Posts Tagged ‘Nonverbal’
I’m Thankful For You: Our Son’s Teacher
(Editor’s Note: This article was provided by Cindy Heitman and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This December I want to honor and thank our son’s teacher, Shannon Tackes. I am so very grateful for Shannon! My son, Erik, has non-verbal autism. Although he can’t speak, he doesn’t have any trouble letting you know what he wants. Erik is so sweet and his giggle will make you giggle too. Erik is 6, however, he wasn’t diagnosed until he was 4 1/2 years old. Because Erik had great eye contact, was…
Read MoreFour Pieces of Advice from the Mother of an Autistic Child
I’m often asked what bits of advice would I give to parents of newly diagnosed children. Or, what would I say to my younger self to make the autism journey easier. That question always makes me think. What would I say? It’s hard because I feel that so much of it we just have to go through. It’s almost a right of passage and a journey of self discovery. These are the four things I wish I could’ve told my younger self about relationships, behaviors, hope and challenging my child.…
Read MoreYou Are Describing Two Different Children
A few weeks ago I received a comment on one of my videos that said, ‘When you talk about your son it seems like you are describing two different children. Is he high functioning or severe? Which one is it? Is he loving and sweet or exhausting and violent? Your videos are hard to watch because you are always jumping back and forth.’ I had to laugh. This woman had perfectly described the emotional roller coaster that is autism. Not only do I feel like I am describing different children…
Read MoreI Thought You’d Be Over The Grief By Now
I had dinner with an old friend a few weeks ago and inevitably the conversation turned to autism and grief. It always does. My world is autism. The crazy roller coaster that it is. Over a much needed glass of wine I told her about the roller coaster of my life. I always preface by saying, it’s a lot. I swear I’m not exaggerating. I told her all about Cooper’s wins lately. I told her about his new autism center and how we are done with public education and emphasized…
Read MoreHelping Nonverbal Kids to Communicate
My son is almost seven years old. He has autism. He was and is nonverbal. I like to mention that because some kiddos with autism speak at some point and lose their speech. I can’t imagine how hard that must be for parents. To hear their child speak one day and not the next must be gut wrenching. Our story is a bit different. My son has never spoke. He has never babbled. He has no approximations. He mostly screeches, screams and hums. I’ve never heard a word like sound…
Read MoreA Message to the Parent of a Newly Diagnosed Child
Your child has just been diagnosed with Autism. You heard about me from a friend of a friend. Or maybe you found me on Facebook. Or you emailed me at 1 AM as you were frantically googling autism in the middle of the night. You are so confused and scared. You feel like you’ve lost control of your life. I see you. I understand what you are feeling. I was you. I am you. You are going to look to me for hope. You are going to search through hundreds…
Read MoreI’m Thankful For You: My Best Friend
(Editor’s Note: This article was provided by Gina Schaal and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This November I would like to recognize and give a huge thank you to my best friend, Sanna Jensen. She is not only my friend but my son’s Personal Care Attendant (PCA) and lifesaver for our family! First, some background about my family. I live in Minnesota with my husband, Dan, my two sons, a cat and a dog! My oldest son, Carter is currently 13 and is nonverbal. As an…
Read MoreI Will Sit With You In The Dark
“When you can’t look on the bright side, I will sit with you in the dark.” Alice in Wonderland Hearing that your child has autism, or any neurological disorder, is so unbelievably scary. Maybe you knew deep down. Or maybe you were oblivious. It honestly doesn’t matter because in an instant everything is different. Same kid…different future. Different path. And not just for your kiddo. But for your whole family. For me I felt like a label was tattooed on my son’s forehead. And ultimately mine. I thought the label…
Read MoreI’m Thankful For You: My Husband
(Editor’s Note: This article was provided by Penny Mack and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) The November I want to thank my husband Joe, my village in the isolating world of autism. This spring we found out our son Henry has severe nonverbal autism. Before the diagnosis we had signs of autism. For one we could not go anywhere without a severe meltdown. Our son loves trains and we learned the hard way that he does not like train rides. We sat on the Christmas train…
Read MoreI’m Thankful For You: My Mom, My Son’s Best Friend
(Editor’s Note: This article was provided by Amanda Lo Re and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This November I want to thank and honor my mom. There are some people who are truly angels on earth and my mom, Cindy is one of them. She is one of the most giving and selfless individuals I have ever met. She is our constant. Our rock. My sanity. And my son’s best friend. I guess our journey really began eight years ago. My mom became a caregiver to my…
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