Posts Tagged ‘support’

He is tethered to me. This son of mine. Although imaginary, connects us at all times, his lifeline. As he’s aged the rope has started to reach farther. I can move throughout the house without him following me from room to room. But he knows. He always knows where I am. I can go in the front yard and visit with neighbors. He waits for me, typically on the porch or just inside the glass storm door, watching. The tether seeming to expand and contract. I can go on my…

Today was a day. Long. Hot. A bit boring. Fun at times. The kids are figuring out this summer vacation thing. So are mom and dad. Schedule changes are tough I tell ya. It takes time to settle in. To figure out how to slow down. I watched my two oldest, Sawyer and Cooper, swim for over an hour. At first, just Cooper wanted to swim. It’s his most favorite activity ever. He’s a fish in the water. An autistic adult told me once that being under water is the…

There are quite a few stories in the news right now about kids with disabilities being excluded from events at school. This happens every year. And as mom to a child with nonspeaking autism, reading them hurts. Because I know. I know what it feels like to have a misunderstood child. And feel like you don’t belong. It’s an ache. It’s a deafening silence. It’s hope. It’s anger. Its frustration. It’s more. I’m sharing this with you because something beautiful happened. Something I didn’t expect. And it has humbled me.…

This weekend, I had the honor of pouring into over two hundred special needs caregivers. I told them about how much I wondered what I could speak about that would inspire them, be something new they hadn’t heard before, and give them something tangible to put into action. I asked them to pause each day and ask themselves three basic questions to clear space to find gratitude and joy every single day. Even on the hardest days, there is always something to be grateful for. In a world where we…

Summertime is different for some kids… So many of you are asking me about Cooper’s summer plans. A valid question. He finishes up school this week. Then he will be an eight grader. He absolutely understands that school is almost done for the year. I know because yesterday when we walked him to the bus he held up three fingers the entire way and had us repeat…’three more days.’ He likes his reassurance that one. Summer breaks are different for kids like Cooper. Or maybe it’s just him. I guess…

Ten years ago, the word “autism” was not in my personal dictionary. I rarely heard the word. I didn’t know anyone who was on the spectrum, or even a friend of a friend. I couldn’t have told you what it meant or what the signs were, just that it was a word that seemed hidden or something to be ashamed of. A word that you whisper quietly so only a few can hear. A word that scared me because it was unknown and unfamiliar. I couldn’t have told you that…

And then she said, ‘you are so lucky that your son doesn’t care what he looks like. Or care about the latest trends in clothes or even what his hair looks like. It’s so hard these days to keep up.’ She finished it with, ‘I bet he doesn’t even care what you dress him in…’ I’ve been thinking about that conversation for over a week now. I know what she was getting at. I know what she was implying. She was telling me I was lucky that my kid didn’t…