Posts Tagged ‘autism mom’
I Can’t Dwell On The Fears
It was no surprise to me. I mean, I didn’t even cry. Maybe I even zoned out a little bit. I heard him say, “What we are looking at is Autism Spectrum Disorder.” In my mind I was still thinking about why in the world playing with a baby is an important part of these assessments. He went onto say, “I am writing his prescription for 10 hours of TSS and 3 hours of BSC weekly.” I mean my son has never even played with a baby doll. Why would…
Read MoreTo the Parents of Children with Autism
We write this blog and share our story, not to get sympathy from others, but to educate others on what autism is, how different it can look from one person to the next and to offer support to others who are walking the same road. We don’t write it to complain about our life, but to celebrate life and our sons. The support for others is a big reason why we do this. To all the autism moms and dads out there: We see you, we know your struggles and…
Read MoreThe Moment It Hits You
Today, the girls and I made plans to enjoy a nice lunch outside at the Old Mill with Jack while Cam and Daddy went for haircuts. In addition to The Old Mill being my daughter Olivia’s favorite place on earth, we thought Jack would enjoy watching and feeding the ducks while we ate. I prepared as I normally do – with toys I know Jack loves, water, snacks, my phone at easy access in case I needed to put on a show, etc – the works. We are used to…
Read MoreI am His Person and He is Mine
My son Cooper is always with me. Always in the same room. Always near me. We move throughout the house together. He’s my little shadow. Never doing what I’m doing. Just always near. He sits outside the bathroom door. He waits for my shower to be over. The kid that seems to be oblivious to almost everything knows where I am at all times. When I’m gone he asks for me. He waits on the porch. Or near the door. He asks for me with his speech device…’I want mom.’…
Read MoreLearning the Value of Self Care
Self care is EXTREMELY important. It’s the reason they tell you to put the oxygen mask on first and then give it to your kids. If you are not OK, you can not help others. Having a child with special needs is taxing, extremely taxing. In years past, I was not using self care at all. I didn’t believe in it. I didn’t think I deserved it. I thought it was selfish. I thought it was fluffy stuff. So, I ignored it and actually went the other way which was…
Read MoreShielding My Autistic Son from Cruelty
My name is Amy and I live with my husband and son in Michigan. Our son Travis has severe autism with limited verbal ability. Travis is 11 and is very active! He is the center of the universe, and if you were unaware of this, he will use his super powers to convince you otherwise. Yesterday, we took him bowling. He was having so much fun. When he is excited and happy he squeals joyfully, and kind of side walks, very energetically. This is very typical behavior for him. It…
Read MoreJumping Into the Rabbit Hole
It was 2016 and we were feeling pretty good about things. The psychiatrist recommended an occupational therapist to use as a way to address our son’s up tick in outbursts. Within the last year the explosive tantrums were not occurring with the same frequency (yay), but when they did, they were fierce (nay). And when they were fierce there were times I would get sad and sink into what I call the rabbit hole. I would feel sorry for myself and lament that other families did not have to deal…
Read MoreThe Can’ts Will Become Cans
I remember like it was just yesterday. I dazed out of the evaluation window as we waited for someone to come in and explain how this “process” works. My son had just turned 2 a couple of weeks earlier, and he was finally old enough for an official diagnosis. I was anxious because on that today, June 9, 2015, I would find out that it wasn’t all in my head. That something was indeed wrong. We listened, we asked questions, we tried to initiate activities that showed the doctors why…
Read MoreAdvice For The New Autism Parent
Dear New Autism Parent, First of all, I want to say I’m sorry! Even if you’ve suspected that your child has autism, having your theory confirmed hurts. It’s like a smack in the face. It feels like all of the plans you had are gone and the child you expected to have may never be possible. It sucks! Believe me I’ve been there not once but twice. I’ve had to sit through a meeting where they break the news that my suspicions were correct. Despite how you might feel right…
Read MoreYour First Time Seeing Autism
We’ve known each other for years. Friend of a friend I suppose you could say. We are the same age. Both married. Both busy. You don’t have children though. I would say you know me pretty well. You know where I work. Where I live. Who my friends and family are. I see you regularly. You know that my son has autism. You hear me talk about him often. Sometimes I talk about the hard times. The medical struggles. The sleep deprivation. The constant fight. Sometimes I talk about my…
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