Pictures in My Mind

When you become a parent, and probably even before, you imagine your child’s life. You imagine your own. You have this picture in your head of what it will look like. Scenarios. Highs. Successes. Wins. The beautiful moments. That’s normal. As humans we do that. We daydream. We imagine. When something challenges those images it can be hard. Like really hard. What you thought would be is not. I’m here to tell you that once you step off the path of what you pictured and into the unknown, your life…

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A Beautiful Night for Baseball

It was a beautiful night for some baseball! Week number two and I’m still blown away by this kid’s progress. Batting, fielding, base running, hugging, and giving high fives. All on point! And to bed immediately when we got home. Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just…

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Five Things to Offer a Special Needs Mom Who’s Struggling

You see the posts, you hear the stories, but you don’t always know how to help….. You don’t have a child with special needs, but your friend or a family member does. You want to do something, but are unsure of where to start. Here are five ideas that have been life-changing for me. 1. Remind her that she’s doing a great job. When she’s in the toughest times she’s doubting her self, she’s wondering if it’s her fault, if she will ever make it through. Reach out, remind her…

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Ask About Anxiety

My sweet boy, This morning we had some alone time. You peeked around the staircase at 5 am and when you saw me open one eye you smiled and waved. Down you came. Slowly. I’ve often commented how you walk like a little old man most of the time. Cautiously. Studying every step before you take it. I know when it’s you because of the pauses. I can hear you coming. When you got near me I held my hand out to you like I always do and you placed…

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Home From Grandma’s

Cooper adores going to his grandparent’s house. He can hardly wait to get there and typically gives me a quick wave when it’s time for me to go. He likes to stay two nights and no more. That’s his max time he will happily be away from home. At grandma’s he gets spoiled rotten and treated like a little prince. There is ice cream and swimming and snuggles and endless episodes of Family Feud. Today he came home. He always struggles transitioning too and from. He wants to be home.…

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My Greatest Gift to This World

My Son, I’ve been awake a lot the last 3 weeks and that has given me a lot of time to think. You wouldn’t believe the clarity that comes at 4 am. I’ve decided that when my time is done, and someone is writing up the story of my life, and listing my greatest accomplishments, I want them to list you first. You. The yellow haired boy who made me a mother. The boy who overcame. The boy who persevered. The boy who conquered. The boy who gives the gift…

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Miracle League Baseball

One of the best things we ever did for our family was join Miracle League Baseball. We met so many amazing kids and families like ours. We got outside. We found people who understood our challenges. We became part of a team. And so much more. Moms and dads always tell me that they don’t think their child will actually play. And my answer is always…that doesn’t matter. It’s so fun just to be apart of something. There is no score. Or pressure. Just lots of cheering. And tonight, during…

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They Will Have Each Other

Every day lately feels like a sprint. And a marathon. Fast and quick and dragging by at the same time. And yet there are really amazing moments sprinkled throughout. Mixed in with the hard and the exhausting. Just a few minutes ago, the one on the right there smashed the one on the lefts Star Wars Lego set. There was yelling. And ‘I hate having a brother!’ But after they snuggled right here. And earlier, my oldest stole the good iPad from Sawyer. He yelled and screamed when we made…

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Don’t Think of Me and My Autistic Son with Sadness

I may never be in the stands cheering as my son skates down the ice with the puck. But, I feel the same pride, every time I watch him make progress and acquire skills. My son Stalen is autistic. He was diagnosed when he was 21 months old. He is 6 and non-speaking. Every time he says a new word or tries a new food, it is like the last minute of the third period, the game is tied and he’s on a break away, headed down the ice at…

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I am Human

“Can you tell me why you’re crying?” Andy asked softly, his face wrought with concern. “I’m just upset about Leo’s session this morning,” I began. This particular remote learning session, intensely challenging for my boy, and in turn, for me, as I attempted to navigate the resulting behaviors. “I’ve been thinking about it all day,” I explained..“Wondering what I could have done to prevent his upset, or at least minimize it before it escalated…” Andy listened calmly. Pausing for a moment before responding.. “It’s okay to be upset about this…

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