Dear Boardman Board of Education, Which Kid Would Have Mattered to You?

Dear Boardman Board of Education, Which kid would have mattered to you? Which kid in your eyes would have made the staple to their head be classified as abuse? My fear is the incident in Boardman, Ohio is setting an example that abuse is only abuse when it happens to a certain kid. So, as a sibling to a brother with a disability, a parent of two boys, and a former special education teacher – I ask, which kid needs to have a note stapled to their head for it…

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Let’s Lower the Bar for a Minute, Shall We?

Yesterday I got the email from a special education teacher. “You’re daughter is getting an F in math”.  But my mind is far from academics at the moment.  My mind is on the ortho surgery my 15 year old daughter with ASD, ADHD (combo type), OCD, SPD, GAD and severe depression will have this coming Monday.  She told the surgeon ‘to hurry the fu*k up’ when he was putting on hand sanitizer entering the consult room the other day. My mind is on counting calories to prevent introducing a new med due to her recent weight gain. Weight gain caused by a medication we do…

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It Wasn’t You

My son, This morning you happily went to school. That sentence right there. I felt the tears pooling in my eyes as I typed it just seconds ago. Happily. Went. School. You put your own shoes on, brought me your coat, gathered up your treasures, picked up your backpack, and waited calmly by the door. It was 8:16 am. You know the bus comes at 8:23. You don’t seem to mind waiting. Your little brother waits with you, although I don’t think he necessarily brings you peace. But you appease…

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Waiting for School

The sweet email said…’Cooper has been on my mind all day! How was his first day back to school?’ I’ll admit I teared up a bit as I read her words. The kindness of strangers continues to amaze and humble me. And she wasn’t the only one who asked about him. There were dozens of emails and messages asking how he did. Cooper had a fantastic day at school! I was a bit nervous this morning because somewhere wires got crossed and his bus never came. He was dressed and…

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Focus on the Color

I want to brag on this little boy for a minute. His dad and I just finished up his yearly assessment with the state. I know every country is different when it comes to autism. Heck, states and even counties are different in the USA. Services and supports vary. Some better than others. We live in a fantastic state for disabilities. Minnesota values people with additional needs and prioritizes their independence, goals, and dreams. We are blessed to get the supports and services that we need to help our son…

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The Purpose of Genius

The letter came with the bills, two fliers, and a reminder that I desperately need to contact a random place for my extended car warranty. I tossed the trash and ripped open the letter. The words burned in my head and my vision blurred. “Mrs. Fields, this letter is to inform you that your son, Marvin Fields, has an IQ of XX and has an Intellectual Disability.” The letter went on with all sorts of reasoning for this and the need for “immediate intervention” so “the realms of hell and…

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A War With Hope

My son Cooper has taught me so much about timing over the years. And how we don’t have a set time limit to accomplish things. When he was diagnosed we heard a lot of things. We heard game over. We heard prepare for the worst. We heard he would never talk, or make a friend or ride a bike. We were told he would never live independently or have any type of self care. After kindergarten we were told he would never be able to attend a public school. And…

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Why We Push

It was only an hour and a half into the first day of my son’s school-sponsored summer enrichment program when my phone began to ring. It was supposed to be math camp – my 6 year old’s first love. Not enough kids signed up so they went with our third choice, farm camp. He does not dig farming so much, but I had viewed it as a chance to be around typical kids in a safe and fun environment.I had no expectations that he would grow even remotely in his…

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Public Schools Accused of Defrauding Special Education Students During Pandemic Nationwide

Our lives are often broken up by dates that mark significant events that change us. Our wedding dates, the birthdays of our children, the death of a family member we loved and cherished.. And for parents in 2020, there are various dates throughout the second week of March that will stay with them forever. For us, March 11th 2020 is the day our world stopped. My husband began working from home, my small business was forced onto a virtual platform, and so were our therapies for our six year old…

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Once Again, The New Normal Didn’t Have Room For Us

Normal. Such a funny thing.  When I say our life is not, I’ll hear back “Who is really normal?” or “What is normal?” I get everyone is different but when it comes down it, there is such a thing as normal. In some ways we are normal, but in many ways not and haven’t been even before I knew it. I never wanted my kids to be like everyone else. I want them to march to the beat of their own drums. Howl at the moon. Sing when they feel…

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