Promises to My Son: Shattering Stigmas, Embracing Autism

My son, I want to make a few promises to you. Because we have a lot of stigmas to shatter around autism. And you are just the kid to do it. With a little help from your old mom. I will carry you on my back when you can’t walk yourself. I will hold your hands to my face when you feel the need to hit your own head. I will sit on the ground with you when you need a break. I will hold your body tight when you…

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Finding Autism in Unexpected Places

I looked around while standing in the security line at the O’Hare International airport. Time to go home. I was only here for 24 hours. Not even really. I attended an amazing event for an amazing cause and slept through the night. I call that a successful trip. My hands were full, as they usually are. I was juggling my 2 bags, ID, cell phone and cup of coffee. I always get nervous in the security line. Like I’m breaking some law I didn’t know about. I picture myself getting…

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A Cell Phone Opened Communication for My Nonspeaking Son

I received a lot of questions when I shared that I was getting my nonverbal 13-year-old son a cell phone. To be honest, I questioned myself. But I had a dream laced with hope and determination. Verbally speaking is not possible for my son right now. He shows no desire. We’ve modeled pretty much every other type of communication you can imagine too. Sign language. Gestures. A speech device. Spelling. And so on. Sometimes his autism feels like a closed door. Or something just out of reach. I can see…

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Superheroes Among Us: Happy Birthday Sawyer

Today is my son Sawyer’s eleventh birthday. Which is a really big deal. Because according to him he’s basically 16. I am a storyteller. At least I consider myself one. I think our stories are what complete us. And telling stories about Sawyer are my favorite. And I write them down so one day, when I am old and grey, we will have them to look at. This is my favorite Sawyer story… We had arrived at Cooper’s school to pick him up for the day. It was Jamie, Sawyer,…

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You Are My Calm in the Chaos

My son, Your birthday is in 8 days. You have been counting down since mid December. You love your birthday. And you love being older. So much so that you are already telling people you are 11 years old. I lovingly correct you every time, reminding you that you are still my 10 year old. For a few more days at least. I also threaten you with a potion that will keep you little forever. When you were younger you belived me that it would work. You aren’t scared anymore.…

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Autism is Not a Dirty Word

Every morning I wake up to messages from people on social media. Most are well-meaning. Many are kind. A few are awful. Some are bizarre. And some, tell me how to raise my son. And how I’m doing it wrong. They tell me what I should be doing, how I can do it better, and what I can and cannot say about him. I’ve gathered a list of what I cannot say. I cannot say he has autism. Or is autistic. I can’t say he is nonverbal or nonspeaking. I…

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Finding What Works for Us at The Wisconsin Dells

We have a unique family. At least I think we do. We have a teen and a tween and a little and a toddler and a super social dad and a tired mom. We have four that like to go and do and one that needs a little more encouragement. We have four that are extremely social and two that prefer the comforts of home. And we have autism too. Which means some things just aren’t possible right now. Like flying in an airplane. Or long car rides. And sitting…

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The Healing Power of Sharing Life’s Challenges

Did you know there are some women out their who never whine? Or complain? Or even say it’s hard. I never knew that. I really didn’t. So when I stumbled across a post on Facebook bashing women for talking, or as they said whining, about the hard parts of life, I was shocked. Apparently, these so called whiners hate their kids and husbands. It was a lot to take in I a tell ya. I realized, they are probably talking about me. I talk, whine, complain, vent all the time.…

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A Beautiful Moment to Share With You…

This morning, when I came out of my bedroom, far earlier than I would have liked, I knew my son Cooper was waiting on the stairs for me. For one I could hear train whistles and happy music coming from his ipad. We often hear him before we see him. And secondly, lately, he’s been waiting for me more. Near, but far. Not close enough to touch, but easily heard and seen if I peek around a corner or under a table. He gasped as he usually does when it’s…

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Parenting Autism and the Conversations We Must Have

A few nights ago, my husband and I found ourselves driving around a picturesque town for 20 minutes or so…alone. We had no kids with us. There was no loud noise or fighting, endless questions, or voices from an iPad. It was just us, driving around looking at holiday lights, Christmas music playing softly. Eventually we found ourselves in the parking lot of what looked like a brand new apartment complex located right on the river. It was breathtaking. After looking at the sign, we saw it was for folks…

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