Leapfrogging Can Turn Into Caregiving

This morning my third son had an early morning hockey practice. Setting the alarm for 6:30 am for a Saturday always cuts a little deep. Ten minutes before my alarm was supposed to go off, my eyes snapped open. Lights were on everywhere. And laying on my chair was my boy. Full dressed in his hockey clothes. He woke up and dressed himself. Typical development amazes me. I say that a lot on here. But it’s true. Typical development is a gift. Children that just know and do and try…

Read More

This Is Our Autism

When I started this page years back, I did it for a few reasons. I wanted to find families like mine. And kids like my Cooper. I wanted to learn all that I could about autism, the spectrum and what it could look like as my sweet son aged. I wanted to build a village of parents, teachers, therapists, and friends who wanted to support and raise each other up. I wanted to create a safe space for families to share the unique wins and struggles that we encounter on…

Read More

Helping vs. Hurting: A Parenting Lesson from Raising My Autistic Son

There is a saying I heard a while back that reframed a lot of how I parent my autistic son. Am I helping or hurting? Let me set the scene first. I ordered pizza for my four kids tonight. It’s been a day and pizza sounded good. I was busy doing a few things so my second son Sawyer, who is 13, dished up his plate. He is not one to wait for food. Minutes later when I walked into the living room I saw his older brother Cooper eating…

Read More

My Big Child With Autism

When limbs get long and thick– and hair sprouts— so does an intellectual yearning for more. It’s no longer the curiosity to sneak out of a side door– to dig hands in dirt, spill rice or roll in grass. it’s no longer the fear of her climbing into cars– it’s a lust for something new and immaterial– for living and exploring– and for me, It’s a heavy fear of the world that she is so curious about.              the world she yearns to be part of.…

Read More

“What does Olivia want for Christmas?”

This question seems simple, but it is extremely difficult to answer. My daughter Olivia is 16 years old. She is autistic, and she has Sensory Processing Disorder and anxiety. Olivia has words for labeling and requesting but is considered nonspeaking or semi-verbal because she cannot hold a conversation. There was a time when Olivia did not even acknowledge Christmas. She did not understand what was going on, and opening presents did not interest her at all. Now that she’s older, she actually loves Christmas! She loves the lights, the tree,…

Read More

Some Christmas Miracles Come with Paws, and Ours Is Named Bingo

The holidays are always tricky for our family, just like they are for so many families with special-needs children. Our daughter is seven, but a simple Amazon search for “gifts for 7-year-old girls” doesn’t capture what she’ll actually love. If a toy isn’t tied to her current interest, it’s set aside within seconds. And when all her favorite shows seem to be from before 2015, gift hunting feels more like a treasure quest than a holiday tradition. This year, though, we’re preparing for something different. The greatest gift we could…

Read More

Nine Christmases Later: A Holiday That Finally Feels Like Home

When My son Isaac was born, it was just before Christmas. We spent that year just staring at this perfect baby that was all ours, envisioning the Christmas days we had to come, the visits to Santa, and the traditions we would make as a family together. That was before we knew how hard Christmas would be for our boy—before we knew that what we thought he wanted was not actually what he needed. It was before we knew that wrapped presents made him feel uneasy, that moving the room…

Read More

I Wish Someone Had Prepared Me For All Of This

When my son’s autism was discovered twelve years ago, I wasn’t ready to think about the future. Nope. I focused solely on the present and helping him. And it wasn’t easy. It wasn’t like help just rolled in. I learned quickly there is no prescription for autism. Instead, it was trial and error. And a whole lot of advocating (fighting) for services and supports. But hard work paid off. And he was worth every bit of the hard. When he turned 8, I was ready to dip my toe into…

Read More

When Christmas Isn’t Magical Yet: Hope for Parents Raising Disabled Children

To the parents raising disabled children who feel the weight of the holidays creeping in because Christmas isn’t magical yet… hold on. The holidays bring big feelings when your disabled child isn’t ready for the wonder. Some children find the magic late, but it’s no less perfect when it comes. Sometimes, it’s even more.  There was a time when Christmas passed us by almost unnoticed. She didn’t care for the tree or the music, didn’t light up at the sight of wrapping paper or twinkling lights. And that silence… it…

Read More

Am I enough?

I wake her every morning to begin a brand new day. I sit beside her, asking questions, slowing her steps, listening to her read, guiding her through mistakes, celebrating every victory. I nudge her past her comfort zone, toward chores, and cooking, and cleaning. I set alarms, build routines, help her move from one moment to the next. I give her her meds, teach her how to care for herself, walk the thin line between her independence and the dangers she cannot see. I place her sensory tools close, soft…

Read More