When Christmas Isn’t Magical Yet: Hope for Parents Raising Disabled Children

To the parents raising disabled children who feel the weight of the holidays creeping in because Christmas isn’t magical yet… hold on. The holidays bring big feelings when your disabled child isn’t ready for the wonder. Some children find the magic late, but it’s no less perfect when it comes. Sometimes, it’s even more.  There was a time when Christmas passed us by almost unnoticed. She didn’t care for the tree or the music, didn’t light up at the sight of wrapping paper or twinkling lights. And that silence… it…

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Inclusion Matters: Addressing the Silence Around Medically Complex Disability Care

This year, I set a personal goal to be bolder and braver. I want to have the courage to speak the hard truths, share what weighs on my heart, and face the reality that often goes unspoken. So, here we are, ready to dive into a difficult topic that many shy away from. This world wasn’t designed for children like mine. While there has been significant progress for those with “higher functioning” needs, children like mine frequently remain silenced and excluded from important discussions. Even in environments and programs that…

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