Caring For Brother

Tonight we took a boat ride. Sawyer brought two friends. A brother and sister who are very much a part of our family. The big kids, Cooper included, all wanted to sit in front and scream at Jamie to go faster. They were also supposed to watch for logs but that part didn’t happen. As we boated along we hit some rough water. It only lasted a minute or so. Pretty common on a Friday on the St. Croix River. Anyhow, Cooper squealed as a bit of water splashed in…

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My Quarantine Hero

My wife and I are nurses and have been at work during this pandemic. With schools closed we contemplated who would care for Grayson, our 5-year old son with autism. In our pre-Covid life, he attended school for a full day and received OT, PT, Speech, Counseling, Music, Art and Yoga Therapy in addition to the core academics. School was followed by ABA at home for 3 hours/day Monday-Friday. You guys know the drill…it’s A LOT!! We also have Nicolas our 19-year old neurotypical son who is in his 2nd…

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A Letter to My Little Brother

Hey brother, I’m hoping that someday I can say this all to you. But there is a chance that I might never be able to…I’m hoping that when you are older you will read this and understand. I know I confuse you. I’m so loud. I flap my arms. I don’t notice toys. Or play sports. Or like to leave our house. I don’t have any friends. Or really pay any attention to you either. I just like mom and dad. I don’t play like you. I have never ridden…

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Today, Both my Boys Went to School

Today was a really big day in our little world. Huge really. This morning Cooper went to his brother’s school to have his school photo taken by Lifetouch. See, these two boys should be in school together. They should be in first and third grade and riding the bus to and from school together. But they are not. It is what it is I guess. This was a big deal for both of them. We’ve been talking about it for over a week. A new shirt! A fancy haircut! A…

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What is a Brother?

Brothers. Two years apart. Almost to the day. One loves Legos and Mindcraft and hockey. The other one loves being tickled, old train magazines, and game shows. One never stops talking and asks endless questions that sometimes make me laugh and other times drive me up a wall. The other one is more choosy about what he communicates. He makes us work for it. But when he does, mostly it’s mom, snack, home and yes and no. And cookie. And most recently Starbucks. I thought they would be best friends.…

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How We Show Love In Our House

Cooper has always communicated by touching faces. I like to believe it’s a nonverbal thing. And a Cooper thing. In my mind it’s a way to feel someone’s emotions when it’s hard to understand the words. Or facial expressions. It’s a way to say ‘I love you’ or ‘I am mad’ when the words can’t come out. It’s a way to get someone’s attention too. If Cooper really likes you, he will touch your face. This morning, and every single morning for the last six years, he has woke me…

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A Friendship Blossoms

Autism can be hard to understand especially for a toddler. All my son wants is just a relationship with his older brother, who up until a few months ago wanted nothing to do with him. Two boys with completely different personalities: Nicholas who is laid back, keeps to himself, quiet (most of the time), and has autism; and Daniel who is outgoing, social, independent, strong willed, and most of all, persistent. For a long time I didn’t know if my boys would have a good relationship with each other. I…

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The Invaluable Things He’ll Teach Him

I have three boys. They are 9, 6 and 1. The older one giggles a lot. He loves the Price is Right and Steve Harvey from Family Feud. Especially Plinko and when the answer is any price in the thirties. He doesn’t say much but he sure can get his point across. So, if you have a question for him, don’t be afraid to ask. Give him a minute to respond though. I promise you he’s listening. He just needs to process. The middle one is the one with the…

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What is a Brother?

What is a brother? Funny question right? Do brothers have to play together? Or talk? Or spend time together? Do they have to do those things? For the first three years of Sawyer’s life, he followed his older brother around. First by crawling. Then walking. Finally running. See, Cooper never stopped moving. Not ever. Sawyer thought it was a game. Cooper would run from room to room, tearing apart beds, putting garbage cans and shampoo bottles in the bathtub, emptying bookshelves and so on. From room to room he’d go.…

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I’m Thankful for the Talking back

Last Saturday, a friend of mine came over. As we were sitting on the stairs chatting, the boys were upstairs with my parents.  I heard them jumping up and down on the guest bed. I immediately called upstairs, saying, “BOYS! Come down here, now please!”  Immediately, I heard my son Yuri say, indignantly, “NO!” And then, I heard, his brother Aki say, “NO!” Although I immediately said, “excuse me!?” There was still a big part of me that chuckled as my parents said, “they’re pretending to sleep now!” and I…

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