Posts Tagged ‘Autism diagnosis’
My New Dreams as a Mother
I have two amazing daughters. Claudia is 15 and Keira is 13. They both are beautiful. They both have crazy curly red hair. And they both have Autism. A spectrum disorder that affects individuals differently and in varying degrees. They may share this diagnosis but in most ways couldn’t be more different. My Claudia has severe non verbal autism. She didn’t say her first real word until age 7. She still has toileting issues and needs assistance with every aspect of life. She rarely sleeps through the night and is…
Read MoreThis World Needed You
This year, we stand on the edge of the end of your 5th year, right on the precipice of you turning 6. It has been over 3 years since I last heard your voice elicit words spoken from your heart as you yelled goodbye to your beloved garbage trucks as they turned out of our neighborhood out of sight. Now, you rarely glance up to watch the garbage trucks when they come by. Most days, I really cannot believe we are here…I thought we would have heard those words again…
Read MoreFalling in Love with Reality
To the boy that grew only in my heart, I still think about you sometimes. Not as often as I did in the beginning. But sometimes when things get lonely and dark you wander into my mind. You stand there smiling at me. Sometimes you talk to me and tell me all the things you love. Sometimes you show me your favorite toys. Sometimes you teach your little brother things and I watch him look up to you in awe as you take care of him. Sometimes you play with…
Read MorePraying for Communication
Yesterday, I walked into my living room on a mission. Which isn’t a rare occurrence. My hands were full. Dirty laundry. Photos. A bag of rocks. A few dozen Pokémon cards. I was in my own world. To be honest, I believe I was muttering something about how no in my house picks anything up. And then I heard… ‘M. O. M.’ It still stops me in my tracks. Cooper saying mom. Cooper saying anything. We have one word right now. After 8 long years. And it’s absolutely beautiful. Of…
Read MoreThe Day I Found out my Child had Autism
Being a mom of three is hard work, especially when you are a mom of a very special little boy who happens to have Autism. As of now Connor is almost 3 years old. It doesn’t seem very long ago when we were at his 18 month well child. My world turned upside down as his MCHAT scored him high risk for Autism. I don’t typically cry and part of me is really embarrassed that I cried, especially since I had a feeling anyway. He showed all of the signs.…
Read MoreThe Forgotten Side of the Spectrum
Severe Autism… I did a brief radio interview recently explaining our version of autism. I discussed the isolation, the lack of help and support, and the lack of understanding and acceptance for severe autism. Tim Nicholls, who is the policy manager for the national autistic society, responded to my radio interview yesterday. I’ve listened to his response. I want to talk about this part that he said below… “It doesn’t need to be something that is always holding them back, with the right support, depending on their needs, children with…
Read MoreCousins Really do make the Best Friends
My husband and I are parents to an amazing, energetic, mischievous, almost three year old boy, Logan. We started to notice speech regression around 20 months, and I brought it up to his pediatrician at our next routine visit. I remember her saying that speech regression is related to autism, but she didn’t really see any other “red flags” that alarmed her. She referred us to Early Steps to see if he would qualify for speech therapy, and then we would see if he started to make any progress and…
Read MoreMy Son will Grow up to be….
There are moments we experience, which follow us, entering our thoughts when we least expect, and weaving together with other pieces of our journey to shape us, give us pause, make us think…evolve…and create purpose as we move forward. When I was pregnant with Leo, I went for a 3D ultrasound session at 27 weeks, hoping to get a sneak peek of the sweet baby I would soon be holding in my arms. Everything about that day remains vivid and clearly outlined in my memory. Watching my boy on the…
Read MoreIt’s Not That I’m Not Happy For You
I need to be real for a minute. It’s not that I don’t want to be around you. It’s not that I don’t like your kids. It’s not that I don’t love watching your kids grow up from afar. It’s not that I’m not happy for you. It’s just too hard. It’s too hard to see your children developing at a normal rate. There’s no speech and language delay. There is no vocal stimming. There are no show stopping meltdowns. You just have kids who have a typical path to…
Read MoreAll That’s Locked Inside
Autism comes with so many difficulties. There are serious medical issues. Constant vigilance is required to prevent wandering and accidents. Often, a Herculean effort is required to complete the most basic of tasks. And every victory, every milestone was earned with blood, sweat, and tears. But I want to write about one of the biggest difficulties that comes with autism. It weighs on me daily. I can only imagine how it affects my son, Christopher. And it might even be THE biggest issue for me – the main reason why…
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