When Your Child’s Disability Consumes You

A reader asked me yesterday…’My son has autism and I’m not depressed. I know that. But I feel like his disability is consuming me. Help me please. Why is this happening? I don’t even recognize myself anymore.’ I reread her message over and over again. I related to her with every fiber of my being. At 34 I have been on the Autism journey for almost five years now. I work. I have two kids. I have friends and family. I have a full, busy life as most would say.…

Read More

I Never Lost My Son…In A Way, It Felt Like I Never Had Him.

I want to talk about the first three years of Cooper’s life because they were the saddest of mine. I had dreamt of becoming a mother for years. It was the thing I wanted most in my life. And then in the blink of an eye I was a mama to a beautiful, healthy baby boy.  Except from day one something wasn’t right. Only, I couldn’t describe it and to make it worse it was like no one believed me. My son didn’t need me for anything besides a bottle…

Read More

When Does Parenting An Autistic Child Get Easier?

Have you ever wondered that? I used to all the time. I would be at a particularly low point in our Autism journey and I would ask that question to my mom or a friend or a doctor. And no one would tell me the truth. I just needed to hear if it was going to get easier or get harder. I needed an honest answer. The problem was I was asking the wrong people. I’m not surprised I get asked this question every day by parents of newly diagnosed…

Read More

My Worry as an Autism Mom and Why It Never Rests

Parenting a child with special needs is so much more than helicopter parenting. It is never taking your shoes off, being ready to run, casing every room, knowing every exit and danger, being drenched in sweat, never sitting, searching your child’s body for marks or bruises, up all night worrying, parenting. It consumes me at times. And deep down I worry that it is destroying me. It’s not like it happened overnight. It was an evolution. I am a pretty chill person. My kids fall and I wait for the…

Read More

The Hitting Has Begun

I have been blogging about Cooper for a few years now. Since the beginning I’ve received more emails than I can count from autism parents who have teenagers. The emails always start the same way. They say they have a teenager who was just like Cooper. And they tell me about the diagnosis and the process and the where they are currently in the journey. And then they go onto tell me that their daughter or son started hitting and kicking and exhibiting really aggressive behaviors. I’ve read enough of…

Read More

Nonverbal Autism

I say the words ‘nonverbal autism’ daily. Cooper isn’t just autistic…he is nonverbal. It adds another layer. A really difficult layer. It adds severe frustration. It adds yelling and screaming and sometimes scary, loud noises. It adds a lot of head hitting. And mostly it removes a lot of layers of simple every day interactions. I will spend minutes staring at Cooper and wonder what he is thinking. Wondering if he is happy. Wondering what he would say to me if he could. Wondering if he understands me. Talking devices…

Read More

Touching Video from Upworthy

I love how he says…I never saw his autism as something that needed to be cured. And that he just wants his son to be happy and not hurt himself. So touching and made me cry in the break room like a baby. There is always hope my friends. We just have to adjust what the end result looks like.   [facebook url=”https://www.facebook.com/Upworthy/videos/1185660188141504/” /]

Read More

The Isolation

I took the boys to the beach this past weekend to soak up some of the last bits of summer. The beach is kind of our place to go. Cooper does his thing and I play with Sawyer. Cooper loves the sand and will spend hours (if I let him) throwing rocks and sand into the water. So yes, it is best if we go when no one else is there. He doesn’t notice if people are in the way. He just throws. This is the isolation I always talk…

Read More