Posts Tagged ‘Special Needs Child’
I am Not That Strong
“You are so strong.” If I had a dollar for every time someone has said that to me, I’d have enough money to pay for ABA Therapy…out of pocket. If you aren’t a special needs mom that might not make sense to you, but trust me, it is A LOT of money. I first started hearing it when I got divorced. Then even more once my son was diagnosed with Autism. A single mom to a special need’s child. I get it – It sounds strong. Here is the thing…
Read MorePerspective from an Autism Uncle
I remember my Godson Zachary’s first birthday after his severe, nonverbal autism and apraxia diagnosis. I remember it clearly. I bought him this Ninja Turtles hat, knowing he hated hats but I thought how that was the one he was going to love. Spoiler alert, he didn’t. I think everyone in Zachary’s village has had this kind of moment over the years…which is fine and mostly harmless…but this doesn’t do him any favors. I think about that moment often. I don’t remember ever discussing the hat any further but I…
Read MoreDifferent Isn’t Scary
Parent: I wish my autistic child could talk to me. Parent: I wish my child with autism could communicate with me. Parent: I wish I knew what my nonverbal child was thinking. Parent: I wish I knew what my child loved. Child: Listen and I will show you in the most mysterious ways. Be prepared to wait. And to listen to more than just words. My son Cooper has started taking photos with his iPad. Hundreds and hundreds a day. I know because the iPad is linked to my iPhone…
Read MoreChristmas is Changing
When I dreamt of Christmas with my daughter, I pictured so many things. Simple things really. Christmas movies, Christmas shopping, hot chocolate after ice skating. Sure, we can do those things but gosh they are hard or there is almost always a fall out. The timing of the fallout has changed over the years. I would like to think it is learning to tolerate the outside world or maybe its age. Christmas isn’t typically a joyful time of year around here. Christmas in general is loud and busy. Two things…
Read MoreLearning, Growing and Embracing
Last weekend I was driving myself and my three sons home from my mom’s house in Wisconsin. We had just celebrated Christmas and my SUV was packed to the brim with toys, leftovers, and love. The sky was dark as I navigated the backroads I’ve driven home for 30-some years. I remember being a little girl and dozing as my parent’s car bounced over the same bumpy roads. Only this time I was the parent, and I had two sleeping boys in the seat behind me, and one more awake…
Read MoreBrotherly Love
Last night, Sawyer had a tough time. He was overtired and overstimulated and the day just got too long for him. Christmas can be hard for little ones. When he gets like that, he doesn’t know what to do with himself. Instead of going to bed, he sat angrily in his room and yelled at anyone who dared to enter. It’s best to just let him cool off. Cooper was so confused as to why his brother wasn’t coming to bed with him though. He doesn’t understand Sawyer’s complicated emotions…
Read MoreWe are the Lucky Ones
This morning, after all the presents were opened, and the egg bake was in the oven, I sat down to drink my luke warm coffee and peek at social media. I came across a message from a women I didn’t know. She sent me a poem by Erma Bombeck. One I had read many times before. But I found myself blubbering into my coffee anyways. Huge crocodile tears running down my face. Her words came to me exactly when I needed them. And they went straight to my heart. My…
Read MoreMerry Christmas Eve
Merry Christmas Eve from our family to yours. Took 50 outtakes to get a good one! You can’t tell but this was a high stress moment for Coops. We are all counting down the minutes until bedtime and SANTA! Also, check out Jamie’s jammies. I ordered them for Cooper for his birthday and must have clicked the wrong size. No worries though. They fit dad! He was thrilled I promise. Although he did say let’s never speak of these again. Time to wrap presents! Finding Cooper’s Voice is a safe,…
Read MoreA Christmas Gift
Our Christmas in photos…For as long as I’ve known my son, trying anything new or different has been a no. I have pictures to prove that at one time he tried foods sorta willingly. An adorable blonde haired baby covered head to toe in spaghetti sauce, the high chair tray speckled with some green vegetable. But one day that all stopped. Almost seemingly overnight. He would scream and cry at the sight of an apple or an egg. All but 5 foods were pushed away in anger. Substitutions were not…
Read MoreWaiting for the Magic
Our Christmas in photos… Cooper is a concrete thinker. He sees, therefore it is. Abstract thoughts are harder for him to grasp and understand. Like time. Danger. Things you can’t see or feel. Magic. He’s also a yes man. So anything you ask him…he will ultimately say yes. And while many times the correct answer is yes…often it’s not. Like when I ask him and his younger brothers incriminating questions. ‘Did you make this mess Cooper?’ The answer is always yes. Even when I know for a certain that his…
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