Posts Tagged ‘severe autism’
I Won’t Give Up
Yesterday was my dad’s birthday. 80 years young I told him on the phone. ‘I’m old Katie Marie. I’m old.’ When he said it we both laughed. Like we always do. As we chatted about the weather and my brothers and kids and how he misses driving, I felt the shift in time. I am old. He is older. Neither of us young anymore. We laughed a lot. Which felt like putting on an old lived-in sweatshirt that you’ve had for years. Each of his laughs brought me a sense…
Read MoreBoots
This morning, right as he was heading out the door for school, my son Cooper said a word for the first time. Umprompted. The word was boots. He said it so casually, so matter of factly, that when I heard it, I didn’t catch it at first. I was playing legos with my other kids and yelling goodbye and I love you while thinking about my day. I was busy. Mom busy. But after he said it, he paused, just for a moment. He was looking right at me from…
Read MoreYou are Special for Just Being You
My sweet boy, I’m just sitting here watching you sleep. I often do this, just so you know. I sneak in your room and quietly sit on the bed near you. Someday I’m sure you’ll tell me I’m creepy with your speech device. Or maybe even say it. Secretly, I can’t wait. I can’t wait for that simple normalcy. But until then, this mama ain’t stopping because I like to watch you sleep and imagine what you are dreaming about. I like to rub your hair and snuggle you really…
Read MoreA Photo is Just a Snapshot in Time
I’ve found that someone can find fault in every photo. A paper plate, a ponytail, a pacifier, a child’s smile or weight. A women’s eyebrows or the paleness of a man’s skin. Dirty countertops and car seats, babies running around shoeless, and the amount of time a child spends on an iPad. Even a double chin or a cookie. I could keep going. A pacifier. A runny nose. Makeup. A diagnosis. Discipline. The amount of time a mother holds her baby. The length of time she breastfeeds. So much so…
Read MoreYou are Making a Difference
I don’t typically call out comments on this page, especially negative, off-the-wall ones. Because if I do, I get scolded for giving them attention, or bullying the bully, or whining. But this comment, this one had me in stitches. I shared a beautiful post the other day about my son saying ‘cars.’ It was one of the most amazing moments of my life. It received nearly 3,000 supportive comments and one negative. One. From Anne. Anne was scolding me. She looked at the post about the 11-year-old boy saying his…
Read MoreHe’s My Home
My ‘older’ middle son has been having some big feelings lately. He is 9 years old and sandwiched in between two very big personalities and a baby sister. I think sometimes it can be lonely to be the ‘easy’ one. His dad and I are working for hard to make sure he knows how magnificent and treasured he is. And doing our best to navigate some uncharted waters. We want to speak to his heart. Last night a movie on the couch with popcorn and tickles. This morning a doughnut…
Read MoreWe Touch Our Hearts
My son Cooper knows some sign language. Like many parents, when we realized that he wasn’t babbling, we dove into baby sign language. More. Yes. No. Help. Cookie. Ball. Sit. All done. Thank you. The important ones. As he got older, and his fingers and hands didn’t seem to cooperate in the way we hoped, his signs got less and less. As he aged, we turned our focus to a speech device. A computer that speaks at the touch of a button. I’m telling you this because something beautiful just…
Read MoreThe Gift of Communication
I fell this morning. Like a legit fall. I bounced back up quick but I knew I had hurt my knee. I pulled up my pant leg and sure enough a huge bruise was already forming. I’ll also admit my ego was a bit bruised too. Falling. So embarrassing! Thankfully, no one saw me. Or so I thought. Minutes ago I heard a familiar sound coming from my son’s iPad. The Daniel Tiger episode where Miss Elaina gets hurt. I watched Cooper, sitting cross legged on the ground, move his…
Read MoreA few Simple Ways to Support Autistic Individuals and Their Families
April is Autism Awareness/Acceptance month. Here are a few simple ways to support autistic individuals and their families: 6. Reach out – Whether it to be a friend or family member or neighbor who lives down the street. Reach out. Say hi. Get to know them. And even if right now you say you don’t know anyone who has a child on the spectrum, you do. Family member, friend, neighbor, co-worker, school peer. We are out here. Get to know us. Ask questions. 5. Invite – I don’t know why…
Read MoreDog Rescue Refuses to Adopt to Families with Autistic Children
On March 22, 2022, Kismutt Rescue of Ontario, Canada, posted a message on their Facebook page. It was addressed to “Mama Bears” and referenced their policy of not adopting to families with autistic children. (*I could not find this policy on their website, so it is not clear whether it is for any autistic individual or just autistic children.) The message related two incidents that resulted in the creation of the policy. One took place around 2008 or 2009 when, according to them, an autistic child’s mother called to say…
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