Posts Tagged ‘Brothers’
You See a Boy and a Baby
You see a boy and a baby. It’s so much more than that. I see an 8-year-old boy and a 9 month old baby. Brothers. The boy is sitting in his driveway. Outside. Near a road. Safely. Sitting. He isn’t running. He isn’t eloping. He is calmly sitting. Next to his baby brother. A baby brother who is touching him. Leaning into him. Reaching for his tablet. Touching his arm and his leg. If you could hear you would hear Barney singing the ABC’s. The boy is babbling about the…
Read MoreIs he Happy Mama?
We were driving home from the birthday party. I glanced in my rearview mirror at Sawyer. He was red cheeked with messy hair. I saw leftover pizza and frosting on his face. He was clutching his giftbag. And I was hoping there wasn’t a whistle inside. I hate whistles. He was talking to his baby brother who was in the carseat next to him. ‘Did you see me jump buddy? I almost touched the sky! You saw me climb the rocks. I was scared though. I don’t like to be…
Read MoreBrother, I don’t Understand Autism
I don’t understand you Cooper. And I really don’t understand autism. Do you know that I used to think autism was an actual thing. Like an object. Mom would say you have autism. And you’d get a cookie. Or get to have your Kindle at dinner. And I’d want autism too. Only, I didn’t have it. I was the different one. Mom and dad always say that they don’t have to worry about me. I guess because I don’t have autism. And I guess because I talked. And potty trained…
Read MoreHow do I Explain Autism…
I’ve been thinking about this for a long time. How would I explain my autism world to someone with no experience with autism? I have two sons, ages 3 and 5. They both have moderate autism with severe communication delays. From a distance, or through filtered Instagram pictures, my sons look perfectly normal. Their disability appears discrete and insignificant to the untrained eye. How debilitating could it be? It’s absolutely devastating and almost invisible at the same time. My sons are verbal and I thank God for that. A verbal…
Read MoreMy Sons have Autism
Those 4 words are just words, yet hold so much meaning to me. In February of 2018, my son who was 19 months old at the time, was diagnosed with Autism Spectrum Disorder, Mixed Receptive-Expressive Language Disorder and Global Development Delay. And 6 months later my older son, 9 years old at the time, was diagnosed with Autism Spectrum Disorder, Generalized Anxiety Disorder and Social Pragmatic Language Disorder. My now 10 year old was diagnosed with ADHD-combined type in 2014. Nobody explained to me then I’d be fighting the battle…
Read MoreRegression SUCKS
Yes – I said it. Regressions sucks. Seeing my son who works so hard everyday lose skills and gain more anxiety is one of the most difficult aspects of this journey. He works so hard for each and every skill he has and to see one of them disappear is heart wrenching. We are currently in the mist of regression. When Jayden gets into a regression it seems to last months and it takes nearly everything inside of us to bring him out of it. Luckily each time his team…
Read MoreThe Day He Passes You
I absolutely love being a boy mom. Race cars, dirt, and ornery smiles. I had just found out we were pregnant that week with our second blessing. We were sitting on the couch after my oldest sons evaluation awaiting to hear the words I already knew were coming. “You’re son is on the spectrum”. My sweet toddler. Laying on the floor with a car on top of his chest. Spinning the wheels. Months later we find out the baby is a boy. Our second boy. Spinning car wheels flash in…
Read MoreA Tale of Three Brothers
This morning my six year old was talking to his baby brother. I was running around getting lunches ready. We were running a bit late. And after a night of no sleep the morning felt never ending. I peeked over and saw Sawyer head first in Harbor’s car seat. He was talking to him in his loving, brotherly voice. ‘It’s your brother Harbor. Your big brother. I just love you baby.’ My heart absolutely melted. I watched Harbor stop fussing and grin at Sawyer. Those two. Already two peas in…
Read MoreTwo Boys and a Sister on the Way!
My son Nolan was born May 2007. He was the easiest baby who came with a painless, smooth delivery. He made parenthood a breeze. There was no hesitation in giving him a sibling right away. Mylan was born December 2008, and Nolan wanted nothing to do with him. He would hide his head or leave the room entirely if Mylan cried. I could never get that beautiful proud picture of big brother holding newborn brother. I was horrified that the loves of my life were not like the online photos…
Read MoreWe’re Having Fun and We’re Doing It Together
Hear me out… This phrase is our family’s unofficial motto. When you live with severe autism you work so hard every day to make even incremental progress. When you’re at the end of your short rope and sweating from the preparation and execution of the simplest task to enjoy a teensy slice of normal, you can hardly believe it all came together for one shining moment. An autism diagnosis is like having the wind knocked out of you. You know you’re likely to take a deep breath again, but when?…
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