Posts Tagged ‘school and autism’
Every Day is a Party: Celebrating the Simple Joys with Cooper
There is a quote that says, ‘don’t ever save anything for a special occasion. Every day your alive is a special occasion.’ My son Cooper reminds me of that quote every single day. The reason I’m sharing it with you is because someone recently commented on one of my posts, pointing out that we always have balloons in our house. And it’s true, they are everywhere. They drift through the house, from room to room. Birthday balloons. Dora balloons. Square. Round. All brightly colored. Some old. Some new. Why? Because…
Read MoreMy Nonverbal Teen’s Birthday Tale
Nonverbal communication is a pretty amazing thing really. My son Cooper, the one in the middle, he communicates mostly with sounds: Think grunts and squeals and gasps. He points a lot. And brings things to us and brings us to things. He places his hands on ours and guides them in certain ways. He touches our lips and uses his hands to turn our faces to see things. He uses his iPad to show us pictures or videos of things he wants to tell us about. He does some typing.…
Read MoreA Brother. An Advocate. A Helper.
Recently we ventured to the store for a few things. Eggs. Milk. Nerf gun bullets. And 2 pieces of paper. The essentials. Obviously. Outings as a family are still relatively new for us. And while they are far from perfect, they are real. See, we have a kid who is just learning about waiting and buying and walking and all the parts of the world. While our son Cooper is making amazing progress at stores and by amazing, I mean huge leaps and bounds…so much of it is still hard…
Read MoreBirthday Countdown: Communication Without Words
My son Cooper is nonspeaking. I know that’s a confusing classification. I even sometimes struggle to explain it. See when it comes to autism, and the spectrum you hear about, the waters are often muddy. He said his first word at age 8. It was mom. Now he says it no less than 50 times a day. But he couldn’t tell you his name under pressure or if he is in pain. He can’t use the phone but he can type the name of his favorite movie into YouTube. He…
Read MoreNonspeaking Son Says ‘Balloon’ for the First Time
My son said the word balloon this morning. I didn’t catch it right away. I was packing his lunch and putting toothpaste on a toothbrush while simultaneously signing a form for his school. It was a chaotic morning to say the least. That’s when he said it the second time. BA – LL – OOOOO – N Now a 12 year old boy saying the word balloon probably doesn’t seem like that big of a deal. But it is. It’s huge. My son was diagnosed with nonspeaking autism at age…
Read MoreAutism Beyond Standardized Measures
Dear Standardized School Questionnaires, I could go on and on about how frustrated and sad I feel when I have to fit my child into all these boxes that he does not fit into. I could elaborate on how this questionnaire is unproductive in describing my son. Instead, I’ll tell you what you’re missing when we check “never” on many of the countless boxes. He may not be able to write the alphabet, but he knows and recognizes all of his letters. He even recognizes sight words—perhaps more than that.…
Read MoreAn Unexpected Reminder That’s It’s Going to Be Okay
I think sometimes we end up exactly where we are supposed to be. Maybe even just for a moment. Today, as Cooper’s mom, the world had something to show me. This morning we brought our younger son to see Beauty and the Beast. And I’ll tell you, when you have four kids, it can be a bit tricky to make one on one time work. Like moving mountains honestly. But we made it happen. As we sat waiting for the show to start, I noticed the group sitting down behind…
Read MoreNurturing the Heart of my Middle Child
My second son has been having some big feelings lately. He is 10 years old and sandwiched in between three very big personalities. I think sometimes it can be lonely to be the one in the middle. His dad and I are working very hard to make sure he knows how magnificent and treasured he is. Last night a movie on the couch with popcorn and snuggles. This morning a doughnut date, just the two of us. And lots of conversation. Which is the best part in my opinion. I…
Read MoreA Little Boy Who Waits for Me
I have four kids. They range from 2 to 12 years old. You can say I am covering a few phases of motherhood all at once. Diapers and cribs to ‘I do it myself, mama’, to I can’t take my eyes off him for a second, to spelling and math tests, to the smell of a hockey player, to a tween. There is never a dull moment over here. Or a quiet one either. Three of my kids love to call me on the phone when I leave the house.…
Read MoreSanta in Leather: A Heartwarming Elevator Encounter
Let me set the scene for you… My husband and I and two of our boys plus baby get on the elevator. We are loud and busy. Our youngest is trying to push all the buttons. I am using my hip to block him. Cooper, our 12-year-old is autistic and adores elevators. So he is happy flapping and dancing and making lots of noises. Just as the door is about to close to bring us to the second floor of the hotel my husband yells out…‘I’ll hold the door for…
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