Posts Tagged ‘Childhood Apraxia of Speech’
The Right Side of Age 4
Lately, I have been getting involved with a lot with other Apraxia moms both through Facebook and blogs. I have seen an increase in questions having to do with kids being nonverbal for their whole lives. I know I’ve mentioned on here before that one of the hardest moments of my life was when I realized that some kids don’t talk. Click HERE to read that post. Cooper has always been so vocal and so loud it never crossed my mind that he wouldn’t talk. When I learned that nonverbal was a…
Read MoreI Can Bargain With The Best Of Them
I do a lot of bargaining. More than I probably should at this stage in the game. I mean, honestly, Cooper is 3.4. I’ve been doing this for a long time. I’ve been waiting almost 2 1/2 years for a first word. Isn’t that crazy? Every month that goes by I silently add up the months in my head. 1.4 years of speech. 1 year of occupational therapy. What else? 2 years until kindergarten. I’m almost OCD about it. And then I bargain. I probably should be a lot farther…
Read MoreLet's just get through this 4 weeks of disappointment and move on with our lives.
How did it come to this? Coordinating calendars and therapy appointments. Managing meltdowns and lack of understanding. Hating myself. And my life. I guess I just don’t understand when it happened. I am sitting here trying to remember when it got hard. Cooper was a difficult sleeper from birth but besides that he was a great baby. Loved to eat. Loved to snuggle. Loved to be moving. Then we had the pooping issues. Then the hearing aid debacle. And I will say that whole shit show toughened me up. I learned how…
Read MoreJust A Little Ole Choo-Choo Sound
The good days are continuing. I could sure get used to this! Last night I had amazingly special moments with each of my boys. I was sitting on the floor playing with Sawyer and we were feeding his baby from toy bottle. He was hugging and kissing the baby and laughing. I saw love and a HUGE imagination. I wrapped the baby up and sang a lullaby and Sawyer thought that was the most amazing thing ever. I didn’t get these moments with Cooper and I may never get them. Pure…
Read MorePostive Updates
I just posted about changes in Cooper. I wanted to go into a little more detail because I am such a proud mama. I have blogged before about how picking up the boys from daycare can be a sad point in my day. It’s hard to see other kiddos the same age as cooper talking. It crushes me actually. So much, that there are times where I dread going. Sad, right? On Thursday, as I walked up to the house I saw that another mom was holding Cooper. He was hugging her and…
Read MoreGet Through Today. Better Days Are Coming.
Cooper is back. My sweet, smart boy is back. I know that sounds crazy right? Cooper has been a little monster for the last month or so. You can even tell by the theme of my blogs. A little over a month ago my posts were hopeful. Then, they changed. More fear, desperation. More anger. Things changed last week. I am so excited I have a smile on my face as I type it. Thank you God. He’s playing again. Laughing, ‘chatting’ non-stop. So much that he woke us up…
Read MoreFish Oil and Apraxia. Does it Work?
Morning all, I wanted to do a quick post on Fish Oil and Apraxia. I get quite a few emails about the brand and dosage that I give Cooper. Cooper hasn’t been diagnosed with Apraxia as of March 2014 but he does have ‘some’ of the symptoms and I feel that giving him Fish Oil can only help his overall well being. Apraxia, or Childhood Apraxia of Speech (CAS)is a developmental disorder that affects the ability to say sounds, syllables and words. Children with Apraxia often display problems with coordination,…
Read MoreThis Isn't The Life I Pictured
I called my mom and cried today. I haven’t cried in quite some time over all of this. I was able to get out of the house alone and run some errands and as I was driving I finally broke down crying. I have been holding it in for a few days and it just got to be too much. The day-to-day with Cooper is so hard. Let me rephrase that. If we let Cooper do whatever he wants life is easy. If we challenge him all hell ‘can’ break loose.…
Read MoreLowering my Expectations
I am sitting here trying to decide what to write about. I could write about the event I went to this weekend and how seeing hundreds of ‘normal’ happy children takes a lot out of me. How I had to text Jamie a few times for support and yet again realized how alone I am in my feelings about Cooper’s future. He will never feel how I feel about our situation. And I will never feel how he feels. Maybe its a man/woman thing. Or an outlook on life thing. I guess…
Read MorePlease Take the Time To Listen To My Child.
I read something on the Apraxia Facebook page that brought me to tears. I have voiced SO MANY of my worries about Cooper’s future ranging from school to bullying to interacting with others. And the worry doesn’t stop there. I want and need Cooper to be popular and loved. I want and need him to have friends and be successful in relationships. What mom wouldn’t want these things? I read a post on the Apraxia Facebook page that brought me to tears. I was just sick after reading it. It went something like…
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