Posts Tagged ‘autism and siblings’

My son has been in school for a little over a month now. He is a 7th grader at our local middle school. Except it looks a little different than most. He doesn’t switch classes. Or have a locker combination. And we’ve never had to worry about the cell phone policy. I have no idea what the cool kids are wearing or even what middle schoolers are into. And I don’t know anything about the extracurricular activities and often I tear up when I read the newsletter. It’s hard to…

When my son Cooper was first diagnosed with autism, and in the years that followed, I spent a lot of time secretly wondering what our relationship would be like. I was told he would never be able to talk. Or live independently. And a whole lot of other things as well. And I’d wonder. And worry. Would we ever have a conversation? Would we ever go grab dinner together at a restaurant? Go to his first concert? And so on. I’d wonder while driving and studying him in the rear…

When my son was two years old his daycare provider told me that he would never speak, make a friend, or ride a bike. She later went on to say he would never hit a baseball. She told me at my car after I had buckled my son into his car seat and closed the door. She had followed me out. She was determined to tell me her predictions. In the ten years that have since passed I have replayed that conversation a million times in my head. It broke…

“We should start planning for his future?” This is what my husband often says, but neither of us are sure where exactly to start. Should we set up a special needs account? Who will be in charge of his care? Where will he live? Who will explain to him what’s going on and how? I keep telling myself that we don’t need to think about this for a long time, but the reality is, we do. The fact of the matter is, something can happen to any of us tomorrow.…

I will never forget the day I found out I was pregnant with my second child. It was a surprise as they say. Our first born son Cooper had just turned one and terms like ‘speech delay’ and ‘development delay’ were already being discussed. When Sawyer was born 9 months later I was scared to say the least. A diagnosis of autism was being discussed. But it was more than that. I felt like a failure as a mom to my first born. How would I be able to give…

Pictures are funny. You can look at a seemingly ordinary one and think nothing of it. Like this photo. A mom. Two kids. An older boy. A younger girl. A baby doll. They appear to be at a place with model trains. What you don’t see is the hard work. The years of practice. The relentless journey of hope. The prayers. The picture doesn’t tell you that the older boy has a diagnosis of severe nonverbal autism. And for nearly all of his life going into the community was incredibly…

People ask me all the time how they can help. Kind people. Loving people. Strangers. Friends. Family. People on this page. I speak about that out of control feeling that happens when my son starts struggling. When his big feelings about waiting or sitting overwhelm him. Or when the noise is too much, and the lights are too bright, or he smells something in the air that you and I can’t make out. Maybe we are in line at the grocery store. Or at a hockey rink watching his younger…

Join Anderson’s Bookshop for an in-person event and signing line with author Kate Swenson, to celebrate the release of Forever Boy, on Friday, October 6th at 7pm CT in our Naperville Store. Kate will be in conversation with insert conversation partner. After, they will take audience questions, have a signing line and take photos with attendees, if they wish! This event will be held in our Naperville store location (123 West Jefferson Ave), and pre-registration is required as space is limited.   REGISTER HERE: Author Event with Kate Swenson/Forever Boy | Eventcombo More about Forever Boy: With her popular…

I used to be a different person. Extroverted. Vibrant. People used to say that I bounced when I walked. I had dreams and goals. I knew who I was and what I wanted to have in my life. I knew what I enjoyed and had hobbies. I made time for myself. I laughed a lot, and loudly. I smiled a lot. I have worked in healthcare since high school. My job was everything to me. I lived for helping others and being there for them. I lived for the absolute…