Posts Tagged ‘Special Needs Child’
Why I Share Our Story
It’s about meeting the parents. That’s why I do this. Write. Share. Let people into our secret world of autism. Your son reminds me so much of my son. I found you years ago when I felt so alone. You saved me. You don’t know it…but you did. When I have a sad day your kid’s smiles bring me joy. Thank you. You showed me this would be okay. I don’t share for follows or likes. Or to be recognized. Or any other reason like that. I share because the…
Read MoreYou are Making a Difference
I don’t typically call out comments on this page, especially negative, off-the-wall ones. Because if I do, I get scolded for giving them attention, or bullying the bully, or whining. But this comment, this one had me in stitches. I shared a beautiful post the other day about my son saying ‘cars.’ It was one of the most amazing moments of my life. It received nearly 3,000 supportive comments and one negative. One. From Anne. Anne was scolding me. She looked at the post about the 11-year-old boy saying his…
Read MoreThe Best Birthday Gift
This morning I walked downstairs to my sweet boy sitting on the couch, surrounded by his treasures. He waved. It was quick though. He was very busy watching his shows. He takes his show watching very serious. Especially on weekend mornings. ‘Cooper, it’s mom’s birthday today!’ I said. Now I don’t know what I expected. Not words of course. But a cheer. A smile. A gasp. But nothing. He looked back down. It stung. Like a tiny bee sting or a poke in the side. But the pain is duller…
Read MoreAlways try One More Thing
People ask me every single day what advice I would give to parents of newly diagnosed kids. It’s a big question and I can think of so many things I would tell them. But one thing, the most important thing, the one that I feel is vital is… Always try one more thing. I can’t tell you how important it is. When I have been at my lowest, not knowing how to help my misunderstood little boy, both of us beat down by this world, I’ve wanted to give up.…
Read MoreHe’s My Home
My ‘older’ middle son has been having some big feelings lately. He is 9 years old and sandwiched in between two very big personalities and a baby sister. I think sometimes it can be lonely to be the ‘easy’ one. His dad and I are working for hard to make sure he knows how magnificent and treasured he is. And doing our best to navigate some uncharted waters. We want to speak to his heart. Last night a movie on the couch with popcorn and tickles. This morning a doughnut…
Read MoreWe Touch Our Hearts
My son Cooper knows some sign language. Like many parents, when we realized that he wasn’t babbling, we dove into baby sign language. More. Yes. No. Help. Cookie. Ball. Sit. All done. Thank you. The important ones. As he got older, and his fingers and hands didn’t seem to cooperate in the way we hoped, his signs got less and less. As he aged, we turned our focus to a speech device. A computer that speaks at the touch of a button. I’m telling you this because something beautiful just…
Read MoreHe has Always Needed Me Differently
I have four kids. All are very different. Unique in their own ways. And each demand something different from me. That’s the beauty of motherhood I suppose. Last night, my oldest son, had his first therapeutic horseback riding lesson. He is 11 and autistic and was excited and nervous. He got on the horse. He did it. And as I walked alongside him, sweat dripping down my back, I felt joyful and a bit tired. I was the only mom in the ring, which after 11 years, I am used…
Read MoreMama, I Give You Permission to Rest
I give you permission to rest mama. To set down what you are carrying. I can see the weight of it all. You carry it so well. People call you inspiring. They speak of you as an inspiration. Someone to aspire too. But the weight is no lighter for you than for anyone else. I know that. And so often, the world overlooks and forgets to see the ones who carry the weight well. You are tired mama. So, put it down. I give you permission. Take the day. The…
Read MoreHe can Show Me
I just got home from two days away from my babies. When my husband pulled up in the arrivals section of the airport, I practically ran to the vehicle. There is nothing better than coming home. Sawyer, one of my middles, opened the door and jumped in my arms. My other middle, Harbie, screamed….’mommy!! I’ve. Been. Waiting. For. You!’ And my daughter, Wynnie, she was all smiles. With Cooper, he’s more standoffish. A wave. A coy smile. When I climbed back to him, he immediately grabbed my hand and pulled…
Read MoreHis Spectrum is His Color
“When the professionals first told me about autism, they described it to me as a spectrum. When I pictured that spectrum, the one they described to me, I imagined a long line drawn with a thick black sharpie across a white wall, down an endless hallway. I hated the black and white and the dark, sad, clinical parts of autism. I hated straight lines too. So I started thinking of my son and his autism as a spectrum of color, like I did in the beginning, before the fear and…
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