Posts Tagged ‘severe autism’
A Visit to the Dentist
If you would have told me a year ago that my son and I would walk calmly into a dentist’s office, check in, wait patiently in the waiting room watching Moana, walk calmly to the room, and lie in the chair I would have thought you were crazy. And if you would have went onto to tell me that my son would have his teeth flossed and brushed with no problems, and after allow the dentist to do his exam, I would have probably thought you were really crazy. Parents…
Read MoreThings I Wish I Had Known When My Son Was Diagnosed With Autism
THINGS I WISH I HAD KNOWN WHEN MY SON WAS FIRST DIAGNOSED WITH AUTISM: To tackle guilt from the very beginning. To focus on self-care earlier on. To make finding peace a priority. To not judge my beginnings so harshly. To focus on the good more, even when it was hardest to find. To stand up for myself sooner. To realize that the child I have right now is not the child I will have a year from now. To stop worrying so much about my child. He will be…
Read MoreDo You Stay?
Picture this. You are in a relationship. It’s new and exciting. There’s so much potential! Oh, all the things that you will do together. You will grow together, learn from each other and your love will grow. They love you so much. You can tell. They get comfort from your hugs and you love doing things for them. They light up when you enter the room. It’s all so lovely! Picture this. They stop talking to you. Car rides are silent. It’s like a one way street. You try and…
Read MoreEvery Single Day I Choose Joy
I read a comment today from a follower who said I was glossing over the hard parts. I’ve been thinking about it all day. It’s a funny comment from where I’m sitting actually. Most people tell me I’m too negative. They find the realities of my world to be depressing. Even though they are indeed, the realities of so many. Here is what I will tell you. I’m not glossing over the hard. It’s here, right under the surface. Always ready to creep in. And at any moment, if I…
Read MoreMy Plea, Please Don’t Criticize a Child in a Stroller
Here is my plea, from a mom. Please, pretty, please, don’t criticize a child, a teen, or an adult who is riding in a stroller. Even if they appear ‘normal. A few weeks ago, our family was out for a walk. I was carrying the baby on my chest in a carrier, Sawyer was riding his bike, and Jamie was pushing Cooper in the stroller. This was a pretty big deal for us. Just a short time ago we were unable to go for walks. But we practiced. We made…
Read MoreRemoving the Pressure of Halloween
As special needs parents, certain things matter to us. Maybe it’s the perfect family photo or having a birthday party or your child with needs attending church for a sibling’s baptism. I want to tell you, it’s okay to care about these things. It’s okay to want to try, and continuing to try. Because if you are like me, it’s about helping your child to be successful and ultimately your family. That’s how a holiday like Halloween is for me. It’s about so much more than the costume and the…
Read MoreI just Focused on Making Life Easier
This morning my son slept in until 7:30. That is unheard of for him. To say at age 8 we’ve had our fair share of sleep struggles is the understatement of the century. We live sleep struggles. But lately, we have some days that are better. Easier. Traditionally, he wakes up before 4 am, comes in our room, sets all of his treasures and blankets on the floor next to our bed, undresses, turns all the lights on, goes potty in our bathroom, and then stands next to my bed…
Read MoreDoes Autism Last Forever?
A few days ago, my middle son Sawyer and I took a drive to meet Grandma and Grandpa. They had the baby overnight so this mama could finally sleep through the night. It was delightful. I slept 12 hours. Anyhow, the drive was just under 45 minutes which means 45 minutes that I get to hear about Pokémon cards, hockey, school and life from a six year old. And I love every second of it. This last year has went so fast. I feel like Sawyer grew up overnight, already…
Read MoreThe Day My Son Hit Me
Autism is a spectrum. My son Jayden is on the severe end of that spectrum but what I always have held on to is the fact that he has never been violent, and he still has not intentionally ever hit me in a violent manner. He has swatted at me when making him push through school lessons. He has pushed me away when he did not want to do something. But he never hurt me, until today. Today, he kicked me unintentionally when I was changing him and I saw…
Read MoreGood People Don’t Bully Other Parents
Parenting a child with a disability is not a competition to see who has the highest functioning kid or the most severe kid. It’s not about bullying a fellow parent for admitting they are having a hard day. It’s not about alienating them because they see something different than you do. It’s not about arguing over labels or word choice. And it’s especially not about belittling a fellow parent who is newer to the journey. A parent who is asking questions. And asking for help and support. Acceptance takes time. It…
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