Archive for January 2018
My ‘Ah-Ha’ Autism Moment
On my drive to work this morning, I was considering different topics for my February writing challenge topic and I landed on the ‘ah-ha’ autism moment. You know the one? The exact moment you realize that your child really does have autism. And it’s really serious. And you can’t hide it anymore. And your child is different than their peers and siblings. For me this wasn’t the moment our doctor first mentioned early intervention or even when he was diagnosed with autism. Yes, those moments were hard and stung. But,…
Read MoreDiagnosing Autism in Girls…Not So Easy
I’ve learned that girls with autism are better at masking their symptoms than boys. They are able to watch social situations between people, and then copy what is being done. So, when they have their own situation arise, they are often just using what they have learned from seeing other people interact. Also, girls with autism usually have special interests but they are more in line with typical girls their age. But when you look closely, they are much more intense about them than typical girls. Before my daughter Lillian…
Read MoreFebruary Writing Challenge: My Ah-Ha Moment
Thank you to everyone that submitted a post in December and January. If you sent me one and I haven’t published it yet don’t be concerned. I received so many and it takes me time go through them all! Which is an excellent problem to have. This February I would like you to write about your autism ‘ah-ha’ moment. This might not necessarily be the moment your child was diagnosed. This is the moment when you realize that your child REALLY is autistic. And it’s not going away. I’ve had…
Read MoreQuestions About My Autistic Son’s Future
I’ve been on this thinking, planning and talking about the future kick. I get like this every so often. I have periods where I think about the future and prepare with energy and urgency. And then I’ll have periods where I refuse to even think about Cooper growing up. I have to block it out. It’s simply too much. Lately though, I’ve been really curious about the future. The sadness and fear have taken a back seat to my general curiosity about severe autism in adults. What does it look…
Read MoreThe Secret World of Autism
I am often asked to write about autism. Especially in preparation for Autism Awareness Month. Prior to my son’s diagnosis, I never knew this month even existed. That’s how it typically goes I guess. People don’t pay attention until it’s their life. I get it. That was me pre-autism. Now, my whole world is an Autism Awareness Month. When I am asked to write about autism I struggle with finding the right words. Autism makes up a million different stories of hope, love, adversity, struggles and beauty. How do I…
Read MoreMy Son, You Are So Much More Than Autism
Oh, my little pumpkin, what a strange, crazy, exhausting ride this autism thing has been. How did this happen? You were my surprise baby in every way! It was a struggle to get pregnant with your brother. We tried for two years then with the help of fertility pills I finally got pregnant. My doctor told me if I ever wanted to get pregnant it would have to be very planned because I would have to be on fertility pills. I don’t ovulate. Sixteen years later at age 41…SURPRISE! I…
Read MoreIt Happened This Year…I Got a Miracle
It happened this year… I got a Christmas miracle! When you have a kiddo with autism, or delays of any kind, there’s this period of grace. It’s the season of life where adults (for the most part) have or gain some knowledge. It’s the season of life where older kiddos are curious and learn something new. It’s the season of life where kiddos of the same age and younger don’t have a clue. At family gatherings, kiddos just play. Side by side, sometimes joining in, most often not. Fun is…
Read MoreMy Daughter, I See You
Kylie, My Daughter, In a few weeks, you’re turning 10. Oh, baby girl, if I could only somehow let you see yourself through my eyes, you would understand how the years pass so quickly. Just yesterday, I was snuggling you up to my chest, breathing in your new baby smell. Then I blinked and before me stood YOU: an opinionated, passionate, kind, witty girl. When you were a toddler, I remember you walking confidently into Sunday School. You never cried. You simply trusted us to always be there for you,…
Read MoreWill My Autistic Son Understand When I am Gone?
I went to a funeral yesterday. It seems as I get older, and my family gets older, I am attending more and more funerals. I guess that’s the nature of growing older. Thankfully, if there can be a thankfully, they are funerals for beautiful souls that have lived long, wonderful lives. So, more of a celebration of life I guess. My Son As I sat there yesterday, I looked around and saw many faces I knew and many I didn’t. Ages ranged from babies to nineties. I found myself staring…
Read MoreRealizing How it Should Be…
I had one of those ‘this is how it should be’ parenting moments this morning. I was able to bring my four-year-old to preschool today. We weren’t in a hurry and chatted as we drove. When we arrived, we walked in together. He took off his boots, hung up his bag and jacket and went and sat down and played. I spoke with his teacher, looked at his artwork and so on. And then I left. Sounds so simple, right? I’ve never had an experience like that with my autistic…
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