Posts Tagged ‘Special Needs Child’
The Hero Who Helped Us Over Our Hurdles
I was a relatively new mom and had just experienced evaluations for speech, development, occupational, and physical therapy for my son Graham. But there was an even bigger hurdle…an Autism evaluation. I was told a referral was placed for the evaluation and that it could take time to get an appointment, so I was impatiently patiently waiting only to find out there was no appointment and there was no referral. Why? Because the facility the referral was sent to would not evaluate Graham due to him being under age three.…
Read MoreA Magical Place
When my son was diagnosed with autism at age three, I felt like I couldn’t reach him. I felt like he had this world, a secret one that I couldn’t enter. Some days I even felt like I would lose him to it. As if I was fighting to keep him here with me. I was scared of his world. It confused me. It worried me. Some days I felt like I should try and save him from it. He would laugh and cry and feel things that I couldn’t…
Read MoreBalancing Safety and Independence
I’ve been thinking a lot about safety lately. My son is ten years old. He is in the fourth grade. He adores riding the bus too and from. Every afternoon his driver with the kind eyes tells me that Cooper hugs his bus aide. He adores people. Always has. Cooper is a very smart boy. He knows the alphabet, how to search for ‘Hobart and Cosmo’ in YouTube, and how to do some addition. He knows when his baby brother is being naughty and to use a paper towel to…
Read MoreAutism Awareness Month Feels Different This Year
I helped my boy get dressed today, as I do each morning. “One foot in sweetheart,” I quietly instructed, going through the familiar motions. I checked the calendar for a quick run down of our day… April 1st. The start of Autism Awareness/Acceptance Month. Letting out a sigh, I hurried off to gather items for Leo’s therapy sessions, my mind wandering to those earlier days, when excitement was all abuzz, as April neared. When we’d wear a certain color to commemorate the day… And Facebook posts and videos depicting individuals…
Read MoreIn One Second
My son Stalen is almost 6 years old and on the autism spectrum. His safety is my priority, always. He has no sense of safety or danger. He elopes. He is a runner. He is an opportunist. As soon as he sees an opportunity he bolts. When these incidents occur, his strength and speed are super human. He has crossed beyond the tree line into the woods on me a couple of times. He has unlocked the door once and gone outside-luckily-into our fenced in backyard. He has bolted across…
Read MoreSuicide is 3X More Likely for those on the Autism Spectrum
Why does Autism awareness and acceptance really matter? There are many reasons, but let’s talk about one of the most important reasons… SUICIDE. Suicide is three times more likely for those on the Autism spectrum studies say. They say Autistics are more likely to have anxiety and depression which obviously leads to suicide. However, I think it’s important to discuss some other factors that weigh heavily into why Autistics have anxiety and depression beyond just Autism. You may be surprised to understand that the villain in this suicide story is…
Read MoreI Wonder
My son, I wonder if you will always reach for my hand when we are walking. I wonder if you will always be precious and innocent. I wonder if you will always gasp at birds and at squirrels. I wonder if you will always point to airplanes. And wave to strangers. And bark when puppies walk by. I wonder if you will always run up to a mud puddle with such joy and excitement and then look back to get my attention before you jump in. I wonder if we…
Read MoreSilence and Sunshine
My son, This morning was one of those great mornings. You and I, sitting side-by-side, taking in the morning in our own familiar way. You on the couch surrounded by 7 fleece blankets and treasures. Me, right next to you in the recliner, feet up, drinking coffee. The news was going on about something or another but I couldn’t really hear it over the music blaring from your iPad. You were dancing to it. Every few seconds you would pick up my arm and move it with yours to the…
Read MoreBehold, the Autism Mama
My son Jack has autism. He was born on Mother’s Day, in 2004. Over the past sixteen-almost-seventeen-years, I have had to tell and re-tell his diagnosis so many times, I’ve lost count. By now, I’m pretty sure I’ve heard it all when it comes to autism. I’ve heard about the vaccines, and the poor maternal bonding, and the gluten and the horse therapy. One kindly older woman even suggested Windex could be to blame. Windex? I thought. The problem is, can be hard to know what to say, or how to…
Read MoreTo the Medical Mama: I now Understand
How many times have I watched from a distance, mostly from behind a screen, as special needs parents spent weeks or even months in the hospital with their child, and I’ve thought, “gosh, that’s got to be hard.” I had a limited understanding of how difficult an ordeal like that could be because my 16 year old son Luke has been extremely healthy for many years; healthy until last year when we spent 6 weeks in ICU with him after his shunt malfunctioned and then became infected after a new…
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