Posts by Kate Swenson
Finding My Independence
We lasted 15 minutes at our neighborhood 4th of July celebration tonight. He didn’t even see a firework. His anxiety has been high all week, I knew better. I feel guilty for taking him but know I would have felt guilty if we didn’t attempt to go. I hugged my dude and put him to bed. He loves bedtime flashlight story time. He doesn’t even care he missed the fireworks. Yet I’m back in the sorrows tonight. It’s so crazy how up and down it all is. There are no…
Read MoreAge is Just a Number in Our World
You were sitting on the floor. Near me. You like to be close. But not too close. Just close enough to see me. And know I’m near. I thought before the baby was born that you might struggle with sharing me. I was wrong thankfully. You seem to have no problem with me caring for the baby. As long as I’m close. As long as I’m home. On this beautiful, lazy evening, while you sat sprawled out next to me watching Daniel Tiger, I was playing with your baby brother.…
Read MoreWe Want You Here
We. Want. You. Here. Four words, 13 letters. Those four words are words that I just recently realized have a huge impact, not just on the recipient, but on the person saying them. As a family, we spent years adapting to autism. We started with Early Intervention when he was 18 months, moved into a public pre-school program when my tiny nonverbal child was just three and could barely walk up and down stairs. We walked circles with his baby brother around Children’s Hospital three days a week for two…
Read MorePeople with Disabilities can be Paid as Little as $1 an Hour; And it’s Legal
When I think about my son’s future, it’s pretty unknown at this point. As of right now, he doesn’t attend public education. Instead he receives full-time therapy that teaches him skills like sitting, stopping, listening, and playing. It’s the best place for him. And he is thriving. But, when we said goodbye to public education, we also said goodbye to the typical path. If he stays where he is…he won’t graduate from high school. I’ve accepted it’s a possibility. But that doesn’t make it any easier on this mama’s heart.…
Read MoreWe Aren’t Excluded but we Aren’t Exactly Included Either
I was talking with a friend the other day. I was telling her how summers can be so hard on our family. In a way, part of me actually dreads them. Our friends, family and neighbors are so busy. We hear about it. We see it on Facebook. Pictures. Stories. They are traveling to Disney. Going to summer festivals. Grabbing candy at parades. Attending baseball games. Going for bike rides. Visiting the latest waterpark. On Facebook it seems so effortless. And while I know that everyone has struggles, I’m not…
Read MoreUnexpected Spectrum
When my wife Tammy and I met, we had four children between us; two from her first marriage, and two from mine. After a few years of being married we became like any other couple. We talked about having a child. We had yours and mine, and now we wanted the ours. Tammy, having her tubes tied after her second child, made it a little more difficult to get what we wanted. We could choose the surgery route to reverse her previous procedure, which costs a lot of money with…
Read MoreMom sends Son with Autism on a Plane with $10 Note
As a parent to a child on the spectrum, I worry constantly about how people will treat my son. All parents do. When the child has special needs, it’s time a hundred. I worry when I’m there. I worry when I’m not there. He can be loud. He can be challenging. He’s a big kid. And yes, he can be funny and adorable too. There is no doubt about that. But he is spirited. And like every other parent, I worry. I’ve said numerous times, the problem is in no…
Read MoreWhat I Want for my Child
It is easy to get caught up in the monotony of the everyday struggles. The therapies, the meltdowns, sensory issues, working on simple tasks like dressing and potty training while other kids my daughter’s age are going to dance class and mastering writing. It may seem that my daughter is missing out, that our family is missing out on so many things life has to offer, and sometimes that is true. When I start to feel overwhelmed or a little sad about what I’m not able to do I stop…
Read MoreI Love Holding Your Hand Mama
‘Sawyer, hold onto your brother on the dock.’ I was climbing out of the boat, holding a baby, a pop and two bags. Sawyer and Cooper were out long before me and were headed towards our truck. Which, in most cases wouldn’t be a big deal. But in our world, it is. We have to be very, very careful. Cooper, our son with autism, is a runner. He bolts, he drops, he flops, he runs, and he sits. And rarely does he walk in a straight line. He also typically…
Read MoreDear Family, Friends, and Even Strangers
Thank you. Thank you for pouring positivity into my life. Thank you for the kind words. Thank you for trying to supply me with hope. On my days when I post, comment, or even mention in conversation how I long for normalcy and desire making memories often associated with raising children, I know you mean well when you reply stating how happy my son is and offer the encouraging words of “Don’t worry about what others do! Just enjoy making memories and special moments with your little family!” I know…
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