Guest Post
My Boy, Anything is Possible
My Dearest Boy, We’ve walked quite the road, you and I. Your dad and brothers have been there every step of the way too. It all began when you and your twin brother were born three months too early. The future was so unknown back then. The challenges and hills to climb seemed insurmountable. But you and your brother both rose above every challenge you faced. As you grew, it was clear that your needs were greater than your brothers’. Your dad and I had no idea what was going on, but…
Read MoreWhen They Mention Autism
You know when you’re in a public place at a party, a BBQ or an assembly, and you’re sitting with other parents… You don’t know them well, but their kids are in your kid’s class, so you all group and make small talk. It’s all light and breezy and then you hear someone mention autism. And you just wait. Sometimes curiosity will tilt my head.Sometimes my stomach will turn.My heart will race. What they say could either make me happy and emotional, or it could go the other way which…
Read MoreIn the Hard is Where I Found Myself
Hi friends! I’m Shannon and this is how Autism help me find myself. My true self. I’m the proudest boy mom to the two most amazing boys. One of those boys was diagnosed with Autism two years ago and completely changed everything I thought I knew about myself and Autism. The day our Adventure in Autism started was the darkest day of my life. I felt like I was being forced to go on a journey I didn’t want to go on. I did everything I could to keep from…
Read MoreAdaptive Clothes are Becoming Mainstream and I’m So Excited
“Are you ready to go back to school?!” is everyone’s favorite question to ask these days. Whit usually smiles this smug smile and gives a wink. Our soon to be four year old, Vivi, tells everyone no. Every year, I have this hope that Whitman will want to pick out his backpack, lunch box, and some clothes to rock his school year. Every year it’s just him looking at things and shrugging. We have Vivi’s back to school shopping done. We’re just waiting for her unicorn backpack to arrive. But…
Read MoreA Lasting Impact
I am looking at you, my son, after introducing you to the bomb squad guy at a historic bombsite. He was our supervisor during our traffic works. I see you talking with the guy, posing as a tough boy, hands in your pockets, asking things about the history and World War 2. I dwindle back to years ago, when you were three years old and my Aunt called to tell me you appeared to be deaf unless she yelled “fries”. I see you looking at fragments of bombs with not…
Read MoreYou Don’t Grow Out of Autism
You don’t grow out of autism. It’s not some phase a person is going through. Autism doesn’t end at 18. Regardless of the stories you may have read on the Internet or social media accounts, it is incredibly uncommon for a child who is accurately diagnosed as autistic to become an adult who is no longer autistic. So those ridiculous theories of how to “cure autism”…not only is that dehumanizing, its false. Autistic children may build some strong skills and overcome some challenges that may make their autism less obvious.…
Read MoreWhat a Difference a Covid Year Makes
An old friend called me this weekend to check on our family. The discussion turned to the past. When Emily was a toddler, she was easily overstimulated by sounds or crowds. We were having dinner at their home and at some point Emily “lost it”. She was crying and inconsolable. The only thing that worked was to drive her around and play a Wiggles CD in my car until she calmed down. I missed most of that evening. A few weeks later Emily got upset when I was covering a…
Read MoreMoments in Time
There are these moments in time. They seem to slip by. As quick as they come their gone. I need to capture them, I think. I turn to look for my phone or camera, but something stops me. I forget the camera, the perfect picture. I return to the moment in front of me. My babies. My boys. They are laughing and singing and swimming and make believing. Soaking up the sun rays of one of their first summers together. Right before my eyes, they are getting to know one another.…
Read MoreExpect the Unexpected
As autism parents, I think it’s a steadfast rule to celebrate the little things. We are always working towards a better tomorrow, better outcomes, better behavior. Taking it one step and one day at a time. Only planning as far into the future as we can manage and controlling what we can. Praying that all our hard work, encouragement and love gives our kids what they need to succeed. Well, our lives are fairly, predictable. I have gotten used to expecting that he wants 2 peanut butter sandwiches for lunch…
Read MoreTomorrow is a New Day, but the Struggles Remain
Our house is dead silent. It’s the middle of the day and everyone is sleeping. Not just because it’s nap time, but because our entire family has to decompress from what just happened. The hour-long meltdown that just occurred on the drive home. This always happens. We can’t go anywhere anymore, without a meltdown on the way home. Even when I give warnings before it’s time to leave. It doesn’t matter if I warn him 5 minutes before or 5 times for 30 minutes. There will always be a meltdown.…
Read More