Posts Tagged ‘autism blog’
My Husband, Thank You for your Sacrifice
I am thankful for my husband Steve. We’ve had an amazing journey thus far. November 27th will be our families Autism anniversary. The day one of our twin boys, Maverick, was diagnosed. At the time of Maverick’s diagnosis, we were living in central Washington. A peaceful, rural area, filled with apple orchards and wineries. A beautiful place to raise a family, just maybe not our family. Acquiring services in an underserved area is difficult. Maverick was receiving early intervention services through a local organization. It consisted of two speech therapy…
Read MoreI’m Thankful for the Ultimate Grammie
I am honoring my mother, the ultimate autism Grammie, Hughena Gear. I am thankful for her for so many reasons. If you look at the definition of thinking outside the box, she defines it. There is not one thing she will not do for her grandchildren. Our eldest son Emmett was diagnosed with autism almost three years ago, he is now six. Mum has been there every step of the way. They relate, she sees things how he does sometimes, stuff that we may not able to see right away.…
Read MoreTo the Person Who Judged Me
To the person who judged me, How could you say it’s my fault my child has Autism? How could you go so low. When I am already at my lowest. You have no idea the struggles we have went through. You have no idea all the hurdles we’ve had to jump. All the sleepless nights. All the meltdowns. All the frustration. Being so emotional because your child doesn’t speak, and you have no idea what is wrong. All the doctors and therapy appointments. Feeling so isolated. Wanting to cry 24/7.…
Read MoreThe Parts I Wasn’t Prepared For…
When my son was diagnosed with autism at age three, I was initially devastated. I think that’s normal for a parent. The word was big and scary. It made me feel out of control. It made me feel helpless. I knew nothing about autism. Or where to begin. Or even what the future held. I felt that way for at least a year. But once the dust settled, I dove in. My kid was awesome. He was adorable and smart. He just needed more time. More help. Autism didn’t change…
Read MoreThinking About Forever
A few nights ago we attempted to take Cooper trick-or-treating. We prepared. We planned. We encouraged and motivated. We set realistic expectations. We tried. We failed. And Jamie and I found ourselves sitting on our porch thinking about forever. Thinking about the next fifty years of autism. We aren’t new to this. We’ve been doing it for seven years. We live realistic hope better than anyone I know. And yet, we were there again. Looking at forever. Saying the worries out loud that only a parent of a severely disabled…
Read MoreYou are More Than Just Teachers; You are Family
When I was 18 weeks pregnant with my oldest child I started researching daycare centers. I visited a few and while they were all beautiful, in new buildings with state of the art facilities and big corporate names attached, I always felt like I was being sold something, and not like they genuinely cared about being with my child for so many hours each week. Then I visited Little Hands Academy (LHA), which didn’t even come up on my GPS as I was trying to visit it for the first…
Read MoreEverything I Learned in Life I Learned in Kindergarten
This past week my son Brayden was child of the week. I had an opportunity to go into his classroom and talk with the class about Autism. We talked about Brayden and how he loves to swim, jump on trampolines, play in the sand, and swing just like they do. We talked about ways that we all cope if we are frightened, scared, or sad, and what that may look like for Brayden. The kids had an opportunity to try on his ear phones, weighted vest, blanket, and body sock.…
Read MoreThank You to the Friend Who Helped
I am a 56 year old mother in Florida with twin boys – one with autism and one without. They are now 19 years old. I knew my son had autism before he turned 2 – when I look back on it – I think he had it from birth. They were born at 28 weeks and had to spend 2 months in NICU. He always hated the bright lights and noise in there – would try to pull out his IV’s – had to have music to calm him…
Read MoreWhat Being Your Mama is Like
You know the thrill of going down a roller coaster? You’re incredibly terrified, gripping the sides, white knuckles and all. You can’t even seem to breathe. You’re dizzy, and everything is a blur. It’s so loud you can’t hear a thing. You just know you’re about to be sick. Your hair is in your face and your stomach is in your throat. “What am I going to do?” you ask. You feel completely out of control, like wherever this things takes me, that’s where I’m going. You just have to believe…
Read MoreAdjusting to Life with a Baby (VIDEO)
I am so excited to share with you how we are adjusting to baby Harbor and to being a family of five. We are twelve days in! Honestly, overall, it’s going VERY, VERY well. In so many ways we are just your typical family adjusting to having a new baby. There are moments of chaos of course. But, there are also so many parts that are so much harder. Cooper still needs 100% of his self care administered. He can’t get his own snack or drink, or dress himself, or…
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