The Moment It Hits You

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Today, the girls and I made plans to enjoy a nice lunch outside at the Old Mill with Jack while Cam and Daddy went for haircuts. In addition to The Old Mill being my daughter Olivia’s favorite place on earth, we thought Jack would enjoy watching and feeding the ducks while we ate.

I prepared as I normally do – with toys I know Jack loves, water, snacks, my phone at easy access in case I needed to put on a show, etc – the works.

We are used to meals out cut short, abandoned full grocery carts, leaving get togethers early, etc. We do what we need to do when autism is just too much to handle. We deal with it the best we can and leave situations when it gets to be too much.

Today was a first, though.

That nice lunch we planned on enjoying turned out to be these hot cakes you see right here. That view of the pond and cute ducks? Turned out to be the inside of a Honda minivan.

You see, the conditions on the patio there were just too much for Jack to handle. Something I probably should have thought of… The view of the pond, the ducks swimming by and quacking loudly, the wind, the sun shining brightly, the other diners chatting, the laughter and noise from the event room along side our table.

As I walked Jack to his chair, I could see his eyes darting all around him, not sure what to focus on. I could feel his anxiety building. When he pulled my hand, pointed towards the parking lot and yelled “GO!”, I felt my heart sink. I knew once it started, there was no turning back.

I quickly grabbed my bag of tricks and tried working my magic, but the tantrum was already in full force. Now, in a full sweat and putting on quite the show for the other diners, I grabbed his letters; which if you know Jack, you know letters are his fixation at the moment and if anything would calm him down, it’s those.

My little Jackie swatted at the letters and threw himself on the floor – kicking, screaming and crying his eyes out. At one point, he almost hit his head on the fence separating us from the pond. It was not pretty.

If you were witnessing this and didn’t understand our situation, you would probably just think my child was being bratty, misbehaving, living up to the “terrible two” name. But this is not the case at all. Jack can’t process what’s around him like a typical child his age can. My Jack can’t communicate his feelings. He can’t tell me he doesn’t like his surroundings or that it makes him uneasy or anxious. Jack has some words and is working hard to build his vocabulary, but he is unable to form a sentence.

So, using the only way he knows how, he shows me he cannot handle being in the situation at the moment.

His sisters were helping as best they could, as they always do. As my oldest glanced up at me and said “We’re going to have to leave, aren’t we, mama?”, I looked over at my Olivia and saw the tears start to pour down her face.

After an attempt to move inside and the tantrum just escalating once again, I knew we had to leave.

As we walked out, I tried to lean over and wipe the tears from Olivia’s face and assure her that I would figure something out, but she couldn’t hear me over Jack’s cries. That short walk to the car seemed like miles. Jack is getting so big now and it’s hard for me to carry him when he’s not calm.

Once the kids were all piled into the car, Jack finally started to calm down (thank the good Lord for entertainment systems.) As I buckled him in, I glanced over at my girls.

“It’s ok, mama. We can eat at home.” my sweet Maddie said. Then I looked over at Olivia who had her head buried in her lap. I wanted to do just the same.

I got in my seat, sat back and took a deep breath in. The exhale was accompanied by hot streaming tears. Normally, I keep it together fairly well, especially in front of my kiddos.

Today, well, that just wasn’t happening.

In that moment, it all just hit me like a ton of bricks. And instead of trying to play it cool for my girls, I let my guard down. I let them see how upset I was too. After explaining that this environment was just too much for Jack today and for the fact that we were all very hungry, we decided on hot cakes for lunch from the drive through.

As we sat in the car enjoying our breakfast for lunch, my girls and I chatted.

We talked about autism, about our sweet Jack, about how hard he has been working, about the strides he has made, about how hard it is sometimes BUT how it continues to get better. We cried, we laughed and I reminded the girls how very great they have been through everything. They are so empathetic with Jack. They help out whenever they can. And most importantly, they love their sweet Jack with all of their hearts.

This journey with Jack has been quite eye-opening for me – in motherhood and in life in general. It surely gets overwhelming sometimes, like today. And sometimes I feel like I get so wrapped up with Jack that I lose sight of how the other kiddos are doing with it all.

For the most part, Cam is still too young to understand, but the girls are right there in the trenches.

Looking back on today, I’m thankful for this drive-thru hot cakes lunch and the time with my girls.

And guess where the girls and I ran off to for dessert once Matt got home to stay with the boys?

The Old Mill.

Written by, Vanessa France

Vanessa France is a working mama of 4 children – ages 9, 8, 6 and 3. She’s a self proclaimed hot-mess mom trying her best to raise polite and happy humans all while documenting the beautiful, messy world of motherhood on social media. Vanessa works in Hospice full-time and runs her own skincare business on the side with Rodan + Fields, where she loves to share amazing products and a work from home business opportunity with others looking for more. You can follow Vanessa on Facebook, on Instagram, for her skincare line and on her website.

Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook and subscribe to our newsletter.

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This post originally appeared on Vanessa’s blog, Vanessa France.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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2 Comments

  1. Julissa Alcantar on June 11, 2018 at 11:07 pm

    Both of my children are on the spectrum and we didn’t officially find out until she was 14 and he was 12. The meltdowns are different now but I was always told this happened bc I spoiled them. It was so hard but everything you describe we lived. It gets better bc it changes, subsided some but other things like anxiety and depression set in. When others ask me how didn’t you know? It makes me mad- do you think I didn’t report these things, didn’t notice, didn’t say anything? And when I tell people the first thing they say is sorry and i don’t want to hear that either. It’s hard- how can you help? Help me with the other child I’m not tending to while I am dealing. Help me distract during the meltdown. Help me by getting others to stop staring and walk away to call less attention to my child who has zero control over this. Those are some things. The mom who commented on FB teach your kids to be nice to our kids would be amazing! This ugliness towards those who are different has to stop! My 2 cents! Praying for all of us.



  2. evelyn on June 12, 2018 at 1:18 pm

    I’m all tears right now, my life is a mess. I wish one child with severe autism was my only struggle (as crazy as that statement sounds, it is true). I have 3 kids, two boys on the spectrum (5 and 3), one non verbal and the little one limited speech (he only repeats some words he hears, like a parrot, but has no real communication). I am also 7 months pregnant (not planned). My husband refuses to believe the little one has autism, because since he is able to speak a few words, that makes him normal. So, in order to get his diagnosis, I have to fight my husband’s denial. I’m also an immigrant and English is my second language, so doing any paperwork or making phone calls are a struggle too, besides helping people like me is not priority, thanks to this administration. I have no family, no friends in this country and my husband is being an idiot ( not always, but not helpful as I need him). Sorry I am using this to vent. Thanks for reading.