Posts Tagged ‘special needs family’
Build a Life that Works for Your Family
It may not get easier, and some things may not get better, but you have the power to create a world that works for your family. I wish someone would have told me that when my son was first diagnosed with autism. Because, initially, and in the challenging years that followed, I will admit that we felt stuck in a lot of ways. We couldn’t do this or that. Like go to restaurants or church or fly on an airplane, go for walks, visit the mall. We said no to…
Read MoreI Will Give Him a Magical Life
Last night something monumental happened in our little world. Our middle son Sawyer had a gaggle of friends over playing and as they ran from room to room, crashing and bashing and giggling about farts and butts, our oldest son Cooper ran behind. He was the oldest of the whole group on paper. The big brother and yet not. He will be 11 in a few months. But he has no interest in Nerf Guns or ninja warrior games. He doesn’t acknowledge the coolest shoes or ask for a cell…
Read MoreI Wonder with Excitement
When my son Cooper was first diagnosed with autism, and in the beginning years that followed, I’d spend a lot of time secretly wondering what our relationship would be like. I was told he would never be able to talk. Or live independently. And a whole lot of other things as well. And I’d wonder. And worry. Would we ever have a conversation? Would we ever go grab dinner together at a restaurant? Go to his first concert? And so on. I’d wonder while driving and studying him in the…
Read MoreI am an Observer of Autism
I saw something recently that said if you are not autistic you are merely an observer of autism. I absolutely believe this to be true. I do not know what it is like to feel the world as my children do, I am not a martyr because I parent autistic children, and I am not an expert on autism. I observe as my daughter carefully pours sand in her hair not worrying about those around her. I let her do it, even if she is covered in dirt, because it…
Read MoreFocus on the Good
I want to tell you one of the lessons I’ve learned that has helped me be a better parent to my autistic son Cooper. It’s pretty simple really. It’s understanding that he did his best in any situation. It’s listings the positives instead of the negatives. Even if there are only 1 or 2. It’s focusing on the good instead of the bad. Let me explain. Tonight we went to a carnival. All six of us. Our popular social butterfly, our curious wild child, our sweet easy baby, and our…
Read MoreThe Beautiful Gift of Life
We just had one of those great nights. One where you realize what a gift life is. We laughed and giggled on our walk. There was running and teasing and stolen hugs and kisses. There was life. So much beautiful life that I had to pause and say thank you. My oldest son asked for a birthday party and to see a blue whale. All without words. My second oldest rode his dirt bike and climbed trees and tried to convince me that he’s going to be 10 instead of…
Read MoreThe Things I’ve Learned
The Things I’ve Learned… When my son was first diagnosed with autism, and in the early years that followed, I tried really hard to fit in. Into the norm. I wanted so badly for my family to be like the other families. But, well, we weren’t. We couldn’t even pretend. Or fake it till we made it. We were different. Our son was different. Those years that we tried to pretend were the worst. It physically hurt sometimes. To see the differences so loudly. Our son is 10 now. On…
Read MoreThank You for Ordering Forever Boy
Now that the dust has settled on my book cover reveal, I want to say the sincerest thank you to everyone who purchased a copy of my book for preorder. And thank you to all of those who hopefully plan too! Sharing our story in the hopes to help others had always been my dream. I can say for certain that the beginning of my journey into autism would have been entirely different if I had found someone who I could relate to. This book will do that for you.…
Read MoreWhen the Silence feels too Loud
I don’t get a lot of quiet moments in my life. I mean, I’m a mom of four so honestly it just doesn’t happen. My house feels alive most of the time. Laughter. Yelling. iPads blaring. Train whistles. No hockey sticks in the house. Turn that down. Is that a marker? It feels like a three ringed circus most of the time. But a great one. One that the neighborhood kids are drawn too. Yesterday I made a trip to see my dad. He’s 79 and had a stroke a…
Read MoreThe Moments that Teach Me the Most
My sweet boy had a tough time on our walk the other day. The beginning was great. The middle had its ups and downs. But we finished strong. Which is usually how it goes for him. Good with moments of intensity mixed in. Highs and lows and middles. And then this moment. A boy of the same age helping him along. Helping him home. Smiling at Barney on his iPad. Never leaving his side. Taking him home. They are both ten. One speaks with ease. One communicates in his own…
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