Dear Stranger

Dear Stranger, You have been going to the same coffee shop as my son for a few weeks now. In fact, you have tried to engage and make conversation with him. Two days ago, you found out the reason why he doesn’t answer you, the reason why he struggles to make eye contact with you and the reason he eats the same thing, day in and day out. He has autism and has limited verbal abilities.   You were told this information so you didn’t think he was being rude…

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His Best Friend

Let me show you the beauty of my son’s world. And how my perspective has greatly changed over the years. A few days ago, Cooper, who is 9, began showing me a still frame of Dora the Explorer on his iPad. Dora happened to be wearing a purple pirate outfit. She was with her crew on a boat. They were making their way to Mermaid Rock. He has showed me Dora and her purple outfit at least a hundred times. Cooper also happens to be nonverbal. Meaning, he can’t necessarily…

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A Trip to the Zoo

We just returned from an outing with just our older son. It was his day to get spoiled by mom and dad. For the first 9 years of his life he didn’t really care about outings or gifts or getting spoiled. But slowly over time he has started asking us to go places. Some are not doable…if anyone knows how to get Dora the Explorer to our local fire station please let me know. He’s asked my daily for months now. I’m not sure how long…‘mommy’s trying’ is going to…

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Thank You For Always Having Your Brother’s Back

To my eldest son, On Monday you asked, “Mummy what is autism like?” I told you my answer, and we sat and watched an animated explanation, showing how your brother sees the world differently to you.  As I waited outside the school gates for you yesterday, you saw us and came running up with your arms held wide. “Hello, Rhys” you said, taking your brother’s hand in yours.  The cars flew by us on the busy road, and you mentioned the noise and how scary it must be for Rhys,…

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The Autism Bomb

Halloween brings back memories… A lesson in labeling our children with special needs. I believe this was just four years ago when peanut was eleven years old and her brother nine. This year it was just us four celebrating the holiday and the kids and I were trick or treating only a few houses down from where I am sitting as I write these words. I was not physically far from them, because I physically do not leave her side for very long, even back then. Always keeping an eye…

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It’s Time For A Change

I’m feeling conflicted and heartbroken for my autistic son’s future. As I’m getting dressed for work today, I noticed my sixteen year old son, Lawrence looking at all the headlines and stories in the news… My son then makes the comment, ‘I dislike cops.’  Wow. Talk about a feeling of confusion as I’m now wearing my uniform. I am a Corrections Office and a Field Training Officer. I’m also a single mom, doing my best to raise a developmentally disabled son that has huge communication issues.  He is not aggressive. He…

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Battling the Darkness

There was a time our life changed. We went from ‘typical parents’ to special needs parents. Although I still don’t see the differences. We have a different struggle, but we are still parents. Autism crept into our lives and changed the way we used our voice, while we were fighting for other kids. It sneaked into ours and asked us to use our voice for our own children. Our son was the first to be diagnosed…never did we think we would take the same road twice. I think I grieved…

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Autism, Anxiety and Lost Time

One of the most unreasonable, exhausting, and heartbreaking sides of autism is anxiety.  Sometimes it falls under the ever-broadening umbrella that is Autism Spectrum Disorders, and sometimes you face anxiety as one of many comorbid diagnoses. In our world, anxiety is the fierce sidekick to autism. It’s the root of things like self-injury, aggression, and property destruction. It is also the thief of time. Anxiety is the reason you will not find our family in line for a ride at Disneyland, a photo with Santa, or even a burger and…

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States Look to Put Label on Driver’s License for Autism

My son Johnny was almost five years old when he was diagnosed with Autism Spectrum Disorder. That was almost one year ago. Although we were told by experts they were unsure, I could have pushed to have him diagnosed sooner.  To be completely honest, I think I was afraid of the label. I did not want people to hear he was autistic and assume so many preconceived ideas about him. I did not want them to expect the worst from him, or love him less.   I worried teachers would dislike…

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Fire Drills

Hi. My name is Carrie. I have five kids, and my second son has autism. His name is Jack. I’ve come to think of autism as a kind of symphony, if you will. There are loud cymbals, and a quiet tympani. Sometimes, there is a melody, but more often than not, it sounds like chaos. Jack hates fire drills. He always has. For much of his life, he has lived in fear of them. When he was six, he would come off the bus and say the same phrase over…

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