He Isn’t a Sad Story…

“… he isn’t a sad story.” Those are the words that changed my world. I always dreamed of becoming a mother. There was nothing I wanted more in life. Boy or girl I didn’t care, I just wanted a healthy little baby to love. I remember the day we found out we were having a little boy. My husband Josh was over the moon happy, talking about all the things they would do together. I think a part of the excitement came from him not growing up with his father…

Read More

Our Daughter was Nonverbal

Our daughter was nonverbal. She did not sing. She did not make noises. She did not imitate. She did not point. We were repeatedly told she might not ever talk. Every time I heard this sentence it was overwhelming. Then we got the call from aeiou – an early intervention centre in Brisbane Australia. A place was available. A full time placement. My anxiety peaked. A full time placement for my nonverbal toddler. Do they REALLY understand what nonverbal is? How serious this is? Do they really know what they…

Read More

If You Are Struggling, Find Your Person

I am a wallflower. An introvert. Painfully shy. Making new friends in your thirties is hard. For many reasons, it seems even harder when you are Mom to a child with disabilities. Cloaked in a facade of smiles and ‘He’s coming alongs’, it can be mentally exhausting to keep cheerful and happy and all the things that make someone want to be friends with you. My dear friend Kristin calls this her mask and I think it is the best way to describe how many Moms feel on this journey.…

Read More

To the Friend Who Persisted Through my Son’s Autism Diagnosis

“Let me know if you need anything. I know what it’s like. When my son was two years old, he also had to have surgery.” Those are words very few people can say to someone whose baby is recovering from a major surgery and their entire world has just been flipped upside down. My friend spoke those words to me when my son had brain surgery. Brain surgery. Words I cannot even believe I can type so nonchalantly, because in retrospect, that wasn’t even the hardest part of our journey. The hardest…

Read More

I’m Thankful for My Niece

My husband and I are parents to an amazing, energetic, mischievous, almost three year old boy, Logan. We started to notice speech regression around 20 months, and I brought it up to his pediatrician at our next routine visit. I remember her saying that speech regression is related to autism, but she didn’t really see any other “red flags” that alarmed her. She referred us to Early Steps to see if he would qualify for speech therapy, and then we would see if he started to make any progress and…

Read More

My Husband, Thank You for your Sacrifice

I am thankful for my husband Steve. We’ve had an amazing journey thus far. November 27th will be our families Autism anniversary. The day one of our twin boys, Maverick, was diagnosed. At the time of Maverick’s diagnosis, we were living in central Washington. A peaceful, rural area, filled with apple orchards and wineries. A beautiful place to raise a family, just maybe not our family. Acquiring services in an underserved area is difficult. Maverick was receiving early intervention services through a local organization. It consisted of two speech therapy…

Read More

I’m Thankful for the Ultimate Grammie

I am honoring my mother, the ultimate autism Grammie, Hughena Gear. I am thankful for her for so many reasons. If you look at the definition of thinking outside the box, she defines it. There is not one thing she will not do for her grandchildren. Our eldest son Emmett was diagnosed with autism almost three years ago, he is now six. Mum has been there every step of the way. They relate, she sees things how he does sometimes, stuff that we may not able to see right away.…

Read More

I’m Thankful for our Local Fire Departments

I am so very thankful for the Mentor Ohio Fire Department, especially firefighter Jerry Craddock, and the Willoughby Ohio Fire Department, especially firefighters Ricky Stuart and Mark Leisure. We are so thankful for them because with their help we have started a special needs safety program that meets one time per month at both the Mentor and Willoughby locations to help teach kids of all ages with special needs about fire and other safety issues! We started with firefighter Jerry at the Mentor location. He has been so great with…

Read More

Thank You to the Teacher who Loves My Son

Any parent who has sent their child off to school knows how emotional that first day can be. So many thoughts run through your head leading up to that big day. Will they find their way to their classroom okay? Will they know where to go to the bathroom? Will they make friends to play with at recess? What if they miss the bus to come home? When you have a child with autism, those thought turns in to fears, and they seem to quadruple in quantity. You have likely…

Read More

Thank You to the Friend Who Helped

I am a 56 year old mother in Florida with twin boys – one with autism and one without.  They are now 19 years old. I knew my son had autism before he turned 2 – when I look back on it – I think he had it from birth.  They were born at 28 weeks and had to spend 2 months in NICU.  He always hated the bright lights and noise in there – would try to pull out his IV’s – had to have music to calm him…

Read More