Posts Tagged ‘inclusion’
Friend, My World is Different
Dear what could have been friend, And I say could have, but it’s not you, it’s me. Typical, right? But hear me out. I am generally a good person. And I don’t mean that in a boasting/bragging kinda way, just a that’s kinda how you should be way. Treat people the way you want to be treated, and all that. And you see I want this, I really do. I wish that every time you asked me a question I wasn’t simultaneously watching my child like a hawk. And it’s…
Read MoreFriend, I Understand You May be Scared
It’s the end of the school year and administrators are sitting with teachers working to create the best classes for the coming year. I understand it’s not an easy task. This year, I sit on the other side of the table as the parent who understands that my autistic child may be placed in your class. I have even heard that a few of my ‘friends’ have requested that their children not be in my child’s class. I want you to know, I understand. Really. I do. Friend, I remember…
Read MoreDear Teacher, From, Your Forgotten Student
Dear Teacher, My son was the one you forgot to acknowledge at the concert last night. You said such nice things about all the other seniors that are graduating. You knew where they were going to college and had at least one personal thing to say about them. It was a really nice tribute. Many of these young adults will be going to Ivy League schools. I’m willing to bet that most of these students are top students with high academic marks. I’m fairly certain that these same students have…
Read MoreNew Video: Finding Balance Outside of your Home
In this video I discuss how fantastic my son is doing right now. He is happy, healthy, and thriving in every area. Every day continues to be the best and happiest day of his life. Our family feels calm and relaxed. It’s been an amazing few months. But, we also realized that Cooper has literally only been going to and from therapy and to visit families houses. That is it. Otherwise, he is home. We want and need him to be able to have successful outings outside of our home.…
Read MoreInclusion at Church
This morning we are becoming members of a new church. This is our place. We love it there. Of course we had to find someone to watch Cooper. He can’t go. He can’t sit or be calm. This would be setting him and our family up for failure. I like to be honest with you. I’m sad and a little bit angry. But not at anyone or anything. Just the situation. It plain old sucks. I hate that we can’t all go. I hate that everything is such a big…
Read MoreI Can’t Expect You to Understand Autism
I am always in situations where I am around people I don’t know. Or at least don’t know well. I work outside my home. I am a member of a few boards. Involved in clubs. I try to have a social life when I can. My five year old and I attend church. He is also getting more involved in events every day. Soccer, groups, play dates. When I am in many of these public situations my mind will wander to Cooper. It always does. I tend to observe a…
Read MoreAutism, Isolation and Inclusion
I want to talk about a topic near and dear to my heart and very real in our autism world…isolation. I remember it started when my son was very young. Back in those days though, we thought he was just a challenging toddler. Autism wasn’t even in our vocabulary yet. We’d joke that he couldn’t sit still or about how busy he was and dream about the days when we could actually leave the house again. We thought by age 4 and 5 he would for sure be able to…
Read MoreWhy Do I Advocate for Disability Rights?
I have been asked more times than I can count why I advocate for people with disabilities. I’ve heard statements like ‘Why don’t you just buy the stroller yourself?‘ Or, ‘Why do you always seem to be fighting some battle around autism?‘ My answer is simple. It’s the right thing to do. I have the means, a voice, the ability and the passion. And I do it for the people that cannot. I advocate for the people that don’t have a voice and for people that can’t advocate for themselves.…
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