Guest Post
Too Familiar
Doesn’t all of this feel oddly familiar to you? So terrified of the future. Haven’t you felt that before? The fear of the unknown? Continual anxiety caused by the ultimate invisible boogey man we call… time. When will this change? How long will this last? When will this get better? Almost too familiar. So many questions but no one has concrete answers. Actually, let me rephrase. No one has answers that make sense to my non-expert brain. Information is flooding in fast but it is all so confusing and contradictory…
Read MoreThe Autism Merry-Go-Round
Some days, it feels like we are climbing onto the exact same merry-go-round that we were on yesterday, and the day before that and the one before that. The same music, same speed, same smells, and my son would undoubtedly choose the same horse to ride every single time. We continue, round and round, stuck on a loop. Sounds peaceful, right? Until the song changes, an undesirable sound or image comes into the loop. Or the lights are too bright or too dim. Something familiar is missing, out of place…
Read MoreI’m Afraid your Daughter will Endanger Us
I absolutely loved my oldest daughter’s kindergarten teacher – I really felt like we were partners in helping my daughter. But, not a day went by that I didn’t get a note, an email, or in the worst case scenario, a phone call. I will never forget the day she told me she was worried my daughter would endanger her class. When Olivia was in pre-K, her teachers seemed to be setting the stage for an ADD diagnosis. But she was only three, and then only four, and…
Read MoreIt’s Not All Sunshine and Rainbows
Times are hard right now. For everyone. And if you’re a parent of a child with a disability, being off school isn’t as “cute” and “pretty” as it may seem across social media. I’m not saying every minute of every day is hard, but it’s not all fun crafts and cookie baking either. As I sit and reflect after a very difficult day, I want to express my feelings and the reality so many families are facing right now. You see, cancelling school doesn’t just mean no school for a few…
Read MoreThat Little Empty Spot
When your last born loses her first tooth, it is supposed to be a little sad because one realizes that their baby is growing up. And will soon spend long summer days riding bikes and playing neighborhood games. They are learning math facts and reading classic stories like, “If you give a Mouse A Cookie”. With her bouncy little smile she ran to me and grabbed my hand and brought it to her tiny bottom tooth on the left. It was so close to being free. She had been using…
Read MorePlease Remember the Kids Like My Daughter
I can’t catch my breath. Not because I’m sick. But because I’m scared. I know that this is a difficult time for all of us. I’m especially scared though for my daughter Liz and for other kids with special needs. And for their families. Liz’s therapy center is now closed indefinitely. No ABA, no speech therapy, no occupational therapy. I am scared that she will regress and lose much of the progress that she has made without access to these therapies. She has worked too hard and come too far…
Read MoreSocial Distancing; A Way of Life for Some
Social distancing. For a lot of people this is a new concept. Being alone, nowhere to go, no play dates, no birthday parties, no big family gatherings…staying home alone seems to be make people very uneasy. It’s hard and people are reassuring each other that “it’s just temporary“ and that life will go back to “normal” soon enough. But for some of us, this has been a way of life for a long time. What if this is your new normal? I get it. I used to be the mom…
Read MoreTwo Strangers with One Incredible Thing in Common: Autism
A few years ago, when my daughter was diagnosed with autism, I went down the wormhole of Instagram searching for someone who could understand. I didn’t know a single person on the spectrum, and all of my friends had typically developing children, so I was desperate to connect with anyone who could say, “I get it,” instead of the “I can’t imagines” that were being hurled my way. And then I stumbled upon a beauty queen. A title holder in the Miss America Organization, to be exact. A woman with…
Read MoreThe Unspeakable Word
If you are a parent like me with a child on the spectrum, chances are we both have something very unique in common. Something that most would think is a very simple thing to do, something that is just a part of life. But for us, it’s not. Do I dare say this forbidden word? I don’t know if I can handle to even whisper it…but here it is: “HAIRCUT”. Yes, there, I said it. This word in the Autism world for most is a very, very bad word and…
Read MoreThe Battle of the Winter Festival
You don’t get to choose when it comes to Autism. A meltdown can happen at any time…be it in the privacy of our home or in the middle of a hallway at an elementary school crowded with people attending the annual winter festival. We can do everything within our power to prepare for each different situation, but variables beyond our control always seem to find a way to slide into our path, and cause us to stumble. As a parent of a child with Autism when I hear events…
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