Diagnosing Autism in Girls…Not So Easy

I’ve learned that girls with autism are better at masking their symptoms than boys. They are able to watch social situations between people, and then copy what is being done. So, when they have their own situation arise, they are often just using what they have learned from seeing other people interact. Also, girls with autism usually have special interests but they are more in line with typical girls their age. But when you look closely, they are much more intense about them than typical girls. Before my daughter Lillian…

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February Writing Challenge: My Ah-Ha Moment

Thank you to everyone that submitted a post in December and January. If you sent me one and I haven’t published it yet don’t be concerned. I received so many and it takes me time go through them all! Which is an excellent problem to have. This February I would like you to write about your autism ‘ah-ha’ moment. This might not necessarily be the moment your child was diagnosed. This is the moment when you realize that your child REALLY is autistic. And it’s not going away. I’ve had…

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Questions About My Autistic Son’s Future

I’ve been on this thinking, planning and talking about the future kick. I get like this every so often. I have periods where I think about the future and prepare with energy and urgency. And then I’ll have periods where I refuse to even think about Cooper growing up. I have to block it out. It’s simply too much. Lately though, I’ve been really curious about the future. The sadness and fear have taken a back seat to my general curiosity about severe autism in adults. What does it look…

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Sometimes, Numbers Do Lie

Dear Holden, Your mama is a numbers person. As are you! I have “data” in my work title and I thrive on knowing things through their relationship to others. So when I heard that you were “on the spectrum” I did not find that explanation to be terribly satisfactory. Where, exactly, on the spectrum were you? I had this new information about you and yet it seemed to tell me absolutely nothing. So, I went looking for numbers and, honey, what I found was not good. An estimated 75-85 percent…

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Adopting Autism: The Ups and Downs

I have two kids; a two-year-old little girl and a 14-year-old stepson. My Stepson has autism. His name is Corey. Corey is on the moderate side of the spectrum. Corey’s mother passed away two years ago; I’m the closest thing to a mother he’ll ever have. Adopting Autism I guess I’m kind of jealous of his mom. From everything I know, she was an amazing, one-of-a-kind woman. I could never fill her size-11 shoes. But I try every day. I try to memorize the acronyms for all his different doctors…

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A Letter to my Three Year Old Son

Dear Charlie, My son. What I would give to hear you call me Mum, but something stops you. There is a disconnect and those invisible walls go up around you. And just like that you are lost in your own world again and my heart breaks. Charlie you are such a happy kid, your giggle is infectious and you make everyone you meet smile. You would spend hours jumping on your bed if you could, you energy seems at times endless. I have never had a conversation with you but…

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Finding Comfort with Two on the Spectrum

To my amazing little boys, Oh my beautiful boys. Where do I even begin? You both are loving, sweet, crazy, energetic, sensitive, hardworking, and special. I know you live a life that is harder than it should be. Every day when you wake up, you face challenges that I can’t even begin to understand. I’m sure if I understood everything you face between your sensory issues, lack of communication options, and constant need for routine, I would be impressed that you even make it out of bed some days to…

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The Diagnosis: My Daughter has Autism

Sadie has autism. She doesn’t make eye contact. She is in her own world and doesn’t notice anyone around her. She doesn’t speak. She’s not potty trained. She doesn’t know how to play “appropriately” with toys. She’s regressed. She may never be independent. She can’t sit still. She has sensory issues. Sadie has autism. The words coming from Sadie’s pediatric specialist that day made my stomach turn. She diagnosed her within minutes of meeting her. It was so obvious to her that Sadie has autism and it was something I…

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When your Search for Answers Brings Sadness

Hey friends. First, a huge thank you to everyone that emailed, commented and messaged me after my sad post a few nights ago. I read every word. Second, here is the video I know many of you have been waiting for. A few days ago we took our son Cooper for an appointment at the Mayo Clinic. This was the first of eight appointments over the next couple of months. It’s a big deal in our world. I finally found a doctor that will look at Cooper’s whole case….not just…

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A Mother’s Letter to Santa

Dear Santa, What I want, can’t be bought in a store. No, what I want, means so much more. It’s something I have waited so long to hear. I really hope my wish is granted, this year. It seems to come so easily for most kids. I hope this wasn’t caused, by something I did. I have cried, and whispered many prayers. Sometimes, I feel like no one is there. The pain is real, and hard to bear. Please, Santa, show me that you care. I’m trying really hard to…

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