Posts Tagged ‘disability’
Boy Forced to Wear Fluorescent Bib so Teachers Know he’s Autistic
A London woman has sued her son’s school after claiming it made her autistic 7-year-old son wear a fluorescent safety vest on the playground. Why wear a vest you ask? So the students and teachers would know that he was autistic of course. The mom of a seven-year-old boy has launched legal action against his school after she says he was forced to wear a fluorescent bib so teachers would know he was autistic. Joanne Logan, said she had launched the case so that other kids like her son Charlie…
Read More11 Things I Learned about Autism at Target
My son has been having some pretty big breakthroughs lately. He’s been trying new foods. An apple, a grilled cheese, a hamburger and even his first French fry. He’s been more vocal. Calmer. Happier. His anxiety seems to be going down. All huge wins in our autism world. So, yesterday I asked him if he wanted to go to Target, like I have before. For the last 6 or so years when I ask him if he wants to leave the house the answer is always no. Well, he immediately…
Read MoreWhen Jealousy Surprises You
There are many topics in the world of special needs parenting that are taboo to talk about. Self Injurious Behaviors. Aggression. Puberty. Depression. Jealousy. As parents we don’t talk about them out of fear. Fear of being judged by people outside of our world. People that don’t understand. Or we worry that people will think badly of our children. Or our parenting skills. So, we stay quiet. I know this unique isolation all too well. Well, lately I’ve been feeling an emotion that I don’t feel very often. It’s even…
Read MoreBut I Want for Something
Jamie and I had one of those weekends as parents. You know, one that just depletes you. Where you wave the white flag, but quickly realize no one seems to care and that you are the adults and you just need to survive. We have a sick baby. A really, really sick baby who isn’t sleeping. Sawyer had three hockey games. That I had to miss. Which made me feel terrible. Cooper’s anti-anxiety medication seems to be leveling out again. Just like everything else we have tried over the years,…
Read MoreOur Children Deserve Better
I write this soaked in tears. Another story of a teacher abusing an innocent child. I’m so incredibly sick about the stories that are coming out almost everyday now. Those are just the ones we know of. Some of our kiddos can’t communicate. They can’t tell us how their days are. We basically have to be mind readers and go off their body language. This last story I just read was that special needs teachers locked kids in a dark bathroom and blew whistles in their face all while holding…
Read MoreWho will Care for my Son after I’m Gone?
If you ask any special needs parent, they will tell you that their number one fear is worrying about who will care for their child after they are too old or die. It’s mine for sure. I have spent countless hours staring at my beautiful, innocent son and worrying. When I wipe his face. Or his bottom. When I wash his hair in the bathtub. When I walk him across the street or through a parking lot. I worry. He is 8. He needs constant supervision. He will most likely…
Read MoreChristmas Cards with a Side of Faith
I am so excited to share our 2018 Christmas card with you. Christmas cards are one of my favorite holiday traditions, and I love documenting the end of our year with a new card. Every year I include a quote about autism and hope on our card. I think people get the subtle reference and hopefully smile. My favorite: ‘Anything can happen child. Anything can be. Never stop believing.’ I also love receiving cards from our friends and family. I typically hang them all over my kitchen and leave them…
Read MoreMy Son is Not Less
The hardest parts of autism, of special needs, of disability, of parenting a child with significant and complex needs…Well, they aren’t the parts you would think. The practical parts of parenting a child like ours, the trials and tribulations, well, you could write a book. He’s a wheelchair user. He requires all of his cares to be done by an adult, and when we go for dinner you best be sure to move all of the crockery out of arms reach, unless you fancy being speared by a fork or…
Read MoreDemanding a Seat at the Table
When my son was diagnosed with autism, I remember this almost immediate pressure to become part of the club. To advocate. To take a stance for or against something. And this mama wanted nothing to do with any of it. My son was three years old. We were still trying to wrap our heads around autism and figure out what worked for him. We didn’t know what was wrong with the system. We were just surviving. Our lives were hard. Our days were long followed by even longer nights. And…
Read MoreInclusion at Church
This morning we are becoming members of a new church. This is our place. We love it there. Of course we had to find someone to watch Cooper. He can’t go. He can’t sit or be calm. This would be setting him and our family up for failure. I like to be honest with you. I’m sad and a little bit angry. But not at anyone or anything. Just the situation. It plain old sucks. I hate that we can’t all go. I hate that everything is such a big…
Read More