Archive for September 2018
Advocating for my Child Doesn’t Mean I am Trying to Cure Him
The small room is kept cold and quite. It only has one long rectangular table with 12 black cushioned chairs that have wheels at the bottom of them. The walls are painted light tan, with no pictures hanging from it, and the carpet is dark brown. You can not hear the sound of my heels walking to one of the chairs where I will sit for the next hour. It’s August and every room at the board of education is full and humming with excitement and nervousness for the upcoming…
Read MoreBringing a New Baby into a Special Needs Household
Making the decision to have another baby is a huge decision no matter what your situation. When you find out you are expecting a baby, you are flooded with excitement, joy, concerns, fear and so many other emotions! It can be a time of great worry for some people, but when you are a parent of a child with additional needs, it brings a whole new level of worry to it. It wasn’t long before the birth of our second son that most of the problems Master W was experiencing,…
Read MoreMedical Cannabis Update-Week Three
I promised I would give a weekly update on our journey with medical cannabis for our severely autistic son. We are 21 days in! In Minnesota, medical cannabis was legalized for autism in July 2018. The program is regulated by the state of Minnesota. You can read more HERE about how we got started. Want to know if medical cannabis is legal for autism in your state? Click HERE. After getting a prescription from his doctor and jumping through all the hoops, we started him on the lowest dose possible.…
Read MoreAfter the Diagnosis
It has taken me almost a year to write this. On February 16, 2017 my life changed. Keegan got his diagnosis of severe (level 3) autism. I had known in my heart for over six months that it was autism, but prayed that it wouldn’t be, and that the early intervention would start working. I had prayed that his symptoms would go away, but when they didn’t…I had hoped for a diagnosis of mild. Looking at his symptoms I knew it would be more than mild, but I kept telling…
Read MoreLetting Out The Breath You’ve Been Holding For So Long
‘The best feeling is watching things finally fall into place after watching them fall apart for so long.’ The beginning was so hard. Before the autism diagnosis. The unknown. The hating myself for suspecting something was wrong. The watching all of his peers and even younger kids pass him by. The exhaustion. Never sleeping. Wondering why my baby was different. The fighting with my husband because I saw something he refused to see. The hoping it was anything but autism. Late bloomer. Boys will be boys. Holding my breath. Waiting.…
Read MoreThe People You Meet Along the Way
When I first received the news that my son had autism over three years ago, my mind instantly started making a list of the potential challenges that awaited us in the future. Will he ever talk? Will he ever be potty-trained? Will he need to be in a special classroom with other disabled children? Negative or difficult scenarios would keep me up at night, and I’d toss and turn thinking about how I was going to help him face each one. Fast-forward three years later, and ironically, many of those…
Read MoreMedical Cannabis Update-Week Two
I promised I would give a weekly update on our journey with medical cannabis for our severely autistic son. We are 14 days in! In Minnesota, medical cannabis was legalized for autism in July 2018. The program is regulated by the state of Minnesota. You can read more HERE about how we got started. Want to know if medical cannabis is legal for autism in your state? Click HERE. After getting a prescription from his doctor and jumping through all the hoops, we started him on the lowest dose possible.…
Read MoreThe Land of Grief
I’ve scoured so many posts, blogs, and advice columns looking for moms like me. The moms who still struggle with the diagnosis. Moms who still wake up in the middle of the night unable to breathe, and moms who doubt everything they thought they knew. I look for moms like me, who have been crushed by the weight of autism. It’s been ten long years. Nothing has soothed these wounds. I’ve tried. I’ve tried different therapies. Antidepressants. Christianity. Wine. Way too much wine. No one seems to understand what this…
Read MoreVerbal Autism Does Not Mean Easy Autism
I am blessed with a daughter who has a large vocabulary and clear dictation. She can read fluently and make up complex sentences. She can remember accurate facts about things and repeat these readily. She can make choices, recall events and express her opinion. As a result of all of the above it is assumed (wrongly) that her autism is mild, has limited impact on her life and something to be of little concern about. People are too quick to assume if a child is verbal that everything is fine.…
Read MoreThank You Influential Teacher
Dear Influential Teacher, I know what it’s like to live in a bubble of the typical. A typical day, a typical child, a typical life. I know what it’s like to go through the year, losing the will to invest in the kids we have trouble connecting with…those who aren’t self-motivated, involved, and actively engaged in the lesson…those who don’t see us giving our all, lesson after lesson, paper cuts, ink stains, broken copy machines, fire drills, back talk, and all. I know what it’s like to overlook those who…
Read More