The Beauty of Unexpected Connections Autism Brings

I was in a waiting room with my son, Zachary, completely unaware of my surroundings. Some days are easier than others, but on this particular day, he was smiling while playfully tugging at my hair, and I couldn’t help but smile back, my attention entirely on him.We had the appointment, and I had just gotten him in the car when I turned around to see a woman standing in front of me.She had a kind look on her face and asked me if Zachary was my son and if he…

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I’ve Been Told To Not Compare

I’ve been told countless times not to compare when it comes to my two oldest boys. Two years apart. Now 14 and 12. When the older one was born, I knew. I knew in my heart something was different. I could feel it. He never slept. His words didn’t come. The world seemed to terrify him. He never learned to play. Other kids didn’t interest him. The younger one…the opposite. He slept. He cooed and smiled. He learned to talk and play and make friends effortlessly. Don’t compare, the world…

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Autism At 15: Every Little Thing Is Everything

Lately, my autistic daughter, Kya, has had a growth of independence, and if I’m being honest, I wasn’t ready for it. Not even close. But it’s something remarkable to witness. It catches me off guard in the most ordinary moments, the ones that don’t seem like much to anyone else, but to me, they’re everything. She closes the bathroom door now. It doesn’t seem like a big deal, almost forgettable, but it’s not. It’s huge. It’s privacy. It’s autonomy. She closes her bedroom door and puts herself to bed. At…

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In My Hardest Days Parenting a Child With Autism

I was a very outwardly happy person. I had many friends and family members in my life. I was a homeowner, successful in my job, etc. I told everyone I was fine. I stopped sharing and talking about my life because I didn’t want anyone to know how hard it had become. I refused to ask for help. I pushed everyone away. I was a martyr. I started to believe that I didn’t deserve to be happy. I was told ‘you are so strong’. I completely lost myself. I was…

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I Am My Autistic Son’s Whole World

My son is autistic. On paper it’s level three severe nonverbal autism. To us he’s just Cooper. He’s 14 years old and while he doesn’t verbally say much…he has more to tell me than anyone I know. He’s always making plans. A trip to Michigan City, Indiana. A ride on the Amtrak. A visit to a train depot in Duluth, Minnesota. A waterpark for his birthday. Today he got my attention and with the push of a button his AAC speech device said… Mom Cooper Trip my best friend. I…

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The Words I Still Wait For

I used to spend a lot of time thinking about words. His words. I wondered if they would ever come. I wondered what his voice would sound like. I wondered what he’d say. As the years went by, the possibility seemed to slip away. At first just out of reach. But as time went on, the wish for words seemed almost silly. I told myself we didn’t really need them anyways. I convinced myself, throwing myself into other forms of communication. But late at night, or at a park or…

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Autism: When Showing Up Just Isn’t Possible

Have you ever been treated unfairly or judged because you or your family can’t attend an event because of your child’s special needs? I recently found out that someone in our life is frustrated with us because we can’t attend certain events. Not hugely important events. Nothing major. Just get togethers. I sorta laughed when I first heard the so called gossip about us. That so-in-so was mad at us because we couldn’t attend something they hosted. I almost didn’t believe it. I figured everyone in our life just knew…

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If He’s Happy… Then I’m Happy

If you’re happy…then I’m happy. I read that quote today. I saw it on Kate Hudson’s Instagram. When I read it I was actually hiding in the bathroom. It’s been a long couple of days and an even longer couple of months. A new book. Travel. A retreat for 260 amazing mamas. So, I was taking five minutes to myself while my daughter blew into a makeshift horn outside of the door and my son’s iPad blared some PSA about internet safety for kids. He’s been watching it for 10…

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Autism Was the Word—Love Was the Answer

Autism Awareness Month has come to an end. I, however, am aware of autism every day, every week, every month of the year. It rustles up a lot of opinions, especially this year. Everyone who has autism in their life, and especially those who have a child diagnosed, has the right to their own thoughts, feelings, and beliefs. These thoughts will change over time and certainly change with your child. For some of us, the prognosis is dire. It’s not your child may be a little quirky, or have some…

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Everyone’s Accepting of Autism—Until They’re Not

Everyone’s accepting of autism until you see my boy on the floor, mid-meltdown, and blame my parenting. The whispers and the stares as you walked past were not unnoticed, but my child needed me more than you needed my reaction. Everyone’s accepting of autism until his stimming doesn’t quite fit in your little box and you feel like he’s too old to behave that way. Everyone’s accepting of autism until you get annoyed that we cannot attend an event because it is not suited for our special needs child. Everyone’s…

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