Medical Cannabis Update-Week Two

I promised I would give a weekly update on our journey with medical cannabis for our severely autistic son. We are 14 days in!

In Minnesota, medical cannabis was legalized for autism in July 2018. The program is regulated by the state of Minnesota. You can read more HERE about how we got started.

Want to know if medical cannabis is legal for autism in your state?  Click HERE.

After getting a prescription from his doctor and jumping through all the hoops, we started him on the lowest dose possible. Our dispensary offers three blends of medical cannabis. Think of it as three strengths. We started with the lowest.

Cooper’s initial dose was 1 ML twice a day. After 4 days of seeing no improvements, we increased his dose to 2 ML’s twice a day. We have now increased to 3 ML’s twice a day and will stay on this dose for the next two weeks.

I spoke with our Pharmacist a few days ago to discuss any concerns I may be having. Which are none. But I did mention I felt that we weren’t seeing any substantial results. She disagreed after I explained our current ‘breakthroughs.’ She felt these were actually BIG results.

Our goal with medical cannabis has always been to reduce his extreme anxiety, help him be calm, calm his brain and body, and help him to sit and be present in the world around him.

Here is a high level overview of the results we’ve seen over the last week. As always, I encourage you to watch the video. I go into greater detail.

  • Cooper asked me to go to Dairy Queen. We ‘chatted’ the whole entire way. He showed me a water tower. He pointed to trees and signs. He showed me a store…which happened to be an oil change place and we called it the car doctor. Which he thought was hilarious. It was like he was seeing the world outside his window for the first time. I started at him in awe while we sat in the drive thru. He waited for his ice cream. He even clapped when it arrived. He was so aware of his surroundings.
  • He drank from a cup with a straw. A non-Cooper-approved cup. A cup that we traditionally would have to work on for months and months. He saw it sitting on the counter, grabbed it, and took a drink. Cooper has never done that in his entire life. He doesn’t just ‘try’ food or drink. He doesn’t just ‘try’ new things.
  • We took a nap together on Saturday afternoon and as we were lying in bed I watched him staring at me. While Cooper has never really struggled with eye contact, he does struggle to look at someone for longer then a second. I watched him stare at me for minutes. Like he was just seeing me for the first time. He smiled and giggled. He ‘pretended’ to be sleeping unprompted. Meaning he fake snored and closed his eyes. It was the cutest thing I’ve ever seen. He even repeated the word ‘M-O-M’ a bunch of times while staring at me. Like it was the first time he’s ever heard the word.
  • We had a party at our house on Saturday. A loud, house-full-of-people, party with lots of kids and chaos. At our last party, Cooper obsessively lined up chairs for hours. He yelled at people. He threw. He was so overwhelmed. He didn’t push anyone or hurt anyone but he really struggled. This is so heartbreaking because he loves parties. He requests one every single day of his life. This time he sat, jumped in the bounce house, listened and even napped. And he ate cake! Which he would normally never do.

I feel like my son is coming to life. Or coming into our life. He is seeing the world around him for the first time. And after so many years of accepting that it may never happen, I feel like I need to pinch myself. I don’t want it to go away.

I can’t wait to see what the next week brings.

Medical Cannabis Update-Week Two

Hey all,I promised I would give a weekly update on our journey with medical cannabis for our severely autistic son. We are 14 days in! We've seen amazing, huge, gigantic, breakthroughs this past week. I am so excited to tell you all of them. While week one we saw a reduction in anxiety, this week we saw so much improvement around engagement. Cooper and I 'chatted' on the way to Dairy Queen. He asked me to go to the zoo and the fire hall. He 'pretended' to be sleeping. He even drank from a non-approved Cooper cup. It's been an absolutely amazing week and I don't want it to end. For more information, here is the initial post I did about cannabis, our decision to start, and how we went about getting our son approved. If you have questions start with these: https://www.findingcoopersvoice.com/2018/08/27/medical-cannabis-autism/Here is my week one update: https://www.findingcoopersvoice.com/2018/09/04/medical-cannabis-update-week-one/FYI. This video is a bit long but I had so much to tell you! Thanks!-Kate

Posted by Finding Cooper's Voice on Monday, September 10, 2018

I plan to update weekly on Cooper’s progress. Check back!

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Comments

  • Diane Hill

    September 12, 2018 at 9:54 am
    Reply

    Wow that is very exciting and encouraging. I am so thrilled for Cooper and you and Jamie...

  • E Crooch

    September 12, 2018 at 10:52 am
    Reply

    I am so very thrilled for you guys!! :) Even as a random-Instagram-follower I have been able to see sooo much growth in Cooper lately! […] Read MoreI am so very thrilled for you guys!! :) Even as a random-Instagram-follower I have been able to see sooo much growth in Cooper lately! :) :) Read Less

  • Nancy

    September 13, 2018 at 7:03 pm
    Reply

    This is such exciting news!! I am so happy for your entire family!!

  • Kimberly k harrington

    September 17, 2018 at 11:23 pm
    Reply

    Following from Ohio. Look at how happy you are!!!! I had tears in my eyes reading your update about Day 9 and this blog. AMAZING! […] Read MoreFollowing from Ohio. Look at how happy you are!!!! I had tears in my eyes reading your update about Day 9 and this blog. AMAZING! I am so happy for you all. Cant wait for the next update. Read Less

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Finding Cooper's Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you're never alone in the struggles you face. And once you find your people, your allies, your village....all the challenges and struggles will seem just a little bit easier. Welcome to my page!

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