My Bookends

My bookends. My big and my little. 10 and 3 months. I’ll tell ya this much. They don’t pay too much attention to each other. Their worlds rarely intersect. But if anything comes close to falling (or jumping) on that baby…ahem…like a toddler brother…Cooper is the first to give a holler to let me know. That’s something special if you ask me. Also, see Cooper’s treasures? The items around him? He’s loving brown and white paper right now. He has a whole stack. Those photos? They are from my trip…

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Thank You for Learning About Autism

I want to say the hugest, most heartfelt thank you to each and everyone of you who has supported me and my family on this journey. I know that so many of you have fallen in love with Cooper and our story. Sawyer, Harbor and Wynnie too. And of course Jamie. 8 years ago I sat on my couch in Duluth, MN and I created a blog. I named it Finding Cooper’s Voice. And I truly had no intention of anyone every reading it. I poured my heart out to…

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In the Hard is Where I Found Myself

Hi friends! I’m Shannon and this is how Autism help me find myself. My true self. I’m the proudest boy mom to the two most amazing boys. One of those boys was diagnosed with Autism two years ago and completely changed everything I thought I knew about myself and Autism. The day our Adventure in Autism started was the darkest day of my life. I felt like I was being forced to go on a journey I didn’t want to go on. I did everything I could to keep from…

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A Lasting Impact

I am looking at you, my son, after introducing you to the bomb squad guy at a historic bombsite. He was our supervisor during our traffic works. I see you talking with the guy, posing as a tough boy, hands in your pockets, asking things about the history and World War 2. I dwindle back to years ago, when you were three years old and my Aunt called to tell me you appeared to be deaf unless she yelled “fries”. I see you looking at fragments of bombs with not…

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You Don’t Grow Out of Autism

You don’t grow out of autism. It’s not some phase a person is going through. Autism doesn’t end at 18. Regardless of the stories you may have read on the Internet or social media accounts, it is incredibly uncommon for a child who is accurately diagnosed as autistic to become an adult who is no longer autistic. So those ridiculous theories of how to “cure autism”…not only is that dehumanizing, its false. Autistic children may build some strong skills and overcome some challenges that may make their autism less obvious.…

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Please Acknowledge People With Disabilities

People get really nervous around individuals who are non speaking. Or folks who use a wheelchair. Or who look different. I didn’t know that before I had my son Cooper. Before he led me wide eyed into the world of disability. Without knowing he showed me how a person can be invisible. A person standing front and center. Some of it’s subtle. The overlooking of a person. Some is not. And it’s hard to see. It’s hard to not get mad and sad and frustrated. Because I cannot think of…

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Just See Him

People ask me all the time how they can help. Kind people. Loving people. Strangers. Friends. Family. People on this page. I speak about that out of control feeling that happens when my son starts struggling. When his big feelings about waiting or sitting overwhelm him. Or when the noise is too much and the lights are too bright or he smells something in the air that you and I can’t make out. Maybe we are in line at the grocery store. Or at a park. Or in the paper…

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My Fears are Different

Parents have many fears for their children as they grow up…but as a special needs mother, my fears are so different than most. It’s difficult to put into words.  So here I go…. It’s hard not to have tears roll down your face at night when everyone is asleep..when you look at your child so perfect, who is sound asleep, just thinking how much you love them.  You lay there and think about everything. You can’t turn off your thoughts and fears. It’s hard to relax and take a deep…

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A Life Meant Just for Us

A few days ago, I was watching a fellow special needs mom story on Instagram. Like most day’s she was giving a real insight on what it’s like to raise multiple kiddos on the Autism spectrum. She was asked what would be her advice to the parent of a child who was recently diagnosed. What she said next about grief was not what I was expecting, but it stuck with me. She said, if we are being truly honest with ourselves, we are not grieving the life our child may…

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Remember My Boy

The next time you are stuck at the grocery store, irritated with the man at the front of the growing line because he keeps chatting with the clerk, think of my boy. The man might be verbally ruminating about new soda flavors he saw on tv or explaining his frustration that the store is out of the only bread he eats. How it is very important because he eats this bread for every meal in his day. He may also bring up the triangle-shaped crackers he saw on aisle seven.…

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