A Thankless Job

Yesterday we had another weekly visit from Cooper’s crisis social worker. It was great as usual. We laughed and told stories and talked about ways to help Cooper. More specifically ways to make life easier. I mentioned how the week before the electricity was out at the house and I lasted 15 minutes before I threw him the truck to watch a movie. That kid cannot survive without technology. In a 15 minute period he melted completely down over no WI-FI, useless remotes, VCR’s, DVD players, TV’s, kindles, etc. It…

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Loyal Dog Jumps on Hospital Bed to Comfort 9-Year-Old Boy With Autism

This story about the service dog that comforts an autistic boy made my whole morning. I’m not sure if it is because I am an insane dog person. My puppies are my babies. They are my children. Or, if it’s because Cooper will soon be having his fourth surgery. 3 sets of tubes, a tummy blockage and now adenoids. And if I was to rank some of the hardest days of my life those surgery days would be up there. I would give anything to provide comfort to Cooper. I…

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A Good Reminder

When Cooper wakes up in the middle of the night and comes to my bed he touches my face. He usually rubs my forehead and lays his hand on my cheek. It is so gentle that sometimes it takes me a second to register he is even there. Although he struggles with social cues, emotions, showing love, controlling his anger, etc., he is hands down the sweetest child I have ever met. I can’t even summarize his innocence with words. I don’t know how people could give up. It’s just…

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Joining the Club

I received an email from a fellow autism parent. It was so raw I actually cried when I read it. I wanted to crawl through the computer and hug this person. It resonated with me so deeply. This person reads my blog so I know they will see that I used their email. I just can’t stop thinking about it. I could have written this myself. I so get it friend. I read it this morning. I actually stumbled across it in my junk mail folder. I almost missed it.…

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Having a Child With Special Needs….

I received Cooper’s Kindergarten packet in the mail a few weeks ago and like it was planned….I promptly lost it.  The packet actually came the exact day that we were moving to our new house. So, you can understand why it got lost. The chaos of moving was too much. And to be honest, I have been dreading that damn packet like the plague. I don’t want Cooper to go to a mainstream kindergarten. It makes me feel completely helpless and out of control.I remember when Cooper was 3 or…

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Deciding to Be Brave

I had a friend ask me yesterday what made me decide to be brave. I love that question. I don’t feel brave. Ever. I feel afraid. And unheard. And lost. And completely unprepared and unequipped to handle what autism is throwing my way. But this sweet friend of mine saw it as bravery. And I loved her for it. I was filling her in on the whirlwind of the last week. I had my mini meltdown at Cooper’s pediatrician. I demanded that he helped me. I was a cross between…

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Autism and Changing Behaviors

I recently read a study that found moms that have children with autism, have also been shown to have stress levels similar to combat soldiers. I have felt this for years but I could never admit it. If I admitted that I couldn’t handle Cooper than I was admitting he was severely autistic. Admitting meant defeat. Or failure. There are a lot of emotions that go into asking for help. I am strong. Seriously. This blog is the ONLY place I break down. Not in real life. Not to friends.…

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Why Did I Stop Writing….

I get so many emails from people wondering where I am. Emails wondering if Cooper is ok. If I am ok? People that genuinely care about Cooper and his development reach out to me on a daily basis. These emails and messages warm my heart. And I am so thankful for them. It reminds me that Cooper’s journey is helping others. That is amazing. I can remember the blogs that got me through. I would read them from start to finish in a night while drinking a bottle or two…

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The Proverbial Straw

There are four sides to autism. At least that’s the way I see it. There is Cooper. He has autism. Then there is me and his dad and his brother and family. We have different expectations and emotions about Cooper. There is the rest of the world and how they perceive Cooper. There are teachers and aids and therapists and insurance companies. Doctors, financial aid workers. You name it. Cooper has it. And then there is the business side. Yesterday, while working an 8 hour day, I answered 4 phone…

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Trick-Or-Treating

I gave Cooper a sign for Halloween. It was simple. It said Trick-or-Treat. I gave it to him because he looks so much like a typical child and people don’t know how to react when he does things. They get nervous. I get nervous. And then Cooper gets nervous. By giving Cooper a sign I removed the guesswork and answered the questions that people have. ‘Is there something off with that child?’ We’ve all been there. You’ve all wondered it. Let’s be honest. You see a kiddo or even an…

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