Posts Tagged ‘severe autism’
Thank You for Learning About Autism
I want to say the hugest, most heartfelt thank you to each and everyone of you who has supported me and my family on this journey. I know that so many of you have fallen in love with Cooper and our story. Sawyer, Harbor and Wynnie too. And of course Jamie. 8 years ago I sat on my couch in Duluth, MN and I created a blog. I named it Finding Cooper’s Voice. And I truly had no intention of anyone every reading it. I poured my heart out to…
Read MoreThe Things That Matter
One of the things I adore the most about my son Cooper is the way he gets excited over things. Things that most people may not think are all that big of a deal. Like a cow in a field. Or when it rains. The wind in his hair. A tractor. When we drive by Target. A train t-shirt. People who look like Santa. Halloween decorations tucked away in a closet. Photos of mom and dad as awkward teenagers. And when his brother gets a haircut. Of course Cooper needed…
Read MoreForever Boy Cover Reveal in Two Days!
2 more days until my book cover is revealed! This photo was a strong contender and is one of my absolute favorites of the boys. We won this photo shoot actually. A friend nominated us and the amazing Kacie Ko donated her time and took our family photos. We had just moved from our ‘forever’ home to a new city three hours away so Cooper could receive therapy. It was a very lonely time for Jamie and me. We didn’t want to move. But helping Cooper was our top priority.…
Read MorePreorder Forever Boy Today
Four more days until the cover of my book, Forever Boy, is revealed! It is available on Amazon now though for preorder! This photo is one of the runner ups for the cover. It’s one of my favorite pictures of my boy and me. Someone asked me what the book is about and how it will differ from my blog. When you have a child diagnosed with something, anything, your world changes in an instant. It gets smaller for one. Suddenly, you feel like you are the only person on…
Read MoreThe Countdown is On!
The countdown is officially on for the reveal of my book cover! Forever Boy is available for presale but the cover is still a secret until Monday. 5 days to go! Cooper and I will reveal on Monday, live, right here! I’m going to share a few of the options that we considered for the cover. This is one of my most favorite pictures of Cooper. And the story behind the photo is fantastic. Cooper carried an 8×10 photo of our family everywhere he went. Even to our family photo…
Read MoreLessons I’ve learned About Marriage While Raising a Special Needs Child
We’ve spent so much of our time and marriage teaching our son how to communicate that somewhere along the way my husband and I forgot how to effectively do that with each other. Days are long, sometimes sleepless nights feel longer and the added stress of balancing therapy appointments, bills, insurance calls, and so on makes it harder to remember you’re on the same team. I’ll never say marriage is harder for those of us raising special needs children because I have no proof that’s true, but what I can…
Read MoreThe Mistakes I’ve Made
I’m going to tell you a not-so-secret secret. I have made some mistakes over the years in my parenting journey. Shocker, right? Not really I suppose. There are no perfect parents, and this stuff is hard. I have three boys. They are 10, 8, and 2. I also am 28 weeks pregnant with a baby girl. Life is about to get a whole lot crazier. My ten-year-old has autism and on paper is nonverbal. My 8-year-old is my emotional guy. And the toddler, don’t even get me started on him.…
Read MoreI Can Choose To Learn
When I think of the great teachers I have had throughout my life, I think of the typical ones many of us have had. A high school teacher. A family member. Someone we look up too but have never met. But if I was to truly answer the question honestly, I would tell you that my greatest teacher has been my son Cooper. He is 10. His autism was discovered at age 3, although it was no secret when the paper was slid across the table to us. It was…
Read MoreIt’s My Story to Tell
Don’t tell me it’s not severe When it’s MY story to tell. Don’t tell me it’s not severe When I daily live a version of hell Don’t tell me it’s not severe When all you got is something to sell Don’t tell me it’s not severe When there are holes where he fell Don’t tell me it’s not severe When the curve dips low on the Herrnstein bell Maybe the word is harsh? Or profound or extreme? Critical or grave? Or perhaps just plain mean? Do those options please you?…
Read MoreYour Smile
In my life, over the years, there have been a few things that have taken my breath away. The day I kissed my husband and committed my life to him as his wife…that kiss took my breath away. The night I found out I was going to be a mommy for the first time. The world stopped spinning and for a split second I stopped breathing. My daughter had a febrile seizure on top of me when she was 16 months old and I held my breath while my husband…
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