Posts Tagged ‘siblings and autism’

It wasn’t supposed to be like this. I’m ashamed to admit that this is how I feel somedays. Don’t get me wrong, I never expected parenthood to be easy, and I know we don’t have it the hardest. But when I get the rare chance to reflect, I feel it. The exhaustion of living at a heightened level. There’s always something in life with a child with autism. It may be a new behavior that has popped up or resurfaced, or a program that requires hours of paperwork, or never-ending…

Today I had an interesting thought cross my mind. It was in passing as I was pouring coffee and starting my day. It was “I am tired of taking care of myself.” What does this mean to me? Every day I have to work hard to recognize what I am feeling. To be conscious about not shutting off, to add in moments that light up my spirit, to share with others, to eat and exercise for my brain, and to just keep standing in it all. It has taken a…

Back in the beginning, when the folder was slid across the table, and the words ‘severe nonverbal autism’ were said out loud… I remember wishing for a crystal ball. I wanted to know what the future held for my boy. His brother. Our family. I begged. I pleaded. I bargained. I prayed. For a glimpse. This is the one I wish I could have seen. Right here. A moment in time. Peace from the chaos. Two brothers. Two years apart. One verbal. One not. One on track. One proudly marching…