Posts Tagged ‘Autism diagnosis’
Discovering Fragile X Syndrome
I feel like most of us could all tell similar tales of when we found out about our children’s diagnoses. Some of us were thrown for a loop, others were somewhat grateful to finally have answers, and some of us knew there was something there from day one. Maybe you were like me and were somewhere in the middle. There are some things I look back on from the day my oldest was born and remember thinking something seemed different, and then there were the thousands of times I told…
Read MoreMy Journey To Acceptance After Diagnosis
The walk to the car with my husband after Liam’s autism diagnosis was filled with words we both finally spoke. “At least now we know.” and “We will get him the best services possible”. The car ride conversation was about how the label doesn’t change him. He is still our same little boy. When we pulled in the driveway I started to feel a knot in my stomach. I opened my front door to walk into my home and I just stood in the kitchen. I turned to my husband…
Read MoreI am her Person
I still remember the day we found out we were having a girl. To say I was excited is a complete understatement. I literally burst into tears. I have always dreamed of having a little girl. It wasn’t just about the bows and the tutu it was about the mother daughter relationship. My mom is my best friend and that is what I wanted with my daughter. Sadie was born on October 9, 2014. Life was great. Well it wasn’t perfect but I had 2 amazing children and a loving…
Read More400 Days of Autism
I remember everything about that day. The strong cologne of the man in the elevator, my shaky hands as I searched for change for the parking station, the salty taste of my tears and the uncontrollable numbness and heartbreak all the way home and still to this day. I had been on a mission for almost 6 months for my son’s autism diagnosis AND even though I had 6 months to prepare it still stung like a slap to the face. It was real and true, and there was no…
Read MoreConversations that Change Us
It was a few years ago. Five years to be exact. Cooper had just been diagnosed. We now had a reason for the behaviors. A reason why he had no words. Why he couldn’t sit still. Why he screamed. Why he refused to sleep and eat. Why Jamie and I were so exhausted. And worried. And scared. We knew why. I had recently told you. Over the phone of course. It was one of our weekly conversations. We talked about the weather first. Then football. My job. And then Jamie.…
Read MoreThe Fear of the Unknown
I’ve been scouring the internet like a crazy person for the past 3 months. I’ve downloaded all of the packets from autism websites. I’ve obsessed over all of the milestones that we aren’t hitting. All of the red flags. I’ve called specialists and early intervention and therapists. I’ve read and watched and listed to articles, videos, and podcasts about research and diets and advice for parents of newly diagnosed. I’ve read all the blogs and sought out wisdom from mothers who have been on this journey for a while. All…
Read MoreThe Moment Autism Changed Me
To My Dear Husband, I vividly remember our first date. I was 16 years old and you picked me up in a parking lot across the street from my friend’s house so my parents wouldn’t know. Let’s be honest, it was a disaster. We went to the movie theater and I paid for our tickets, you awkwardly put your arm around my shoulder for 5 minutes near the end of the movie and we did not speak to each other for years. You went on to have a beautiful daughter,…
Read MoreAmy Schumer on Husband’s Autism Diagnosis
Comedy star Amy Schumer is opening up about why she revealed her husband’s autism on her new Netflix special, saying the couple hopes this encourages people concerned about stigma to seek diagnosis. She said, “There are a lot of people with autism who go undiagnosed when I think their life could be better if they got those tools.” First, I think it’s amazing when autism makes the national news. And I don’t mean just CNN. I mean mainstream media. This story is all over the news and social media. I’ve…
Read MoreI’ll Never Give Up On Him
I remember attending a speech therapy play session at the start of our autism journey. My son Freddie was 3 years old. He’d officially been diagnosed just over 6 months previous to this. I was excited and nervous. The autism world was all still fairly new. I didn’t really understand what or how severe autism was going to affect Freddie. I’d never heard of low functioning autism, and googling severe autism left me feeling hopeless. I reminded myself that Freddie was still so young. I was in denial. I thought…
Read MoreListen with your Heart
Hearts have always been my son’s favorite shape. Because of his autism and limited verbal skills, in all of his five years on earth he hasn’t told me this, I just know. He is drawn to them. He likes to build them by putting other shapes together and points them out whenever he comes across one. This makes perfect sense, with him being the sweetest little guy I know. Sweet, and a little spicy, too. He is often in his own world, one that we are constantly working to understand,…
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