Posts Tagged ‘autism in girls’
If We Want Success, Than Follow Her IEP
Today I volunteered at my daughter’s school in her Kindergarten classroom for their Halloween party. It was a quick visit to drop off cupcakes and help out for a little bit. Of course, the moment I entered the room the school psychologist asked me to visit his office on my way out. But Ally came running over to me with excitement and I tried to forget what awful news they had for me. I helped kids make little ghosts with glue and cotton balls and they all followed directions and…
Read MoreThe 7 Stages of Special Needs Parenting
The first stage is denial, it wouldn’t happen to you, Your perfect little baby, you won’t believe it’s true. They can laugh, they can count; They’re so happy, so smart, But you have a sinking feeling, deep inside your heart. There’s something just not right, and other people see, ‘Oh look at how she moves her hands!’ And ‘It’s like she can’t hear me’ You mention it to someone, they say ‘No, I don’t think so’ But time passes and even they see the signs starting to show. Stage 2 is realisation that…
Read MoreThe Heartache of Early Autism
A high-pitched, eardrum-puncturing, almost inhuman scream came from behind me. The sound quickly filled the room and immediately pierced my heart. Instead of turning around, I reached for the door handle, shut the door tightly, leaving her on the other side. As I walked down the stairs, her screaming never let up. I went outside, sat on our porch swing and began to gently press my bare feet into the pebbled pavement causing the swing to sway slowly back and forth. The warm rays of the sun and refreshing cool breeze beckoned me to look upward,…
Read MoreI Wonder About the End
I wonder about the end. The end of autism. And I don’t like that thing (of me) that creeps up through the night as I think. Staring into that corner by the closet where it sits. No matter how I try the thought it crawls on me. “When are you going to stop hiding? To stop running from me?” It whispers. “You know the truth: that Autism will only ever end when you accept it. When you invite it in.” At the beginning I’d always end up in front of…
Read MoreThe Doctor who said, Your Child is the Least of my Concerns
My daughter is autistic and started having seizures at age 11. I remember the day I got the call from the school nurse that she had a seizure in class. I actually expected it at some point due to her neurological issues, so it didn’t take me completely by surprise, but it was terrifying nonetheless. We already had a neurologist so we had the 24 hour EEG right away which confirmed she was having partial complex seizures. The type where you just kind of stare off into space for as little…
Read MoreA Letter to the Siblings of Kids with Special Needs
My son said to me today, “ I want home to be fun”. So, I wrote both of my boys a letter. It’s long, but my heart was heavy. A letter to my boys ( and other siblings) of newly diagnosed kids with special needs: No one told you your path in this world would take a sudden turn. It would get bumpy and rocky and sometimes you’d be hanging on for dear life to the edge of mom’s last ounce of patience before it would straighten out for a…
Read MoreTo my Fellow Target Shopper
“You are a little too big to be sitting in there don’t you think?” So said the elderly woman at Target, with a chuckle and a wink, to my Isla as she sat with her knees grazing her chest in the shopping cart. I was tired. My body, my spirit, tired. The summer has been so long. I had zero make-up on but I had brushed my teeth, put a cap on to hide my unkept hair and managed sufficient deodorant swipes so I was totally winning the day in…
Read MoreTo the Parents Who Don’t Understand, Just Ask…
Last year about this time I posted a blog about inclusion. See, I am not a strong proponent either way as I feel everyone should be included to the best of their ability no matter what their extra needs or disabilities. Certainly, a child with disabilities should not bring trauma to your own typical child but reality is, my own children have had more struggles with typical children than they ever have with a child with extra needs and actually have learned more from them than their typical peers. That…
Read MoreMissing the Me I Might Have Been
On the way home from a special needs event I was actually able to talk my daughter into attending, we stopped at Starbucks drive through. As I waited in line, I watched people getting out of their cars and going inside. Families laughing and enjoying the Florida sunshine. Most were probably tourists, since I was about 15 min from the gates of Disney World. We got our drinks and then I hopped on the interstate to head home. We had a really good day today. Casadee attended the special rodeo…
Read MoreI’m Sorry You’re Missing This
I’m sitting here, basically in shock. Shock of the ignorance of people, wondering if it ever has an end. I’ll start by saying that I love my job (well, loved). I thrive in that chaos. I love new and challenging things. I feel like my life has been one giant challenge since August 17th, 2010 – the day my daughter was born. It definitely started off pretty quickly. They had us stay in the hospital for two days after I gave birth to her. The evening I brought her home,…
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