Posts Tagged ‘Special Needs Child’
My Fears are Different
Parents have many fears for their children as they grow up…but as a special needs mother, my fears are so different than most. It’s difficult to put into words. So here I go…. It’s hard not to have tears roll down your face at night when everyone is asleep..when you look at your child so perfect, who is sound asleep, just thinking how much you love them. You lay there and think about everything. You can’t turn off your thoughts and fears. It’s hard to relax and take a deep…
Read MoreA Life Meant Just for Us
A few days ago, I was watching a fellow special needs mom story on Instagram. Like most day’s she was giving a real insight on what it’s like to raise multiple kiddos on the Autism spectrum. She was asked what would be her advice to the parent of a child who was recently diagnosed. What she said next about grief was not what I was expecting, but it stuck with me. She said, if we are being truly honest with ourselves, we are not grieving the life our child may…
Read MoreA Glimpse Into the Non-Speaking World
My son is nonverbal. Although I’m not supposed to use that term anymore. The preferred term is ‘non-speaking.’ I am tired of arguing about descriptions so I will just explain. I think it’s easier that way. My son is ten years old. And he has no actual words. It’s hard to believe but it’s important to understand. It’s important to take a glimpse into someone’s life sometimes. That’s how we learn. He can say his name if asked. Cooper. He makes a sound for each letter. Six sounds. The two…
Read MoreI Wish I Could Have Told You
I think about you sometimes mama. 28 years old. You just had your first baby. You named him Cooper months before he was born. You painted his nursery blue. You went to birthing classes and read What To Expect When You Are Expecting. Your husband bought him a baseball glove and bat. And a Minnesota Wild jersey. You were both so ready for him. I can see you going to the hospital. So excited. So scared. I can see you holding him in your arms for the first time. You…
Read MoreA Letter to My Son and His Friends, Graduates of the Class of 2021
Congratulations, graduates! Not only have you graduated in the midst of a global pandemic under extreme circumstances of social isolation, strict quarantines, and frequent cancellations; but you have done so with many academic achievements and honors, athletic awards, and college scholarships. You have given yourselves and your families so many reasons to be proud! While these achievements should be acknowledged and celebrated, I believe there is something you have demonstrated that is even more important, your kind heart! From the time I first met all of you, you have shown…
Read MoreThe Words I Couldn’t Say
Last night, when the mosquitoes stirred on our damp lawn, Willow stirred too. I asked her to grab her sandals and we went for a walk. We walked to the end of our street where I lit a sparkler for her. She danced entranced swinging the metal stick in the air. I took her for a walk because her mind and body needed to regulate. She was a mess and going for this walk would very methodically prevent a meltdown and a potential bolt. I scratched my eyes and thought…
Read MoreSome Don’t Follow the Beaten Path
Some kids never follow the beaten path…Whether it’s from birth or from a later date, some kids don’t follow the beaten path. They don’t meet milestones on time. They don’t follow the norm. They don’t do what every other kids is seemingly doing. My son Cooper is that way. He takes note of what he is ‘supposed’ to do and does the opposite. Some people call him a free spirit. Some call him stubborn. Even challenging. Autistic, disabled, special needs…all words thrown in. It’s hard sometimes. I won’t lie about…
Read MoreLosing His Normal
Summertime is different for some kids… So many of you are asking me about Cooper’s summer plans. A valid question. He finished up school yesterday. He is now officially a 5th grader. He absolutely understands that school is done for the year. I know because yesterday when we walked him to the bus he held up one finger the entire way and had us repeat…’one more day.’ He likes his reassurance that one. Summer breaks are different for kids like Cooper. Or maybe it’s just him. I guess I’m not…
Read MoreMoments of Chaos
We are a week into this family of six thing. And while I did everything I possibly could to prepare our boys and selves for our newest addition, it’s still been a huge shock. Somebody messaged me yesterday that one kid feels like two. Two feels like three. Three feels like five. And four feels like eight. She was right. The house suddenly feels smaller. And so much messier. The clutter is insane. Everyone is always hungry. The dogs nails feel louder on the hardwood floor. Naps feel shorter. And…
Read MoreYou are a Gift to all of Us
Dear Daughter, You are such a light in our lives and in the world. You are smart, strong, beautiful and have a heart of gold. You are full of compassion for others (and a pinch of sass). I can only imagine what it must be like growing up with a sibling with autism. I mean, we as adults get stressed, anxious and sometimes scared, so I know it must be the same for you. Kids are supposed to grow up in a calm environment and sometimes that’s just not possible…
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