Posts Tagged ‘Nonverbal’
A Letter to my Daughter, You’ve Come So Far
Dear Emma, my beautiful daughter. You just turned three and a half and I still wait to hear a word…any word… from your sweet little mouth. You will be four soon and I can’t help but think back to that day. The day I was told you were autistic and ‘that you might never learn to speak.’ I have heard that sentence so many times now you’d think I would be able to just brush it off. Be over it. But every time I hear it, it flaws me. I…
Read MoreThis is My Life
Sometimes I still can’t believe that this is my life. My son is the one in whatever the number is now. I am that mom. That is our family. I still honestly believe he will surprise us all. He’ll be the one you hear about. The one where when they’re older you’d never know. I am not ashamed of my son, nor his disability. It is a part of him and makes him who he is. But what I wouldn’t give to just make things a little easier for him. …
Read MoreWill It Always Be This Hard?
I read a blog post today. It was written by a super exhausted mama for the super exhausted mama. Which obviously caught my eye. That’s me. I work full time. Two kids. One with autism. Three dogs. Home owner. Friend. Daughter. Spouse. I spend my days sharing autism, advocating, attempting to have a social life, trying to drink enough water, playing with my kids, exercising, fighting with Cooper over eating and communication, cooking dinner, cleaning my house, wishing I could walk my dogs, get a good night sleep and pee…
Read MoreHow to Borrow a Speech Device in your State
My son Cooper received his speech device when he was four years old. At the time I was overwhelmed by it. Not only did I feel the emotional strains of it I felt like getting one was such a huge commitment. Would it work? Should we try it? Will he even use it? I just didn’t know. I didn’t know how much energy I should put into advocating for a device either. I’ve felt this same way with many assistive technology devices. I wanted to try before buying. I recently…
Read MoreA Mother’s Letter to Santa
Dear Santa, What I want, can’t be bought in a store. No, what I want, means so much more. It’s something I have waited so long to hear. I really hope my wish is granted, this year. It seems to come so easily for most kids. I hope this wasn’t caused, by something I did. I have cried, and whispered many prayers. Sometimes, I feel like no one is there. The pain is real, and hard to bear. Please, Santa, show me that you care. I’m trying really hard to…
Read MoreThe Conversations Missed
Lately, I’ve been thinking a lot about my son talking. Or not talking. I want you to know that on the surface I’m okay with having a nonverbal son. And by okay I mean I can picture a future where my adult son does not speak to me. I don’t cry about it anymore. I haven’t for years. It wasn’t fair to him or me. I had to move on. I rarely dwell. I am even excited about his Speech Device and am hopeful that one day he will use…
Read MoreCooper’s Guide to Surviving the Holidays with Autism
The holidays are here! And wow are they stressful. Non-stop events, travel, shopping, expectations, etc. As much as I love Christmas time I know I always breathe a sigh of relief when January rolls around. One element that makes it more challenging is having a child with a disability. My son Cooper simply can’t go most places. Restaurants are not an option. Crowds, noise, being away from home and expectations are very challenging for him. Because of all that we had to implement some tough decisions when Cooper was three.…
Read MoreI’m Thankful For You: My Son’s Village
(Editor’s Note: This article was provided by Nikki Wallace and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This December I am honoring and thanking my son’s mighty village. I have so many people that I am grateful for that I don’t even know where to start. First, I want to thank my son’s aide Mrs. Angie Flint. She has been with us for two years now and she is like a second mom to my nonverbal six year old. When he is with her I never have to worry.…
Read MoreI’m Thankful For You: My Son’s Creative Arts Therapist
(Editor’s Note: This article was provided by Carrie Gagne and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This December I want to honor and thank Katie, my son’s Creative Arts Therapist. While I know we are lucky to have many wonderful therapists and teachers who help Drew every day, we are especially grateful for Katie. My son Drew was diagnosed with autism at 18 months. He was and still is nonverbal. Looking back now, I was in a total fog. Confused, scared and in complete denial. Then, angry…
Read MoreWhat’s In Your Christmas Tree?
My son Cooper loves our Christmas Tree. He will stare at it, study it, and even examine it. Cooper is a visual stimmer so the combination of the colors and textures soothes him. He also loves the tree for other reasons. He can help decorate it….daily. The tree is his go to place to put objects. Throughout the entire Christmas Season, I dig his shoes, books, plates, sippy cups, movies and family photos out of the tree. He also likes to hoard objects behind the tree itself…specifically objects he does…
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